🟣 Aspergillus Bronchitis: A Patient Guide

If you've been diagnosed with bronchiectasis, COPD, or other chronic lung problems, and keep getting infections or mucus that tests positive for Aspergillus, you might be told you have Aspergillus bronchitis. But what does that mean? And how is it different from ABPA (Allergic Bronchopulmonary Aspergillosis)?

This guide explains what Aspergillus bronchitis is, how it’s diagnosed, how common it is, and how it differs from ABPA.

🌬️ What Is Aspergillus Bronchitis?

Aspergillus bronchitis is a chronic fungal infection of the airways caused by Aspergillus fumigatus. It happens in people with damaged or scarred airways, such as:

  • Bronchiectasis

  • COPD

  • Cystic fibrosis

  • Occasionally asthma (if structural damage exists)

It’s a low-grade infection, not an allergy and not an invasive disease. The fungus lives in the mucus lining the airways, causing persistent inflammation, infection, and symptoms.

🔍 What Are the Symptoms?

Common symptoms What to know
Persistent cough Often brings up sticky or brown mucus
Worsening breathlessness Not always explained by asthma or infection alone
Fatigue or low energy Common in chronic fungal infections
Frequent infections May keep returning despite antibiotics
Wheeze Sometimes, especially in asthma or ABPA overlap
Weight loss or low-grade fever Possible in long-standing infection

📊 How Common Is It?

Aspergillus bronchitis is underdiagnosed but increasingly recognised — especially in patients referred to specialist centres.

Estimated frequency in different conditions:

Underlying condition Estimated rate of Aspergillus bronchitis
Bronchiectasis ~5–15%, higher in referral centres
COPD ~1–5%, especially with steroid use
Cystic fibrosis 5–10% (non-allergic cases)
Asthma (alone) Rare unless bronchiectasis is also present

It may be mistaken for a flare-up or chronic bacterial infection. Many people are told it’s “just colonisation” — but if symptoms persist and Aspergillus keeps growing in sputum, Aspergillus bronchitis should be considered.

🧪 How Is It Diagnosed?

There’s no single test. Diagnosis is based on clinical features plus evidence of fungal growth and a non-allergic immune pattern.

Test What it shows
Sputum culture / PCR Repeated detection of Aspergillus
Aspergillus IgG (blood) Often raised, shows chronic exposure
Aspergillus IgE & eosinophils Usually normal — helps exclude ABPA
CT scan Shows bronchiectasis, mucus plugging, but no cavitation
Response to antifungals Clinical improvement supports diagnosis

🔄 How Is It Different from ABPA?

ABPA is an allergic reaction to Aspergillus that mainly affects people with asthma or cystic fibrosis.
Aspergillus bronchitis, on the other hand, is a fungal infection in damaged airways, not an allergy.

Feature Aspergillus Bronchitis ABPA
Type of disease Chronic fungal infection Allergic lung disease
Immune markers High IgG, normal IgE High IgE and eosinophils
Sputum Repeated growth of Aspergillus May or may not grow
CT findings Bronchiectasis, mucus Central bronchiectasis, mucus plugs
Treatment Antifungals only Steroids ± antifungals
Typical patient Bronchiectasis, COPD Asthma (often severe), sometimes CF

Some patients can have both conditions at once, especially those with asthma and bronchiectasis — so testing is important.

💊 Treatment Options

Treatment Purpose
Oral antifungals (itraconazole, voriconazole) Main treatment — often for several months
Inhaled antifungals (e.g. nebulised amphotericin) Alternative if oral drugs not tolerated
Airway clearance physiotherapy Helps remove mucus and fungal load
Regular sputum testing To monitor treatment response
Steroids Not used unless there’s overlapping ABPA or asthma

🧠 Summary

Question Answer
Is it an infection? ✅ Yes — fungal infection in the airways
Is it an allergy? ❌ No — that’s ABPA
Can it coexist with ABPA? ✅ Yes, in some cases
How is it diagnosed? Repeated Aspergillus in sputum + high IgG + symptoms
How is it treated? Antifungal medication (oral or nebulised)
Will it go away? Often improves with treatment, but monitoring is essential

💬 What to Ask Your Doctor

  • Could my symptoms be from Aspergillus bronchitis?

  • Have I had sputum cultures and Aspergillus blood tests (IgG, IgE)?

  • Would antifungal treatment help me?

  • Should I be referred to a specialist centre (e.g. for CPA, ABPA, bronchiectasis)?

  • Am I on the best airway clearance and physiotherapy plan?

by GAtherton

Dad and the Sneaky Spores

A lovely story commissioned by the Aspergillosis Trust to raise awareness of the condition and to help children understand what it means to live with a family member affected by it. The narrative not only educates readers about Aspergillosis but is also thoughtfully crafted by Christina Gabbitas to foster empathy and understanding.

Dad and the Sneaky Spores : Gabbitas, Christina, Thomas, Rebecca, Hurst, Ursula: Amazon.co.uk: Books

by GAtherton

Aspergillosis Awareness: Conversation with Tom Bermingham - European Lung Foundation

Conversation with Tom Bermingham - European Lung Foundation

👨 Meet Tom Bermingham

  • Lives in rural County Wexford, Ireland, with his wife.

  • Works as a Rural Development Manager.

  • Diagnosed with aspergillosis in 2022 after years of lung issues.

🌪️ What Triggered His Aspergillosis

  • He grew sunflowers in a polytunnel; handling decaying heads released dust he inhaled.

  • Later, home renovation stirred up bathroom mould/dust—both likely exposures.

🏥 The Path to Diagnosis

  • 2019: Hospitalised for cavitating pneumonia and diagnosed with bronchiectasis.

  • Later treated for chronic fatigue syndrome, repeated infections, tiring quickly.

  • Feb 2022: Hospitalised again (17 days), diagnosed with severe adult-onset asthma, oxygen-dependent, with mucus positive for Aspergillus fumigatus.

  • Initially labelled with Chronic Pulmonary Aspergillosis (CPA), treated with steroids, antifungals, inhalers, antibiotics, and fatigue medications.

  • 2024: Diagnosis revised to ABPA + Severe Asthma with Fungal Sensitisation (SAFS).

  • October 2024: Hospitalised for COVID-19 and Pseudomonas lung infection treated via PICC line. European Lung Foundation

💔 How It Affects His Daily Life

  • Mornings bring coughing up “dirty mucus” daily—an unsettling reminder.

  • Extreme fatigue, headaches, regular infections dominate his life.

  • Gave up gardening (risk of soil exposure), community work, and physical chores.

  • Lives with constant fear of infection, medication side effects, and hospitalisations.

  • Chronic disease has made long-term planning impossible; relaxation and mental wellbeing are vital.

🧭 How He Manages

  • Supported by his wife and daughters and his flexible employer.

  • Practices listening to his body: rests when needed.

  • Regular check-ups—including CT scans, lung function, sputum and blood tests—keep his care monitored. European Lung Foundation

  • Accepting limitations while focusing on what he can still do helps his mindset.

✅ Key Insights for Aspergillosis Patients

  • Environmental exposures matter: mould, dust, soil may trigger illness—even long after.

  • Diagnosis can be complex and evolve: often overlaps with asthma, bronchiectasis, ABPA, SAFS.

  • Daily life can change significantly, with physical decline and emotional stress.

  • Support network and personalised care are crucial—family, employer flexibility, specialist monitoring.

  • Self-care and mindset: acceptance, rest, and focusing on abilities, not limitations.

by GAtherton

Aspergillosis Awareness: Conversation with Marcela Candeias - European Lung Foundation

Conversation with Marcela Candeias - European Lung Foundation

👩‍⚖️ Meet Marcela Candeias

🩺 Journey to Diagnosis

  • In 2020, Marcela developed a persistent, worsening cough, extreme fatigue, and significant weight loss.

  • She began coughing up thick mucus that turned green and black, culminating in an intense coughing fit lasting several hours.

  • This was the turning point that led her to seek medical help European Lung Foundation.

🩻 What Aspergillosis Felt Like

  • Severe coughing fits and bloody or discoloured phlegm.

  • Physical exhaustion and weight loss.

  • A clear sign that something serious was happening internally, not just a flare-up of old asthma European Lung Foundation.

⏭️ Why It Matters for Patients

  • Aspergillosis can emerge suddenly—even in people with previous mild asthma.

  • Early recognition of changes (e.g. mucus discoloration, fatigue, cough intensity) is crucial.

  • Once symptoms escalate, urgent medical evaluation is essential.

✅ Key Takeaways for Aspergillosis Patients

What to Watch For Why It Matters
🚨 Persistent cough with coloured or black mucus Red flag—seek medical review
Increasing fatigue and weight loss Indicates disease progression
Severe coughing fits or coughing up blood Requires immediate attention

"One of these fits lasted several hours—that was when I knew something was seriously wrong. European Lung Foundation

📌 Patient Action Guide

  1. If you have asthma or COPD and notice new symptoms—especially dark mucus, weight loss, or fatigue—don’t wait.

  2. Tell your GP or lung specialist that you’re concerned about aspergillosis.

  3. Ask about appropriate testing (e.g. imaging, sputum culture, blood markers).

  4. Early diagnosis can lead to timely treatment and better outcomes.

by GAtherton

🫁 Airway Clearance in Aspergillosis: A Patient Guide

Managing mucus to breathe easier, stay healthier, and feel more in control

💡 Why Is Mucus Clearance Important?

If you’re living with a condition like chronic pulmonary aspergillosis (CPA), allergic bronchopulmonary aspergillosis (ABPA), or aspergillus bronchitis, you may experience ongoing mucus build-up in your lungs. This can:

  • Make breathing harder

  • Trap infection

  • Cause inflammation and damage

  • Trigger coughing, wheeze or breathlessness

Airway clearance techniques (ACTs) help loosen and remove this mucus, reduce chest infections, and improve daily comfort.

🗣️ “Before I started clearing mucus properly, I thought breathlessness was just something I had to live with. But it’s made a big difference.”

🔧 What Techniques Are Available?

Type Examples Purpose Needs Guidance?
Breathing exercises ACBT (Active Cycle of Breathing), huffing Loosens mucus, clears airways ✅ Yes – to be effective
Postural drainage Lying in specific positions Uses gravity to drain mucus ✅ Yes – to avoid reflux or fatigue
Devices Flutter, Acapella, Aerobika (OPEP devices) Vibrate airways + create back pressure to shift mucus ✅ Yes – to use correctly
Manual techniques Chest percussion, assisted cough Help loosen stubborn mucus ✅ Often needs a helper
Mechanical devices HFCWO (“The Vest”), IPV Used in severe or complex cases ✅ Prescribed in specialist settings

🗣️ “I use the Acapella in the mornings while the kettle boils. It’s part of my routine now – and it really helps.”

🗣️ What Do Other Patients Say?

People with aspergillosis often try more than one method before finding what works best. Here are some common reflections:

On devices:
“The flutter helped a lot once I got the angle and rhythm right – but I needed someone to show me how.”

On ACBT:
“Breathing control and huffing helped me get more up with less effort than coughing all day.”

On adapting to daily life:
“It’s about what fits into your day. If something’s too awkward or tiring, you won’t keep doing it – and that’s okay.”

On trial and error:
“It took me months to find the right technique – but now I can manage my mucus better and avoid antibiotics.”

⚠️ Should I Use a Flutter or Acapella Without Help?

Not at first. These devices are effective only if used correctly. Risks of incorrect use include:

  • Not moving mucus effectively

  • Fatigue or breathlessness

  • Worsening reflux or chest tightness

  • In rare cases, worsening of lung symptoms (e.g., if air trapping occurs)

🗣️ “I bought a device online and started using it myself – but it made me dizzy. A physio later explained I was blowing too hard.”

Always ask your respiratory team or GP for referral to a respiratory physiotherapist before starting.

📝 Patient Decision Guide: Should You Use ACTs?

✅ You may benefit if:

  • You cough up mucus daily or feel it’s “stuck”

  • You’ve had repeated chest infections

  • You live with CPA, ABPA, bronchiectasis, or aspergillus bronchitis

❌ Don’t start without guidance if:

  • You have COPD, asthma, or lung scarring

  • You’ve had haemoptysis (coughing up blood)

  • You experience dizziness, nausea, or chest pain during breathing exercises

  • You have gastric reflux or recent chest surgery

🧑‍⚕️ What Can I Start Safely at Home?

Without needing equipment, you can begin with:

  • 💧 Drink plenty of fluids – thin mucus is easier to clear

  • 🪑 Sit upright – especially when coughing or during infections

  • 🌬️ Use breathing control – calm, gentle breaths can reduce breathlessness

  • 🗣️ Try huffing – like breathing out a mirror; easier than deep coughing

🗣️ “Even on days when I’m tired, I try to stay upright and do a few rounds of breathing exercises. It’s become a habit that helps.”

🧭 Next Steps: What to Ask Your Doctor or Nurse

  • Could I see a respiratory physiotherapist to help with mucus clearance?

  • What technique is best for my condition (e.g., ABPA vs. CPA)?

  • Can I be shown how to use a flutter device or Acapella safely?

  • What should I do if I feel worse after using a technique?

🗣️ “The physio made all the difference – she explained what my lungs were doing and helped me pick something that actually worked.”

💬 Final Word

🗣️ “It’s not just about technique – it’s about what fits your life. Small steps like staying hydrated, using huffing, and getting guidance made a big difference for me.”

There’s no one-size-fits-all approach – but with the right support, airway clearance can help you take control of your lungs, reduce flare-ups, and breathe easier.

by GAtherton

😷 Coping With Masks: Advice for People With Aspergillosis Who Struggle to Wear One

For people living with aspergillosis, asthma, or other lung conditions, wearing a facemask can sometimes feel uncomfortable — even frightening. You may feel like you can’t breathe properly, become hot or anxious, or feel claustrophobic. Some patients avoid masks altogether, even when they want to wear one to protect themselves from spores, pollution, or infection.

This guide is here to reassure you: you are not alone, and there are ways to make mask-wearing safer and more comfortable.

🫁 "I Can’t Breathe in a Mask" – Is This Normal?

Yes — many people with respiratory conditions feel this way. But here’s what the science tells us:

✅ For most people, even those with chronic lung disease, oxygen levels are not reduced by wearing a mask
❌ The feeling of not getting enough air is often caused by:

  • Anxiety or shallow breathing

  • The heat and humidity under the mask

  • The sensation of restricted airflow, not actual oxygen deprivation

💡 Helpful Tips If You Find Masks Difficult to Wear

1. Practise in a calm setting

Start wearing your mask for short periods at home, where you feel safe. Use calming breathing (slow in through the nose, out through the mouth). This helps your brain and lungs get used to the sensation.

2. Choose a mask that suits your needs

Different types of masks feel very different to wear.

Problem Suggested Mask
Feels suffocating or hot Structured FFP2 or duckbill-style masks (keep shape off your face)
Claustrophobic Surgical masks (lighter and looser fitting)
Strong reactions to smells or pollution FFP2/FFP3 masks or Vogmask with carbon filter
Sweat or overheating Lightweight cotton or disposable masks with cooling fabric or filter inserts

3. Use your inhaler beforehand (if prescribed)

Some people with asthma or ABPA find wearing a mask easier after using their reliever inhaler (blue) 10–15 minutes beforehand.

4. Take breaks when needed

If you’re in a safe place (like outdoors, away from people), it’s okay to briefly lift your mask and take a few calm breaths — especially if you're struggling. You don't need to wear it all the time to benefit.

5. Try alternatives in low-risk settings

If you genuinely can’t tolerate a mask:

  • Wear one only in crowded indoor areas (shops, clinics, transport)

  • Consider using a face shield over a mask or in short exposures (note: shields protect others less)

  • Maintain distance and ventilation in mask-free spaces

🔁 Don’t Let One Bad Experience Stop You

Struggling to wear a mask doesn’t mean you’ve failed — it just means you need to try something different. Many patients find that with the right mask and some breathing strategies, they can use one when it matters most.

Remember, even wearing a mask for short periods (e.g. clinic waiting room, pharmacy queue) offers valuable protection.

🧠 Why It Matters for Aspergillosis

People with aspergillosis often need to avoid airborne risks like:

  • Fungal spores (especially Aspergillus fumigatus)

  • Pollution and chemicals

  • Viral infections that could worsen lung damage

Wearing a well-fitting FFP2 or FFP3 mask, especially in higher-risk situations, is one of the best ways to reduce exposure.

🤝 You're Not Alone

If you feel overwhelmed, isolated, or panicked when wearing a mask — you are not alone. Many others in the aspergillosis community feel the same way. With time, support, and the right mask, it often gets easier.

📝 Summary: What You Can Try

  • ✅ Practise wearing a mask at home for short periods

  • ✅ Try structured masks (like FFP2 duckbill) for better airflow

  • ✅ Use a reliever inhaler beforehand if needed

  • ✅ Take short breaks if it becomes too uncomfortable

  • ✅ Don’t wear a mask all the time — just when it matters most

by GAtherton

💊 General Strategies to Reduce Antimicrobial Resistance in Clinical Practice

1. IV to Oral Switch (IVOS)

One of the most effective and safe interventions in antimicrobial stewardship.

🔁 Why switch from IV to oral early?

  • Reduces complications (e.g. line infections, thrombosis)

  • Lowers costs and bed-days

  • Improves patient comfort and mobility

  • Oral options (e.g. ciprofloxacin, fluconazole, linezolid) are highly bioavailable, often matching IV efficacy

✅ When is IVOS appropriate?

  • Clinical improvement seen

  • Source controlled

  • Oral route available and tolerated

  • Suitable oral alternative exists

NHS guidance: "Start smart – then focus" encourages early IVOS reviews within 48–72 hours of antibiotic initiation.

2. "Start Smart – Then Focus" (UK NHS Framework)

This key NHS antimicrobial policy includes:

  • Start Smart: Prescribe antibiotics appropriately from the beginning

  • Then Focus:

    • Review at 48–72 hours

    • Consider stop, switch, change, or continue

    • Document clearly in records

Supported by NICE guidelines and UKHSA audits

3. Shorter Duration of Therapy

For many infections, shorter courses (e.g. 5–7 days instead of 10–14) are now preferred.

Examples:

  • Community-acquired pneumonia: 5 days

  • Pyelonephritis: 7 days

  • Cellulitis: 5–7 days

This reduces resistance pressure and side effects.

4. Diagnostics-Guided Prescribing

  • Procalcitonin and CRP tests can help distinguish bacterial from viral infections

  • Rapid PCR, MRSA, or blood culture diagnostics guide targeted therapy

The aim is avoid empirical broad-spectrum antibiotics where possible.

5. Restricted Prescribing Policies

  • Certain high-risk drugs (e.g. carbapenems, vancomycin, antifungals) are restricted to ID approval

  • Antimicrobials are tiered by risk (e.g. traffic light systems) to encourage narrow-spectrum use

6. Antimicrobial Stewardship Teams (ASTs)

Multidisciplinary teams:

  • Lead on stewardship strategy

  • Audit antimicrobial use

  • Provide decision support for complex cases

  • Educate staff and update local formularies

In the NHS, stewardship is a CQUIN target (incentivised performance indicator).

7. Education and Behaviour Change

  • Mandatory AMS training for junior doctors and prescribers

  • Behavioural nudges in electronic prescribing systems (e.g. default shorter durations, alert for IVOS)

8. Surveillance and Reporting

  • ePAMS+, ESPAUR, and PHE Fingertips dashboards track:

    • Prescribing by hospital/unit

    • Resistance trends

    • Audit compliance with IVOS, duration, and documentation

9. Patient-Facing Initiatives

  • "Antibiotic Guardian" and leaflets explaining viral vs bacterial infections

  • Empowering patients to ask:

    "Do I really need antibiotics? When can I switch to tablets?"

📦 Summary Table: Key Interventions

Strategy Purpose
IV to Oral Switch Reduce IV duration, speed discharge
Review at 48–72 hrs Reassess need, de-escalate if possible
Shorter therapy courses Lower resistance pressure
Targeted diagnostics Support narrow-spectrum prescribing
Prescribing restrictions Protect last-resort antimicrobials
Stewardship teams Oversee, audit, educate
Surveillance & feedback Monitor trends, guide policy

by GAtherton

🛡️ FFP2/FFP3 Mask Use in Aspergillosis: Summary

Mask Type Who Might Use It When It's Used
FFP2 (95% filtration) Some patients with CPA, ABPA, or SAFS, especially during flares or hospital visits During travel on public transport, clinic waiting rooms, visiting building sites, or dust exposure
FFP3 (99% filtration) Patients who are severely immunocompromised (e.g. post-transplant, on chemotherapy, or high-dose steroids) In high-risk environments: hospital construction, building work nearby, or heavy dust/mould exposure

✅ When Masks Might Be Advisable

  • During hospital visits, particularly in winter or during flu/COVID waves

  • If you're immunosuppressed, e.g. taking long-term steroids or biologics

  • When exposed to mouldy buildings, compost, building work, or flood damage

  • In crowded indoor environments where infection risk is high

❌ When They’re Usually Not Needed

  • Day-to-day life in a clean, dry home environment

  • Low-risk outdoor activity (e.g. walking in the park)

  • If your asthma/ABPA/CPA is stable and you're not immunocompromised

🗣️ What the National Aspergillosis Centre Recommends

  • Use FFP2 masks when entering environments likely to have airborne fungal spores

  • FFP3 masks may be offered for high-risk medical procedures or when severely immunocompromised

  • Masks are one part of a broader protection strategy, which includes:

    • Good indoor air quality (HEPA filters, ventilation)

    • Avoidance of dusty environments

    • Prompt treatment of fungal infections

by GAtherton

🌬️ Living with Asthma and Aspergillosis: Understanding the Overlap, the Immune System, and the Right Treatment

If you live with asthma and have been told you also have aspergillosis, such as ABPA (Allergic Bronchopulmonary Aspergillosis) or SAFS (Severe Asthma with Fungal Sensitisation), your situation is more complex than most people realise.

This guide explains:

  • The different types of asthma

  • How aspergillosis complicates asthma

  • The role of eosinophils, IgE, and the immune system

  • Why some people don’t have “typical” symptoms (like wheeze)

  • What treatments are available — and how to personalise your care

🧠 Asthma Isn’t One Disease

Asthma is a condition where the airways (breathing tubes) become:

  • Inflamed (swollen and irritated)

  • Overreactive to certain triggers (allergens, cold air, infection, etc.)

  • Narrowed and often filled with mucus, making breathing difficult

But not everyone with asthma has the same cause, symptoms, or treatment response. Asthma actually includes many subtypes — and understanding your type is key to getting the right care.

🧬 Common Asthma Types in Aspergillosis

Asthma Type Cause / Trigger Key Features
Allergic asthma IgE-driven allergy to pollen, dust, pets, fungi Common in early-life asthma
Eosinophilic asthma High levels of eosinophils (a white blood cell) Often adult-onset and hard to control
SAFS Allergy to fungi (especially Aspergillus) Severe, steroid-resistant asthma
ABPA Allergic reaction to Aspergillus growing in lungs Very high IgE, eosinophils, mucus, lung damage
Cough-variant asthma Inflammation without wheeze Dry cough as the only symptom
“Silent” asthma Reduced or absent warning signs No wheeze, may present with fatigue, cough or breathlessness only

🫢 New Section: What Is “Silent Asthma”?

“Silent asthma” is not an official medical term, but it’s used to describe:

  • Asthma without the classic wheeze (often just cough or tightness)

  • Or where asthma attacks happen suddenly, without clear warning

This is important because:

  • People may not realise they have asthma

  • Diagnosis may be delayed or missed

  • Flare-ups can be severe or even life-threatening

  • It may occur in people with fungal asthma, ABPA, or airway damage

Silent asthma is especially relevant in:

  • Older adults

  • People with ABPA or SAFS

  • People with cough-variant asthma

  • Anyone whose asthma doesn’t “sound” typical

🧪 Tests like FeNO, spirometry, and blood eosinophil counts are vital for confirming what’s really happening inside the lungs — even if symptoms are subtle.

🔬 Why ABPA Adds Complexity

If you have ABPA, the asthma symptoms are made worse by:

  • A hypersensitive immune reaction to Aspergillus fumigatus

  • Mucus plugging and blocked airways

  • Lung damage (bronchiectasis) that doesn’t improve with inhalers alone

  • A mix of allergic and eosinophilic inflammation

Key signs include:

  • Extremely high IgE levels

  • Raised eosinophils

  • Positive blood tests for Aspergillus

  • Lung CT scan changes

💊 Treatment Options Based on Asthma Type

Treatment Used For
Inhaled corticosteroids (ICS) All types, first-line
Antifungal medications ABPA, SAFS
Oral steroids (e.g. prednisolone) ABPA flares, severe asthma
Biologics (e.g. mepolizumab, omalizumab) Severe allergic or eosinophilic asthma
Chest physiotherapy Mucus clearance in ABPA or bronchiectasis

Each treatment is tailored based on whether your asthma is driven by:

  • IgE (allergy)

  • Eosinophils (inflammation)

  • Fungal exposure or colonisation

📍 What to Discuss with Your Healthcare Team

If you:

  • Have asthma that isn’t well controlled

  • Need frequent steroids

  • Have a chronic cough, thick mucus, or lung damage

  • Have high IgE or eosinophils

  • Or don’t wheeze, but still get breathless or fatigued…

… it’s important to ask your doctor:

  • Could I have ABPA or SAFS?

  • Is there a fungal or eosinophilic component to my asthma?

  • Should I be tested for Aspergillus allergy or IgE?

  • Am I a candidate for biologics or antifungals?

✅ Final Takeaway

Asthma with aspergillosis is more than just “bad asthma” — it’s a complex condition involving allergy, inflammation, fungal exposure, and in some cases, permanent airway changes. Some patients don’t experience wheeze — this is called “silent asthma,” and it deserves just as much attention.

You don’t have to manage this alone — and there are now targeted treatments that can help reduce symptoms, prevent damage, and improve quality of life.

by GAtherton

Telecare Devices and the UK Digital Switchover: What Aspergillosis Patients and Carers Need to Know

Background By the end of 2025, traditional landline telephone networks in the UK will be phased out and replaced by digital (VoIP) systems delivered via broadband. This national "Digital Switchover" affects anyone using landline-based devices, including many telecare systems vital to people with chronic illnesses like chronic pulmonary aspergillosis (CPA), ABPA, and SAFS.

This document provides clear guidance for aspergillosis patients and carers concerned about how this change affects telecare equipment such as fall alarms, pendant buttons, and GPS trackers.

Why This Matters for Aspergillosis Patients Many people with aspergillosis rely on telecare to remain safe at home. These may include:

  • Fall detectors
  • Emergency pendant alarms
  • Door sensors
  • GPS trackers
  • Daily wellbeing check-in devices

These systems were typically connected to analogue landlines. Once the switch to digital phone lines is made, some older devices may stop working correctly unless they are upgraded or adapted.

What Changes with the Digital Switchover?

Feature Current (Analogue Landline) Future (Digital via Broadband)
Phone line works during power cuts Yes No (unless battery backup is added)
Telecare devices plug into phone socket Yes Only with compatible router or adapter
Works independently of broadband Yes No, relies on internet connection

Common Concerns and Solutions

  1. "Will my current telecare alarm still work?"
    • Possibly not. Many older alarms won't function over digital broadband lines.
    • Solution: Ask your alarm provider if your device is VoIP compatible or if they can supply a digital-ready or cellular version.
  2. "Will full fibre broadband stop my telecare from working?"
    • Not automatically, but older devices may be incompatible.
    • Solution: If switching to full fibre, ensure your telecare system can plug into the new router or ask about an analogue telephone adapter (ATA) with battery backup.
  3. "What happens during a power cut?"
    • Digital lines go down unless you have a UPS (Uninterruptible Power Supply) or the telecare device is cellular-based.
  4. "Can I upgrade to something more future-proof?"
    • Yes. Many councils and private providers now offer mobile-enabled alarms with built-in SIM cards and GPS.
    • These do not rely on landlines or home Wi-Fi.

What You Should Do Now

  1. Contact your telecare provider
    • Ask if your current device is digital-compatible.
    • Request upgrade options if needed.
  2. Speak to your broadband provider
    • Let them know you use telecare. Ask about battery backup or compatibility.
  3. Contact your local Adult Social Care team
    • Many councils are offering free or subsidised upgrades to digital or mobile telecare.
  4. Test your system
    • Before and after switching broadband providers, run a test call with your alarm provider.

Summary As the UK phases out analogue landlines, it's essential for patients and carers to act early. Ensuring your telecare system is compatible with digital broadband will help maintain your independence and safety. Monitoring your oxygen saturation may also support early detection of lung health changes.

Resources for Further Help

If you have questions or need help contacting the right services, the National Aspergillosis Centre support team can guide you.

by GAtherton