Living with Aspergillosis

Laptop displaying trusted palliative and supportive care resources, including practical support, planning ahead and help for families and carers.

🌐 Trusted Online Resources for Palliative and Supportive Care

Marcela and Tom from the European Aspergillosis Patient Advisory Group at the ERS Congress 2026

European Aspergillosis PAG at ERS 2026: from patient to partner

People living with…

Woman checking a steroid emergency card and medical summary while tapering prednisolone

Prednisolone tapering: mood changes, low cortisol and staying safe

Infographic explaining the benefits of keeping a health diary for people with aspergillosis, including symptom tracking, identifying triggers, managing brain fog, preparing for medical appointments, monitoring progress and improving self-management.

The Power of Keeping a Health Diary When You Have Aspergillosis

Person sitting by a window with a warm drink, reflecting on finding meaning and support while living with chronic illness

When illness changes life: finding meaning and support

Older person sitting quietly beside a garden with a book and cup of tea, reflecting on life with aspergillosis.

Making room for life alongside aspergillosis

The Thursday Sessions online aspergillosis support meeting, every Thursday at 10 am UK time, illustrated with three people joining from home.

The Thursday Sessions: When Managing Treatment Becomes as Exhausting as Managing Illness

Infographic showing the difference between sharing a patient experience, interpreting what happened and giving medical advice.

“It Worked for Me”: How to Use Health Advice from Patient Support Groups

The Thursday Sessions online aspergillosis support meeting, every Thursday at 10 am UK time, illustrated with three people joining from home.

The Thursday Sessions: Living with Aspergillosis Day to Day

Three people joining a friendly online aspergillosis support meeting from home using a laptop, tablet and phone.

Join our online aspergillosis meetings