by Lauren Amphlett | Mar 7, 2024 | General interest, How do I...?, Information and Learning, Lifestyle and Coping Skills, Living with Aspergillosis, Patient and Carer Blog
Managing a chronic condition can be a challenging journey filled with uncertainties. However, there is a tool that can help patients take control of their condition and help them understand potential triggers and how lifestyle factors may impact their condition. This...
by Lauren Amphlett | Nov 24, 2023 | General interest, Living with Aspergillosis, Patient and Carer Blog, Patient stories
Alison Heckler ABPA I have written about the initial journey and diagnosis before, but the ongoing Journey occupies my thoughts these days. From a Lung/Aspergillosis/ Breathing perspective, now that we are coming into summer in New Zealand, I feel I’m doing ok,...
by Lauren Amphlett | Mar 25, 2023 | General interest, Lifestyle and Coping Skills, Living with Aspergillosis, Patient and Carer Blog
Living with chronic and rare conditions such as chronic pulmonary aspergillosis (CPA) and allergic bronchopulmonary aspergillosis (ABPA) can be a daunting experience. The symptoms of these conditions can be severe and have a significant impact on a person’s...
by GAtherton | Oct 24, 2022 | Patient and Carer Blog
It can be hard to talk to friends and family about aspergillosis. As a rare disease, few people know about it, and some of the medical terms can be quite confusing. If you’ve been recently diagnosed, you might still be getting to grips with the disease for yourself,...
by Lauren Amphlett | Feb 21, 2022 | General interest, Information and Learning, Lifestyle and Coping Skills, Living with Aspergillosis, Patient and Carer Blog
Medical identification items such as bracelets are designed to inform healthcare professionals of conditions that may impact treatment in an emergency where you cannot speak for yourself. If you have a chronic condition, food or drug allergies, or take medications...
by Lauren Amphlett | Nov 15, 2021 | General interest, Information and Learning, Lifestyle and Coping Skills, Living with Aspergillosis, Patient and Carer Blog
Cecilia Williams suffers from aspergillosis in the form of an aspergilloma and Chronic Pulmonary Aspergillosis (CPA). In this post, Cecilia talks about how a light but regular exercise regime has helped improve her health and wellbeing. I downloaded the...