by GAtherton | Jan 29, 2019 | Living with Aspergillosis, Patient stories
I’m a 60 year old gal, diagnosed with asthma since age 2 and ABPA since age 45. I’m pretty sure the ABPA dates back to age 30, though, because that’s when I started having recurrent atelectasis, once or twice a year. Usually I could clear it by myself, with some...
by GAtherton | Jan 29, 2019 | Living with Aspergillosis, Patient stories
This is my Aspergillus story, told using my posts on the Aspergillus Forum. It stands as a pretty accurate diary and guide to how the diagnosis and treatments have made me feel. Monday, September 22, 2008 8:00 PM Hi, I’m also new to the group and am very...
by GAtherton | Jan 29, 2019 | Living with Aspergillosis, Patient stories
This is my story about Xolair. I have been on it for about 6 years. In 2003 I was seen at National Jewish in Denver. At the time it was suggested that perhaps it might help with my Aspergillus even though that is an off label use. My pulmonologist was willing to try...
by GAtherton | Jan 29, 2019 | Living with Aspergillosis, Patient stories, Video
Friday 13th March 2015 was the day I got told I was going to die. Today makes 2 years since that day. If you are new to my channel a bit about me. My name is Stewart Armstrong I have Sarcoidosis, Chronic Pulmonary Aspergillosis (CPA) and a very low CD4 count. I...
by GAtherton | Jan 29, 2019 | Living with Aspergillosis, Patient stories, Video
Nasilele describes her experience of living with CPA after a prior diagnosis of Tuberculosis and then having a severe cough that did not respond to antibiotics. A CT scan identified a fungal ball and she was treated with antifungal medication for 18 months. Nasilele...
by GAtherton | Jan 29, 2019 | Living with Aspergillosis, Patient stories, Video
Stephen describes the difficulties living with Chronic Pulmonary Aspergillosis. He was initially suspected to have Tuberculosis but a year later he was finally referred to the National Aspergillosis Centre, UK. Stephen decribes a strong improvement when on antifungal...