Carers & Family

Older woman using oxygen watches a bird in her garden while holding a cup at home.

When chronic illness changes your life: loss, acceptance and finding what still matters

A man and woman sitting together at home in a quiet, supportive conversation.

Adjusting to a lifelong diagnosis: emotional support for people with aspergillosis and those close to them

People listening supportively in an aspergillosis peer-support group, with different paths representing individual patient journeys.

Your Story Matters—but It Is Not Someone Else’s Future

Couple walking together along a winding coastal path symbolising the emotional journey of living with chronic illness, including hope, setbacks, recovery and ongoing adaptation.

Learning to Live with Chronic Illness: Is It Really Like Grieving?

Preparing for a Disability Assessment: A Practical Guide for People Living with Aspergillosis in UK

Originally published: August…

Person wearing a well-fitted FFP3 respirator in a mould-affected environment, illustrating how face masks can help reduce exposure to airborne mould spores for people with aspergillosis and bronchiectasis.

Choosing the Right Face Mask for Aspergillosis | FFP2, FFP3 & Mould Protection

Illustration showing the close communication between the brain, lungs and nervous system, explaining how breathing is influenced by physical, neurological and emotional factors in people living with aspergillosis.

Living with Aspergillosis: Understanding the Brain–Lung Connection

Whiteboard, medication organiser, diary and reminders illustrating the hidden workload of managing chronic illness, medications and healthcare appointments.

The Hidden Job Nobody Talks About: Living with Chronic Illness

Infographic explaining the benefits of keeping a health diary for people with aspergillosis, including symptom tracking, identifying triggers, managing brain fog, preparing for medical appointments, monitoring progress and improving self-management.

The Power of Keeping a Health Diary When You Have Aspergillosis

Illustration showing an aspergillosis patient health summary, myMFT patient portal, steroid emergency card, NHS number card and inhaler, highlighting the key medical information patients should carry for emergency and routine healthcare.

Do You Carry Your Aspergillosis Information With You?