National Aspergillosis Centre Video Recordings
NAC Monthly Patient Meetings
The NAC monthly patient meetings provide a friendly, supportive, and informative space for anyone living with aspergillosis or related conditions. Hosted by the National Aspergillosis Centre (NAC), these sessions bring together patients, carers, and healthcare professionals to:
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share personal experiences
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ask questions in a safe environment
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hear the latest updates on treatments, research, and self-care strategies
🎥 Watch past sessions
Our YouTube channel now has 87 recordings, covering everything from expert talks to personal patient stories. Whatever your stage in the journey — newly diagnosed or managing your condition for years — you’ll find something helpful and relatable.
Recent Highlights
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September — Explored how Artificial Intelligence can support patients in finding trustworthy information. We also answered community questions about biologic medications, looking at what research tells us about their long-term effectiveness in asthma and ABPA.
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August — Focused on new biologics for severe asthma, discussing why they don’t always work for everyone, and why some patients see benefits fade over time.
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July — Shared updates from the British Thoracic Society meeting in Manchester, plus further insights into what the future may hold for biologic treatments.
💡 Whether you want practical advice, the latest medical updates, or simply the chance to connect with others who truly understand your journey, the NAC monthly meetings are here for you.
How to exercise with aspergillosis
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Recording from 29 April 2021, when our specialist physiotherapist Phil Langridge gave a talk to our aspergillosis patient and carers support group on exercise.
-----Contents of video----
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- 00:00 Intro
- 04:38 Exercise, physical activity and fitness
- 06:59 Why should we exercise
- 09:51 Why don't we exercise
- 18:14 Goals
- 29:37 Success measures
- 32:09 Where to access help
- 37:03 Progressing exercise
- 44:21 Pain and exercise
- 47:33 Resources
- 48:16 Q&A
Further resources:
- https://www.blf.org.uk/support-for-you - a plethora of useful information
- https://www.asthmaandlung.org.uk/living-with/keeping-active/pulmonary-rehabilitation – great information about pulmonary rehabilitation
- see https://www.bhf.org.uk/informationsupport/support/practical-support/cardiac-rehabilitation for cardiac rehabilitation
- https://weareundefeatable.co.uk/our-stories/ian - one patient with COPD shares his story regarding exercise
- https://weareundefeatable.co.uk/our-stories/krisina - a patient with asthma shares her story
- https://www.nhs.uk/live-well/exercise/ - some more background on exercise benefits and some ideas for options
- https://www.uhb.nhs.uk/Downloads/pdf/PiOtagoStrengthBalance.pdf - an evidence-based exercise programme shown to reduce the risk of falls.
- https://www.nhs.uk/live-well/exercise/gym-free-workouts/ - some examples of exercises
- https://www.blf.org.uk/support-for-you/keep-active/exercise-video – more examples of exercises
- https://blogs.bmj.com/bjsm/2020/12/18/return-to-exercise-helping-patients-to-overcome-the-long-tail-of-covid-19/ Returning to exercise with long covid in non-athletes
- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4620334/ - a case presentation of Exercise-Induced Pulmonary Haemorrhage/oedema, discusses possible pathophysiology
- https://www.diabetes.org.uk/guide-to-diabetes/managing-your-diabetes/exercise/blood-sugar-levels - managing exercise and diabetes
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How to manage breathlessness
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Recording from 15 April 2021, when our specialist physiotherapist Phil Langridge gave a talk to our aspergillosis patient and carers support group on breathlessness.
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- 00:00 Intro
- 01:05 Meaning of breathlessness
- 03:19 When to seek help (Safety net)
- 04:09 Causes of breahlessness
- 06:53 Things that can be done to help with breathlessness
- 17:19 Techniques to help with breathlessness - Mechanics
- 21:44 Techniques to help with breathlessness - Positions for recovery
- 24:09 Techniques to help with breathlessness - Timing
- 29:27 Techniques to help with breathlessness - Worry
- 32:09 Techniques to help with breathlessness - Other
- 41:04 Take home points
- 43:16 Q&A
You can read more about managing breathlessness here.
The British Lung Foundation has a wealth of information on breathlessness here. [/et_pb_text][/et_pb_column][/et_pb_row][/et_pb_section]