What We Provide
Maybe you or a loved one has just received a diagnosis of aspergillosis and you’re not sure where to start. Or maybe you need to share information about your condition with your doctor, carer, housing association or benefits assessor. This website is here to provide patients and carers with everything you need to know about aspergillosis. We also provide a newsletter with monthly updates.
This website is edited and maintained by the NHS National Aspergillosis Centre (NAC) CARES team.
The National Aspergillosis Centre is an NHS highly specialised commissioned service that specialises in the diagnosis and management of chronic aspergillosis, a serious infection affecting mostly the lungs caused by pathogen species of the fungus Aspergillus – mostly A. fumigatus but also several other species. NAC accepts referrals and requests for advice and guidance from all over the UK.
We run a Facebook support group and weekly Zoom meetings which provide a great opportunity to chat with other patients, carers and NAC staff.
This website can be used to check whether any prescription drugs you may be taking will interact with your antifungal medication.
The blog area has posts on a variety of topics including information on living with aspergillosis, lifestyle & coping skills and research news.
What is Aspergillosis?
Aspergillosis is a group of conditions caused by Aspergillus, a species of mould that is found in lots of places all over the world.
Most of these moulds are harmless. However, some can cause a variety of diseases ranging from allergic reactions to life-threatening conditions, or both.
Aspergillosis rarely develops in healthy individuals
Most people breathe in theses spores every day without any issues.
You cannot catch aspergillosis from another person or from animals.
There are 3 forms of Aspergillosis:
- Chronic pulmonary Aspergillosis (CPA)
- Saprophytic Sinusitis
- Allergic Bronchopulmonary Aspergillosis (ABPA)
- Severe Asthma with Fungal sensitivity (SAFS)
- Asthma Associated with Fungal Sensitivity (AAFS)
- Allergic Fungal Sinusitis (AFS)
Acute infections such as Invasive aspergillosis are life-threatening and occur in people with weakened immune systems.
Rarely, someone with a normal immune system can get Aspergillus Pneumonia.
A-Z of Aspergillosis
The Aspergillosis Trust has compiled an A-Z of everything you might need to know if you have a diagnosis of aspergillosis. Written by patients for patients, this list has lots of useful tips and information for living with the disease:
News & Updates
Alison Heckler ABPA I have written about the initial journey and diagnosis before, but the ongoing Journey occupies my thoughts these days. From a Lung/Aspergillosis/ Breathing perspective, now that we are coming into summer in New Zealand, I feel I’m doing ok,...
We're excited to share that there's a new clinical study that's looking into an innovative treatment specifically for individuals dealing with both asthma and ABPA. This treatment comes in the form of an inhaler called PUR1900. What is PUR1900? PUR1900 is an inhaled...
Living with a chronic condition is like navigating a course with varied terrain. It's not a journey that will end in recovery in the conventional sense, as the condition itself persists. Instead, it is about managing the fluctuations—periods of stability interspersed...
FIT funding enables the National Aspergillosis Centre to host large Facebook groups, such as the National Aspergillosis Centre Support (UK) group and also groups that support their research into Chronic Pulmonary Aspergillosis (CPA) and Allergic Bronchopulmonary Aspergillosis (ABPA). This patient participation and involvement is vital for NAC research.