In collaboration with Medics 4 Rare Diseases, the Barts and the London Immunology and Infectious Diseases society recently held a talk about aspergillosis. Fran Pearson, a patient diagnosed with the condition, and Dr Darius Armstrong, a consultant in Infectious Diseases and Mycology, were both invited to speak at the event. Watch the full talk below to learn more about both the patient’s experience of diagnosis and the challenges faced by doctors when diagnosing patients with infectious diseases.
Stories from other patients form an important part of patient support. Many people report that listening to or reading about someone else who has the same infection, and thinking about their experiences, helps them feel less alone as they come to terms with their own illness.
Carers are not forgotten, they are a very important group who also require support – in fact if we only supported patients we would be neglecting half of the people we need to help. Two of the videos below are given by carers.
If you would like to find more patient and carer stories, have a look at our written stories page.
On World Aspergillosis Day (February 1st), the Aspergillosis Trust organised a whole host of activities and awareness campaigns, to mark the occasion. Alongside their very successful Selfie Campaign, and the poster that was displayed on London buses in the run up to the day, the Aspergillosis Trust collected some poignant stories from patients and carers. Click here to read these stories and find out more about what the Aspergillosis Trust does.
Article originally published in the Hippocratic Post
Wheelchair travel by land, sea and sky; easier would it be that a camel pass through a needle’s eye. The holiday companies cheerily name themselves ‘Accessible Travel’ and ‘Can Be Done’ to tempt the disabled traveller, and, to be true, they do provide an exceptional service. Beyond their control, however, are the planes, trains and boats where wheelchairs are not welcome.
We’ve found a holiday haven on the shores of Lake Grienerick in Brandenburg, Germany: travel by hand-bike, flat-bottomed boat and even by horse-drawn carriage makes this a truly ‘barrier-free’ setting. Elsewhere, however, limitations announce themselves in a loud voice.» Read more