by Lauren Amphlett | Nov 24, 2023 | General interest, Living with Aspergillosis, Patient and Carer Blog, Patient stories
Alison Heckler ABPA I have written about the initial journey and diagnosis before, but the ongoing Journey occupies my thoughts these days. From a Lung/Aspergillosis/ Breathing perspective, now that we are coming into summer in New Zealand, I feel I’m doing ok,...
by Seren Evans | Oct 31, 2022 | Patient stories
Gwynedd was formally diagnosed with CPA and ABPA at the National Aspergillosis Centre in 2012. Below she lists some of the symptoms she experiences and what she has found helpful in managing the conditions. These symptoms fluctuate and can be very insignificant until...
by Lauren Amphlett | Sep 1, 2021 | General interest, Lifestyle and Coping Skills, Living with Aspergillosis, Patient stories
Alison Heckler is from New Zealand, and she has Allergic Bronchopulmonary Aspergillosis (ABPA). Below is Alison’s personal account of her recent experiences with aspergillosis and the impact it has had on her mental health. Physical and mental health go...
by GAtherton | Jun 15, 2021 | General interest, Information and Learning, Lifestyle and Coping Skills, Patient and Carer Blog, Patient stories
Chronically ill people are occasionally asked to consider entering a period of receiving palliative care. Traditionally palliative care was equated with end of life care, so if you are offered palliative care it can be a daunting prospect and it is entirely natural to...
by Lauren Amphlett | May 27, 2021 | General interest, Living with Aspergillosis, Patient stories
In this podcast by My Rare Disease, Katy, the series founder, talks to Marie about her aspergillosis journey. Marie talks openly about dealing with the diagnostic odyssey, the emotional impact, the need for self-advocacy and trusting your gut instinct, and how she...
by GAtherton | Feb 5, 2021 | General interest, Latest research news, Living with Aspergillosis, Patient and Carer Blog, Patient stories
Aspergillosis is a rare and debilitating fungal infection that is caused by aspergillus mould. This mould is found in many places, including soil, rotting leaves, compost, dust, and damp buildings. There are several variants of the disease, mostly affecting the lungs,...