Sunflowers, self-advocacy and the cancer diagnosis that wasn’t: Marie’s aspergillosis story
By Lauren Amphlett

In this podcast by My Rare Disease, Katy, the series founder, talks to Marie about her aspergillosis journey.

Marie talks openly about dealing with the diagnostic odyssey, the emotional impact, the need for self-advocacy and trusting your gut instinct, and how she believes it all began with a sunflower.
When asked to sum up aspergillosis, Marie uses three powerful words that will strike a chord with so many patients with aspergillosis:
  • Elusive
  • Dramatic
  • Permanent
It is an insight into the uncertain journey many aspergillosis patients have to endure before they reach a diagnosis, and you can listen to the episode below or via the link here.

You can listen to more of Katy’s podcast interviews by visiting
If you want to know more about aspergillosis visit our information page here.