Living with Aspergillosis

People taking part in a friendly online peer-support session for aspergillosis

Thursday Sessions: Support beyond clinic—finding information and connection that feels right for you

Patient and family member discussing aspergillosis with a specialist healthcare professional.

Getting a Second Opinion or Specialist Advice for Aspergillosis

Carer supporting a loved one with aspergillosis at home, with information about practical help and looking after yourself.

Practical Support for Carers of Someone with Aspergillosis

Older couple sitting together at home, representing support for a loved one with aspergillosis.

When Caring Becomes Overwhelming: Support for Family Carers

Family and friends talking together at home about living with aspergillosis.

Talking to Friends and Family about Aspergillosis

Older couple relaxing together at home, representing living well with aspergillosis and supportive care.

Living Well with Aspergillosis: Understanding Palliative and Supportive Care

Laptop displaying trusted palliative and supportive care resources, including practical support, planning ahead and help for families and carers.

🌐 Trusted Online Resources for Palliative and Supportive Care

Marcela and Tom from the European Aspergillosis Patient Advisory Group at the ERS Congress 2026

European Aspergillosis PAG at ERS 2026: from patient to partner

People living with…

Woman checking a steroid emergency card and medical summary while tapering prednisolone

Prednisolone tapering: mood changes, low cortisol and staying safe

Infographic explaining the benefits of keeping a health diary for people with aspergillosis, including symptom tracking, identifying triggers, managing brain fog, preparing for medical appointments, monitoring progress and improving self-management.

The Power of Keeping a Health Diary When You Have Aspergillosis