Interviews with Patients and Carers

Stories from other patients form an important part of patient support. Many people report that listening to or reading about someone else who has the same infection, and thinking about their experiences, helps them feel less alone as they come to terms with their own illness. 

Carers are not forgotten, they are a very important group who also require support – in fact if we only supported patients we would be neglecting half of the people we need to help. Two of the videos below are given by carers.

If you would like to find more patient and carer stories, have a look at our written stories page.

Patient stories from World Aspergillosis Day

On World Aspergillosis Day (February 1st), the Aspergillosis Trust organised a whole host of activities and awareness campaigns, to mark the occasion. Alongside their very successful Selfie Campaign, and the poster that was displayed on London buses in the run up to the day, the Aspergillosis Trust collected some poignant stories from patients and carers. Click here to read these stories and find out more about what the Aspergillosis Trust does.

Travelling in a Wheelchair: A patient’s story

Article originally published in the Hippocratic Post

Wheelchair travel by land, sea and sky; easier would it be that a camel pass through a needle’s eye. The holiday companies cheerily name themselves ‘Accessible Travel’ and ‘Can Be Done’ to tempt the disabled traveller, and, to be true, they do provide an exceptional service. Beyond their control, however, are the planes, trains and boats where wheelchairs are not welcome.

We’ve found a holiday haven on the shores of Lake Grienerick in Brandenburg, Germany: travel by hand-bike, flat-bottomed boat and even by horse-drawn carriage makes this a truly ‘barrier-free’ setting. Elsewhere, however, limitations announce themselves in a loud voice.

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WHO WANTS TO LIVE FOREVER? by Elizabeth Hutton

Good old Freddie Mercury classic – ‘hitting the nail on the head’ brilliantly!  The one sure thing in life is that we’re all going to die – we’re all headed in the same direction – and yet it’s a subject most of us prefer not to think about or discuss.  Having faced imminent death ‘head on’ already anyway, I don’t have a problem with this at all – in fact, I’m probably better prepared due to my experience.  Nor do many other people, judging by the many advertisements for pre-paid funeral plans – it seems that many of us are now less ‘squeamish’ and being more practical.  Surely, it must be quite re-assuring to know that everything is in place and there is little for others to worry about, particularly financially.

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