Peran Terapi Biantara & Basa (SALT)
Naha anjeun terang Speech and language therapists (SLTs) maénkeun peran anu penting dina ngokolakeun pasien anu ngagaduhan kaayaan pernapasan?
nu Royal College of Speech and Language Therapists (RCSLT) lembar fakta komprehensif ngeunaan Upper Airway Disorders (UADs), mangrupikeun pituduh penting anu dirancang pikeun pasien anu ngatur kaayaan pernapasan kronis sapertos CPA, ABPA, COPD, asma, sareng bronchiectasis. Sumberdaya ieu boga tujuan pikeun nyorot kamungkinan anu sering diabaikan tina gangguan saluran pernapasan luhur anu aya, anu sacara signifikan tiasa ngahesekeun hasil manajemén sareng pengobatan panyakit pernapasan kronis ieu.
Dina halaman ieu, anjeun bakal mendakan wawasan anu lengkep ngeunaan gejala, tantangan diagnostik, sareng strategi manajemén anu efektif pikeun UAD. Leaflet nekenkeun peran kritis Speech and Language Therapists (SLTs) dina meunteun sareng ngubaran gangguan ieu. SLTs mangrupakeun konci pikeun nyadiakeun interventions sasaran nu bisa alleviate gejala jeung ngaronjatkeun kahirupan sapopoé.
Leaflet ieu ogé boga tujuan pikeun ningkatkeun kasadaran di kalangan dokter ngeunaan pentingna mertimbangkeun UADs dina diagnosis diferensial kaayaan engapan. Pamahaman anu ditingkatkeun ngeunaan gangguan ieu tiasa nyababkeun hasil pasien anu langkung saé sareng ningkatkeun kualitas kahirupan.
Pikeun ngakses leaflet, klik di dieu.
Ngartos Kumaha Paru-paru Urang Ngalawan Jamur
Sél épitél saluran napas (AECs) mangrupakeun komponén konci tina sistem pernapasan manusa: Garis pertahanan kahiji ngalawan patogén hawa sapertos Aspergillus fumigatus (Af), AEC maénkeun peran anu penting dina ngamimitian pertahanan host sareng ngadalikeun réspon imun sareng penting dina ngajaga. kaséhatan engapan sarta nyegah inféksi nu bisa ngakibatkeun kaayaan kayaning aspergillosis. Panaliti ku Dr Margherita Bertuzzi Universitas Manchester sareng timnya narékahan ngartos kumaha AEC merangan Af sareng naon anu nyababkeun kerentanan dina pertahanan ieu, khususna pikeun jalma anu ngagaduhan kaayaan kaséhatan.
Karya saméméhna ku Dr Bertuzzi jeung tim nya nunjukkeun yén AECs éféktif dina stopping jamur ti ngabalukarkeun ngarugikeun nalika aranjeunna fungsina ogé. Nanging, dina jalma anu résiko langkung luhur, sapertos anu ngagaduhan sistem imun anu lemah atanapi kaayaan paru-paru anu tos aya, upami sél ieu henteu jalan leres, jamur tiasa ngamangpaatkeun kaayaan ieu.
Panaliti anyar ieu ku Dr Bertuzzi sareng timnya ditujukeun pikeun ngajalajah kumaha AEC ngeureunkeun jamur dina jalma séhat sareng naon anu salah dina jalma anu gering. Tim éta ningali sacara saksama interaksi antara jamur sareng sél paru-paru ti jalma anu séhat sareng anu ngagaduhan panyakit anu tangtu. Ngagunakeun métode ilmiah canggih, tim éta bisa niténan interaksi antara sél paru jeung jamur dina tingkat pisan lengkep.
Naon Aranjeunna Kapanggih
Ékspérimén nunjukkeun yén tahap kamekaran jamur penting sareng karbohidrat permukaan - mannose (gula) ogé ngagaduhan peran dina prosés éta.
Sacara husus, aranjeunna manggihan yén jamur téh leuwih gampang dicokot nepi ku sél paru nalika geus tumuwuh sababaraha jam dibandingkeun nalika éta ngan spora seger. Spora jamur anu ngabareuhan anu dikonci dina 3 sareng 6 jam pengecambahan 2 kali langkung gampang diinternalisasi tibatan anu dikonci dina 0 jam. Éta ogé ngaidentipikasi yén molekul gula anu disebut mannose dina beungeut jamur maénkeun peran anu ageung dina prosés ieu.
Mannose mangrupikeun jinis molekul gula anu tiasa dipendakan dina permukaan rupa-rupa sél, kalebet patogén sapertos Aspergillus fumigatus. Gula ieu maénkeun peran anu penting dina interaksi antara jamur sareng sél host, khususna AEC anu ngalapis bayah. Dina réspon imun anu séhat, mannose dina permukaan patogén tiasa dikenal ku reséptor mannose dina sél imun, nyababkeun sababaraha réspon imun anu ditujukeun pikeun ngaleungitkeun patogén. Sanajan kitu, Aspergillus fumigatus geus mekar pikeun ngamangpaatkeun interaksi ieu, sahingga eta pikeun taat jeung narajang sél paru leuwih éféktif. Ayana mannose dina beungeut jamur ngagampangkeun ngabeungkeut mannose-binding lectins (MBLs) (protéin nu ngabeungkeut husus ka mannose) dina beungeut sél paru-paru. Beungkeutan ieu tiasa ngamajukeun internalisasi jamur kana sél paru-paru, dimana éta tiasa cicing sareng berpotensi nyababkeun inféksi.
Panalitian nyorot kamungkinan ngamanipulasi interaksi ieu salaku cara pikeun merangan inféksi jamur. Ku nambahkeun mannose atawa mannose-ngariung lektin kawas Concanavalin A, peneliti bisa nyata ngurangan kamampuh jamur pikeun narajang sél paru. Pangurangan ieu dilaksanakeun ku dasarna "bersaing" sareng jamur pikeun situs ngariung dina sél paru-paru atanapi ku cara langsung ngahalangan mannose jamur, ku kituna ngahambat interaksi anu ngagampangkeun inféksi jamur.
Naha éta masalah?
Ngartos interaksi ieu masihan urang wawasan penting ngeunaan kumaha paru-paru urang ngajagaan urang tina inféksi jamur sareng naon anu salah dina jalma anu rentan ka inféksi sapertos kitu. Pangaweruh ieu tiasa ngabantosan dina nyiptakeun pangobatan anyar ngalawan patogén sapertos Aspergillus fumigatus.
Anjeun tiasa maca abstrak lengkep Ieuh.
Ngagungkeun Minggu Élmu Inggris: Peran Vital tina Pusat Rujukan Mycology Manchester
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British Science Week presents the ideal opportunity to highlight the exceptional work of our colleagues at the Mycology Reference Centre Manchester (MRCM). Renowned for its expertise in diagnosing, treating, and researching fungal infections, the MRCM has made vital contributions to fungal diagnostics and patient care. In 2017 the centre was designated a European Confederation of Medical Mycology (ECMM) Centre of Excellence in Clinical and Laboratory Mycology and Clinical Studies. This designation was further extended in 2021, highlighting the MRCM's dedication to advancing research capabilities, enhancing resources, and fostering international collaboration. Such efforts contribute to the development of services and ensure that the MRCM remains at the forefront of medical mycology, setting standards for diagnostic excellence and patient care.
Tempatna di Rumah Sakit Wythenshawe sareng beroperasi dina Manchester University NHS Foundation Trust (MFT), Pusat Rujukan Mycology Manchester (MRCM) nyayogikeun jasa diagnostik mikologi spesialis di Greater Manchester sareng di sapanjang Inggris. Puseur nawiskeun rupa-rupa jasa, kalebet manajemén antifungal sareng petunjuk mikologis pikeun ngadiagnosa panyakit sareng manajemén klinis sareng perawatan pasien. Kaahlian aranjeunna nyertakeun spéktrum kaayaan anu lega, kalebet Candida inféksi jeung kronis sarta invasif Aspergillus inféksi, salian ti alamat isu nu patali jeung kapang di imah jeung dampak maranéhanana dina kaséhatan manusa.
The importance of the MRCM's work extends beyond diagnosis. Fungal infections, with their ambiguous symptoms, require a combination of clinical observation and laboratory investigation for accurate identification and treatment. The MRCM's accredited diagnostic work provides clarity and direction for effective patient management.
Moreover, the MRCM, in collaboration with the National Aspergillosis Centre, contributes significantly to the academic sphere. Both centres work with the University of Manchester Fungal Infection Group (MFIG) and play a vital role in the education and training of future medical professionals through undergraduate and post-graduate programmes in Medical Mycology and Infectious Diseases. This educational role ensures high-quality training for professionals entering the field, further strengthening the UK's capacity to combat the growing problem of fungal diseases and antimicrobial resistance.
Pusat Rujukan Mycology Manchester mangrupikeun landasan pikeun diagnostik jamur, hub pikeun pelatihan sareng panalungtikan internasional, sareng mitra kritis dina perang global ngalawan inféksi jamur. Nalika urang ngagungkeun Minggu Élmu Inggris, urang hoyong nyandak kasempetan pikeun ngaku sareng muji karya kolega urang di MRCM sareng kontribusi anu teu ternilai pikeun élmu, ubar, sareng perawatan pasien sacara nasional sareng internasional.
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Ngamangpaatkeun Kakuatan Diary Gejala: Pitunjuk pikeun Manajemén Kaséhatan Langkung Saé.
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Ngatur kaayaan kronis tiasa janten perjalanan anu nangtang anu pinuh ku kateupastian. Nanging, aya alat anu tiasa ngabantosan pasien ngontrol kaayaanana sareng ngabantosan aranjeunna ngartos poténsi pemicu sareng kumaha faktor gaya hirup tiasa mangaruhan kaayaanana. Alat ieu asalna dina bentuk diary gejala, catetan pribadi anu ngalacak inpormasi anu relevan pikeun pasien, sapertos gejala, pamakean pangobatan ad hoc, exacerbations, asupan dahareun sareng kagiatan.
Kauntungan utama nyaéta:
- Pemberdayaan sareng kontrol mangrupikeun inti naha ngajaga diary gejala mangpaat. Ieu nawarkeun individu rasa kapamilikan over their health, allowing them to monitor and manage their condition, rather than feeling overwhelmed by it. This proactive approach is not only beneficial for the patient's sense of well-being but also contributes to research and future planning. Documenting symptoms can help better understand the condition, aiding not just the individual but also the broader community by contributing valuable insights into chronic illness management.
- Kauntungan sejen tina ngajaga diary gejala nyaéta kamampuhna pikeun piara komunikasi ningkat between patients and their medical teams. By providing a detailed account of symptoms and their impacts, a diary ensures that important information is communicated effectively, allowing for a focused discussion during appointments. This enhanced communication can lead to more informed and focused care, concentrating on what truly matters to the patient's health and well-being.
- Saluareun facilitating dialog hadé, a diary gejala promotes kasadaran diri ngaliwatan monitoring sarta refleksi, penderita bisa perhatikeun pola dina gejala maranéhanana, identifying naon exacerbates atanapi alleviates kaayaan maranéhanana. Kasadaran ieu penting pisan dina ngokolakeun panyawat kronis sapertos aspergillosis, sabab éta nguatkeun pasien pikeun nyandak kaputusan anu terang ngeunaan kaséhatanna.
- Diary gejala ogé tiasa maénkeun peran dina ngembangkeun rencana perlakuan pribadi. Each entry can help the clinical team better understand the patient's condition, enabling in some circumstances the creation of a treatment strategy that is as unique as the individual. This tailored approach can improve health outcomes, making a difference in the patient's quality of life.
Ngamimitian diary gejala ngalibatkeun sababaraha prakték konci: ngajaga konsistensi dina entri, perhatian kana detil, sarta rutin reviewing diary pikeun ngaidentipikasi tren atawa parobahan. Naon anu kudu dirékam dina buku harian kalebet tanggal sareng waktos unggal éntri, gejala lengkep, pamakean pangobatan ad hoc, paparan lingkungan, asupan diet, kagiatan fisik, kaséhatan méntal, sareng kualitas bobo.
Kasimpulanana, diary gejala mangrupikeun alat anu kuat dina ngatur kaayaan kronis, nawiskeun kauntungan sapertos komunikasi anu ningkat sareng panyadia kasehatan, kasadaran diri, pemberdayaan, sareng fasilitasi rencana perawatan pribadi. Ku cara ngadalikeun inpormasi kaséhatanna, jalma-jalma tiasa nganapigasi perjalananna kalayan percaya diri sareng kajelasan, nyayogikeun jalan pikeun kualitas kahirupan anu langkung saé.
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Refleksi Pasén dina Panalungtikan: The Bronchiectasis Exacerbation Diary
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Napigasi rollercoaster panyakit kronis mangrupikeun pangalaman anu unik sareng sering ngasingkeun. Éta mangrupikeun perjalanan anu tiasa dieusi ku kateupastian, janjian rumah sakit biasa, sareng usaha anu teu aya tungtungna pikeun normal deui. Ieu sering kanyataan pikeun jalma anu ngagaduhan panyakit pernapasan kronis, sapertos aspergillosis.
Dina pos ieu, Evelyn embarks on lalampahan reflective, chronicling évolusi gering nya ti diagnosis budak leutik nepi ka kiwari, a timeline dicirikeun ku bronchiectasis hampru parna bilateral nyusahkeun ku kolonisasi aspergillus jeung scedosporium kirang umum. Pikeun Evelyn, ngajaga buku harian, nyatet gejala, inféksi, sareng strategi pengobatan mangrupikeun cara pikeun ngaraos teu kaduga kaséhatanna. Kabiasaan ieu, instilled sababaraha taun ka pengker ku konsultan-pamikiran maju, transcends utilitas praktis na, ngembang jadi alat kritis pikeun pemberdayaan sabar jeung timer advokasi.
Nalika milarian wéb pikeun pitulung pikeun nyaring diary gejalana, Evelyn mendakan makalah anu judulna: The Bronchiectasis Exacerbation Diary. Makalah ieu mangrupikeun wahyu tina rupa-rupa. Éta masihan terang kana aspék anu sering ditingali tina pangalaman pasien sareng disahkeun gejala anu sering teu tiasa dijelaskeun yén Evelyn ngalaman. Ieu bukti ngeunaan kakuatan panalungtikan sabar-dipuseurkeun jeung dampak ningali pangalaman hirup diaku dina literatur ilmiah.
Evelyn's below reflection is a reminder of the broader implications of chronic illness on daily life and the need to adapt to navigate daily life.
Salaku hasil tina paguneman sareng Lauren nembe ngeunaan panggunaan diary gejala / jurnal, kuring mendakan makalah anu diterbitkeun dina internét, 'The Bronchiectasis Exacerbation Diary'. Didiagnosa di budak leutik ku kasakit engapan kronis nu geus ngembang sapanjang hirup abdi, abdi gaduh bronchiectasis hampru parna bilateral kalawan kolonisasi aspergillus jeung fungi rarer, scedosporium.
Kuring geus lila geus biasa nyimpen catetan tina gejala / inféksi / perlakuan, sanggeus didorong pikeun ngalakukeunana, sababaraha taun ka pengker, ku konsultan pikeun betah rujukan dina janjian. Anjeunna emphasized ngubaran inféksi kudu gumantung kana hasil tina budaya sputum sarta sensitipitas teu on pendekatan "roulette Rusia", sakumaha anjeunna disebut antibiotik spéktrum lega; tanpa terang naon jinis inféksi anu aub. Alhamdulilah, GP kuring kooperatif, sabab dina waktos éta budaya henteu rutin. (Kuring kungsi dreaded acquired reputasi salaku sabar bolshie!)
Maca makalah anu disebatkeun di luhur mangrupikeun wahyu. Éta ngahijikeun sajumlah gejala anu kuring alami unggal dinten, bahkan sababaraha gejala anu kuring karasa henteu pantes disebatkeun dina konsultasi klinik. Leuwih ti éta, kuring ngarasa disahkeun.
Aya sababaraha kali, sanaos jarang, nalika kuring cangcaya ka diri kuring, henteu langkung ti nalika saurang dokter nganggap kuring psikosomatik. Ieu titik panghandapna kuring. Hatur nuhun, saatos ieu kuring dirujuk ka dokter pernapasan di Rumah Sakit Wythenshawe anu, nalika budaya nunjukkeun aspergillus, kuring ditransfer ka perawatan Profesor Denning; sabab nyebutkeun "unggal awan boga pinding pérak". Aspergillus saméméhna kungsi kapanggih dina budaya di rumah sakit sejen di 1995/6, tapi teu dirawat di jalan éta di Wythenshawe.
Henteu ngan ukur gejala sapopoé anu dipertimbangkeun dina tulisan, tapi ogé dampak langsung pangalaman pasien sareng kahirupan sapopoé. Ogé, dina rasa anu langkung lega, dampak umum dina kahirupan urang sareng panyesuaian anu urang sadayana nyanghareupan - sadayana anu kuring tiasa gampang diidentifikasi dina kahirupan kuring sorangan.
Kuring ngarasa jadi wanti maca makalah sakumaha sanajan sagala rupa jenis leaflet informasi sabar Kuring geus maca ngaliwatan taun, euweuh éta jadi komprehensif.
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Empowering Pasén ngaliwatan Ngarti Pedoman Médis Profesional
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Napigasi bentang kasehatan tiasa pikasieuneun pikeun pasien sareng kulawargana, khususna nalika kaayaan paru-paru rumit sapertos aspergillosis. Ngartos jargon médis sareng jalur diagnostik sareng pangobatan sering pisan. Ieu dimana European Lung Foundation (ELF) tiasa ngabantosan inisiatifna pikeun ngaleungitkeun pedoman médis profésional.
Pentingna Pedoman Versi Lay
The ERS nyadiakeun tungtunan klinis lengkep pikeun professional Podomoro, outlining prakték pangalusna dina diagnosis, manajemén, sarta pengobatan sagala rupa kaayaan paru. Nanging, dokumén ieu sering téknis sareng nangtang pikeun jalma non-klinis ngartos. Recognizing celah ieu, ELF geus ngahasilkeun versi lay tina tungtunan ieu. Versi saderhana ieu tiasa ngabantosan ngadukung pendidikan pasien sareng nguatkeun individu pikeun ngartos kaayaan kaséhatanna langkung saé.
Naha Pasén Kedah Ngagunakeun Pedoman Ieu:
- Ningkatkeun Keterlibatan Pasien: Ngarti kana tungtunan ieu ngamungkinkeun pasien pikeun ilubiung aktip dina kaputusan kasehatan.
- Ningkatkeun Komunikasi sareng Dokter: Pasién anu ngartos kana éta pedoman tiasa komunikasi langkung efektif sareng dokterna, ngarah kana hasil kasehatan anu langkung saé.
- Pemberdayaan dina Ngatur Kaséhatan: Pangaweruh ngeunaan standar sareng protokol perawatan ngamungkinkeun pasien ngajengkeun kaséhatanna sareng mastikeun aranjeunna nampi perawatan anu pangsaéna.
Peran Pedoman dina Kaséhatan
Pedoman klinis penting pisan pikeun mastikeun konsistensi sareng kualitas dina kasehatan. Aranjeunna nyayogikeun kerangka pikeun profésional kaséhatan pikeun nganteurkeun pangobatan anu paling épéktip dumasar kana panilitian panganyarna sareng prakték pangsaéna.
The ELF's effort in translating professional guidelines into layman's terms is a commendable step towards patient empowerment. By understanding these guidelines, patients and their caregivers can navigate the healthcare system more effectively, ensuring they receive the best possible care for their lung conditions.
Urang ajak penderita, carers maranéhanana sarta kulawarga ngajajah sumberdaya ieu disadiakeun ku European Lung Foundation pikeun hadé ngartos kaayaan kaséhatan maranéhanana sarta pilihan perlakuan.
Anjeun tiasa ngaksés éta pedoman ku nganjang ka dieu.
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Pikiran ngeunaan Perjalanan Aspergillosis Lima Taun Dina - Nopémber 2023
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Alison Heckler ABPA
Kuring parantos nyerat ngeunaan perjalanan awal sareng diagnosis sateuacanna, tapi Perjalanan anu terus-terusan ngeusian pikiran kuring ayeuna. Tina sudut pandang Paru/Aspergillosis/ Pernafasan, ayeuna urang nuju usum panas di Selandia Anyar, kuring ngarasa kuring henteu kunanaon, katingali sareng raoseun.
Sababaraha Kasang Tukang Médis kuring ayeuna:-
Kuring ngamimitian biologic, mepolizumab (Nucala), dina Séptémber 2022 saatos 12 bulan anu sesah (carita sanés). Ku Natal, kuring loba ningkat jeung, ti sudut pandang engapan jeung énergi, kungsi usum panas alus; sanajan cuaca goréng, éta boro usum panas.
Kuring sugema ngeunaan pancegahan, sareng dina awal Pébruari, saurang putu nganjang sareng naon anu janten flu jahat anu kuring teras turun. 6 minggu ti harita, sinar-X susulan dina paru-paru nunjukkeun masalah jantung anu peryogi kardiologis pikeun mariksa "sténosis aorta sanés hariwang anu ageung tapi saluran aorta henteu kantos pulih nalika murangkalih. Kami tiasa ngalereskeun tapi ...." waleran kana éta "Kuring langkung ti 70 taun, ngagaduhan opat kakandungan, kuring masih di dieu & faktor résiko sareng sadaya masalah kuring anu sanés… .. moal kajantenan"
Sakali tungtungna ngalangkungan dua cegukan éta, adi kuring anu umurna 81 taun dirawat di rumah sakit, sareng kuring nyobian ngabela anjeunna. Anjeunna ngagaduhan Covid, anu saterasna kuring kéngingkeun ti anjeunna. (Kuring parantos saé pikeun tetep Covid Free salami 2.5 taun). Tapi sakali deui, naon waé inféksi anu kuring kéngingkeun dinten ayeuna peryogi langkung lami pikeun pulih; Kuring masih ngalaman éta dina opat minggu, sareng dina 6-8 minggu, GP kuring prihatin yén kuring tiasa ngembangkeun Long Covid sabab BP sareng denyut jantung kuring masih rada luhur! Adina kuring didiagnosis ku Myeloma sareng maot dina genep minggu saatos diagnosis.
Kusabab ngamimitian Mepolizumab, kuring perhatikeun kanaékan masalah incontinence, sareng ieu dikembangkeun dina Pyelonephritis pinuh (Inféksi Ginjal eColi). Kusabab kuring ngan ukur ngagaduhan hiji ginjal, tingkat kahariwang ngeunaan ieu rada luhur sabab gejalana / sadayana sami sareng nalika ginjal kuring anu sanés dileungitkeun. (Henteu aya rencana B di dieu). Tos-up: bisa ngambekan versus diajar nungkulan sababaraha incontinence?
Kuring overlay sadayana taun 2023 sareng masalah Kaséhatan Mental anu terus-terusan sareng incu awéwé kuring anu umurna 13-14 taun, janten putri kuring sareng salakina, anu hartana kuring cicing, leres-leres sibuk nyobian ngajaga anjeunna aman sareng sadaya perawatan anu diperyogikeun. . Urang sadaya sedih kaleungitan murangkalih ieu anu ayeuna di jaga.
Tingkat nyeri anu luhur, sarta tingkat énergi pisan low. Prednisone dasarna parantos maéhan produksi kortisol kuring, janten kuring ngagaduhan Insufficiency Adrenal Sekunder sareng Osteoporosis.
Tapi Abdi Syukur
Abdi nganuhunkeun pisan yén kuring kaberkahan cicing di nagara anu ngagaduhan Sistem Kaséhatan Umum (naha éta sami sareng NHS). Abdi tiasa ngalih ka daérah anu ngagaduhan rumah sakit pangajaran anu saé sareng caket sareng putri abdi (dokter Palliative Care) & salakina (Anestheist), abdi gaduh aksés kana pangobatan kaséhatan masarakat gratis sareng dokter anu saé anu ngadangukeun. sadayana gambar sareng ngalakukeun anu saé pikeun nyandak sadaya Spesialis pikeun marios kaayaan éta. X-ray panganyarna na Dexta Scan wangsit extent karuksakan sarta deterioration of spin nu: Inpo Abdi peryogi dibawa ka perhatian Physio anu nyobian pikeun mantuan kalawan motivasi kuring / aktivasina latihan strengthening. Éndokrinologi ngusulkeun paningkatan 5mg dina hydrocortisone kuring sareng ngadorong kaluar tina waktos dosis, sareng éta parantos ngajantenkeun bédana ageung dina cara kuring nungkulan sagala rupa anu lumangsung sareng nyeri. Urology tungtungna nampi rujukan pikeun marios kaayaan ginjal kuring, sanaos masih sababaraha bulan sateuacan aranjeunna ningali kuring. Pamariksaan panganyarna sareng Physio mendakan yén latihan parantos ngajantenkeun bédana, sareng kuring langkung kuat dina suku kuring. Kuring masih bajoang pikeun ngalakukeun ieu, tapi inpormasi ieu nginpokeun ka kuring yén kuring kedah tetep.
Patempuran pangbadagna nyaéta Sikep Méntal
Masing-masing carita urang bakal unik, sareng pikeun masing-masing urang, perangna nyata. (Nalika kuring nyerat sadayana, éta sigana rada pikasieuneun, tapi sacara umum, kuring henteu nganggap hal éta.
Kumaha urang Cope jeung sagala parobahan nu datang ka urang? Kuring terang yén kaséhatan kuring bakal robih nalika kuring sepuh, tapi kuring ngarasa éta gancang pisan. Kuring henteu nganggap diri kuring sepuh, tapi awak kuring pasti mikir sareng kalakuan kitu!
Diajar pikeun:
Narima hal-hal anu kuring henteu tiasa robih,
pikeun ngerjakeun hal-hal anu kuring tiasa robih,
Jeung hikmah uninga bédana
Prosés ieu ngaleungitkeun impian sareng harepan sareng netepkeun tujuan anu énggal, langkung sederhana, penting. Kuring parantos diajar yén saatos kagiatan anu langkung beurat (ku kamampuan kuring ayeuna), kuring kedah calik sareng istirahat atanapi ngalakukeun hal anu ngamungkinkeun kuring istirahat sareng produktif. Saacanna kuring parantos rada 'workaholic' sareng henteu seueur anu ngarencanakeun, janten transisi ieu henteu gampang. Sadaya parobihan ieu mangrupikeun Prosés Duka, sareng sapertos duka naon waé, urang nyageurkeun langkung saé upami urang ngaku naon éta, teras urang tiasa diajar hirup sareng duka urang. Urang tiasa maju kana sagala 'normal anyar'. Kuring ayeuna boga diary tata jeung catetan dina naon Abdi hoyong / kedah ngalakukeun, tapi teu rencanana kaluar di jéntré sakumaha Abdi kedah "balik jeung aliran" sakumaha anu kasebut dina sabaraha énergi kuring geus sadia pikeun ngalakukeun hal. Ganjaranna nyaéta kuring antukna bakal kéngingkeun barang-barang. Upami éta ngan ukur 1 atanapi 2 tugas sapopoé, éta henteu kunanaon.
Nalika kuring tungtungna ngagaduhan diagnosis taun 2019, kuring bébéja yén "éta sanés kanker paru-paru; Éta ABPA, anu kronis sareng teu tiasa diubaran tapi tiasa diurus". Naon anu dipikabutuh pikeun 'diurus', kuring pasti henteu nyandak dina waktos éta. Unggal nginum obat nu urang nyandak bakal boga efek samping; antifungals na prednisone aya jalan nepi aya dina hormat éta, sarta kadangkala masalah samping nu leuwih hese Cope jeung. Sacara méntal, kuring kedah ngingetkeun yén kuring tiasa ngambekan sareng teu acan maot tina pneumonia sekundér kusabab obat-obatan anu ngajaga aspergillosis dina kontrol. Kuring hirup sabab kuring ngatur asupan Hydrocortisone unggal dinten.
Timbangan kauntungan versus efek samping. Aya sababaraha pangobatan anu sakali kuring ngulik efek samping sareng kontraindikasi sareng nimbangkeun inpormasi éta ngalawan kauntungan pikeun ngagentos Periferal Neuropathy, kuring konsultasi sareng Dr, sareng kami lungsur. Pangobatan anu sanés kedah tetep, sareng anjeun diajar hirup kalayan iritasi (ruam, kulit garing, nyeri tonggong tambahan, jsb.). Sakali deui, urang masing-masing unik dina naon anu urang tiasa ngatur, sareng sakapeung, éta sikep (nekad) anu urang ngadeukeutan kaayaan anu bakal nangtukeun arah urang.
Catetan dina nekad…. Taun ka tukang, kuring netepkeun tujuan kuring pikeun kéngingkeun jarak leumpang rata-rata poean kuring dugi ka 3k per dinten. Éta sakedik misi nalika sababaraha dinten kuring henteu ngahontal 1.5K. Dinten, abdi junun a 4.5 datar walk on pantai na, langkung importantly, nempo rata poean leuwih 12 bulan kaliwat meunang ka 3k per poé. Janten, kuring ngagungkeun kameunangan salami éta. Kuring ngadamel kantong klip-on pikeun iPhone kuring supados kuring salawasna nyandak éta pikeun ngarékam léngkah kuring, sareng kuring nembé ngagaleuh Smart Watch anu kalebet ngarékam sadaya statistik data kaséhatan kuring. Ieu normal anyar pikeun ngalacak barang ieu, sareng Tim Panaliti NAC naroskeun upami data sapertos kitu tiasa ngabantosan urang ngaduga flare ABPA jsb.
Pikeun kuring, iman kuring kana kadaulatan Gusti anu paling penting pikeun ngajaga kuring fokus sareng maju.
“He knit me together in my mother's womb. My days are ordered by his hand.” Psalm 139.
Kuring geus disimpen ku Grace, ku Kristus nyalira.
Leres, sababaraha kaayaan médis kuring tiasa / bakal nyumbang kana maot kuring; urang sadayana maot dina sababaraha waktos, tapi kuring tiasa hirup anu pangsaéna anu kuring tiasa ayeuna, terang yén Gusti masih gaduh padamelan pikeun kuring.
"Dunya ieu sanés bumi abdi. Abdi ngan ukur ngaliwat.”
Talking with others on Teams Video and reading posts or stories on Facebook Support or the website all add to helping me keep positive. (At least most of the time) Hearing other people's stories helps to put my own back into perspective … I could be worse. So, as best I can, with the Lord’s help, I hope to encourage others to keep walking on the difficult road you sometimes find yourself on. Yes, it can be very difficult at times, but look at it as a new challenge. We are not promised an easy life.
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Naha anjeun ngagaduhan asma sareng alérgi Bronchopulmonary Aspergillosis?
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We're excited to share that there's a new clinical study that's looking into an innovative treatment specifically for individuals dealing with both asthma and ABPA. This treatment comes in the form of an inhaler called PUR1900.
Naon PUR1900?
PUR1900 is an inhaled medication that's being tested for its effectiveness against the symptoms of ABPA in asthma patients. It’s designed to deliver an antifungal medication directly to the lungs, where it can work right at the source of the problem.
The Study at a Glance
Panalitian ngalangkungan sababaraha bulan sareng dibagi kana tilu fase konci:
- Periode Screening (28 dinten): Panalungtik bakal ngalakukeun sababaraha tés pikeun mastikeun ulikan ieu pas pikeun anjeun.
- Mangsa Perlakuan (112 poé): If you're eligible, you'll use the inhaler for about 16 weeks. You could receive either a higher dose, a lower dose of PUR1900, or a placebo (which doesn't contain the actual medication).
- Periode Observasi (56 poé): Saatos perlakuan, peneliti bakal ngawas kaséhatan anjeun salami 8 minggu deui.
Naon anu bakal dilakukeun ku Peserta?
- Rutinitas sapopoé: You'll use the inhaler daily as directed and keep track of your experience in an electronic diary (eDiary).
- Cék di imah: You'll measure your breathing strength daily using a simple device.
- Kunjungan klinik: Approximately once a month, you'll visit the clinic for check-ups and tests.
Naha Miluan?
By joining this study, you're not only potentially finding a new way to manage your asthma and ABPA, but you're also contributing to medical research that could help countless others in the future.
Kasalametan jeung Mangpaat
Your safety is the top priority. You'll be closely monitored throughout the study, and all treatments will be provided at no cost to you. Plus, if you successfully complete the study, there may be an opportunity to continue receiving PUR1900 in a follow-up study.
Nyandak Léngkah Salajengna
Researchers are looking for adults with asthma and ABPA who are interested in exploring this new treatment option. If you're ready to take the next step, eligibility and contact details on how you can participate in this groundbreaking study can be found by clicking Ieuh.
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The Marathon of Management: Pacing Ajeg Ngaliwatan Flares Kaayaan Kronis
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Living with a chronic condition is like navigating a course with varied terrain. It's not a journey that will end in recovery in the conventional sense, as the condition itself persists. Instead, it is about managing the fluctuations—periods of stability interspersed with challenging exacerbations or complications like infections or additional illnesses.
In the world of distance running, there's a strategy known as "go slow to go fast." It's a principle that initially seems counterintuitive; to achieve speed and efficiency in a race, a runner must first invest time in slow, steady-paced training. But, in running, this approach builds a robust foundation of aerobic fitness, reducing injury risk and preparing the body for the demands of faster running in the future. In essence, "go slow to go fast" is not just about running—it's a metaphor for any process that requires building strength and resilience, one step at a time, and for individuals navigating the complexities of chronic conditions, adopting this philosophy could help manage their health over time by learning to listen to their body and respecting its need for gradual progression. Just as runners build their pace over time to avoid burnout, patients could benefit from looking at their journey with patience and persistence—understanding that managing a chronic condition often requires a slow and steady approach to maintain health and prevent exacerbations.
Netepkeun Goals Achievable
After a flare-up, complications or other illnesses, it's important to reassess and set realistic goals tailored to current capabilities. Like a runner adjusting their training post-injury, patients must recalibrate their expectations and focus on attainable health milestones - no matter how small. Adapting goals accordingly can help to maintain progress without overstepping physical limits.
Ngadamel Rencana Manajemén Pribadi
Chronic conditions require a personalised management plan, one that considers the unpredictability and variability of symptoms. Drawing on a parallel with a runner's individualised training regime, patients can benefit from a bespoke plan that accommodates their fluctuating health, devised with input from healthcare professionals.
Nangkeup Konsistensi sareng Sabar
Manajemén anu konsisten sareng kasabaran pikeun nampi kamajuan anu langkung laun dina waktos anu penting nalika hirup sareng kaayaan kronis, sareng gejala bakal sering nampilkeun dinten anu nangtang; nyungsi kakuatan dina rutin sarta ngajaga pendekatan slow sarta ajeg dina poé ieu penting.
Ngenalkeun sareng Ngagungkeun Kamajuan
Dina Marathon anu manajemén kaayaan kronis, victories leutik tiasa profound. Ngagungkeun dinten-dinten nalika gejala diurus sacara efektif atanapi nalika anjeun tiasa ngalakukeun éta sakedik deui bakal nguatkeun sumanget sareng nyorong usaha anu terus-terusan.
Nyaluyukeun kana Fluktuasi Kaséhatan
Just as a runner must listen to their body and adjust their training accordingly, patients with chronic conditions must remain flexible, adapting their management strategies in response to changes in their health - even if this means scaling back activities on a bad day.
Nyanggakeun Tim Rojongan Anjeun
Peran sistem dukungan penting pisan nalika hirup sareng panyawat kronis. Dorongan ti panyadia kasehatan, kulawarga, sareng kelompok dukungan tiasa masihan kanyamanan anu ageung sareng bantosan praktis dina waktos anu langkung nangtang.
Envisioning Your 'Finish Line'
While there may not be a traditional 'finish line' in chronic condition management, defining personal milestones and envisioning moments of reprieve can be incredibly motivating. Each phase of improved health or successful adaptation to a health challenge can be seen as its finish line, a testament to the patient's resilience.
The metaphor "go slow to go fast" transcends the realm of running. It can offer a powerful perspective for those managing chronic conditions like aspergillosis. It's a reminder that resilience often requires a measured approach, where understanding limits and gradually extending them is key to sustainable health management. This journey, punctuated by careful pacing and an awareness of our bodies, allows for periods of rest and recovery, which are just as important as the times of activity and progress. By embracing this principle, individuals can navigate their health challenges and build towards better days with confidence. While the finish line may differ in this marathon of management, each step taken at the right pace is a stride towards living a fuller life, regardless of the terrain ahead.
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Dimekarkeun rojongan NHS sadia pikeun penderita dina prakték GP sakuliah nagara
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Naha anjeun terang yén kunjungan ka prakték GP lokal anjeun ayeuna hadir kalayan lapisan dukungan kaséhatan tambahan? Dina rencana Pamulihan Aksés GP anu nembé digulung ku NHS, prakték GP lokal anjeun ngagaduhan staf sareng jasa kasehatan tambahan anu dirancang pikeun nyayogikeun perawatan komprehensif di komunitas anjeun.
Ieu ngarecahna tambihan énggal:
Langkung Leungeun dina Dek:
Since 2019, over 31,000 extra healthcare staff have joined general practices across the nation. This means besides your GP or practice nurse, there's now a diverse team of healthcare professionals, including pharmacists, mental health practitioners, paramedics, and physiotherapists, available to cater to your health needs.
Aksés Langsung ka Perawatan Spésialisasi:
Nalika anjeun ngahubungi prakték anjeun sareng masalah kaséhatan, aya tim terlatih anu siap pikeun meunteun kabutuhan anjeun sareng ngarahkeun anjeun ka profésional anu leres. Salaku conto, upami anjeun ngagaduhan nyeri otot, anjeun bakal dipesen langsung ka ahli fisioterapi.
Henteu aya rujukan GP? Henteu masalah:
You don't always need a GP referral to see certain healthcare specialists. Now, you can get specialist support from mental health professionals, physios, and pharmacists without having to see a GP first. This is all about getting you the right care, faster.
Pintu Digital ka GP anjeun:
32 juta jalma nganggo aplikasi NHS pikeun mesen janjian atanapi pariksa hasil tés. Alat digital ieu nyederhanakeun kumaha anjeun ngahontal ka GP anjeun, ngajantenkeun aksés kasehatan.
Resep Sosial pikeun Perawatan Holistik:
Pagawe link resep resep sosial tiasa ngabantosan masalah non-médis, sapertos katiisan atanapi naséhat kauangan. Aranjeunna malah ngajalankeun kursus dumasar komunitas pikeun masihan kaahlian anyar. Salaku conto, di Nottingham, pasien tiasa diajar kaahlian masak, muka panto pikeun kasempetan anyar.
Pangaweruh nyaéta kakuatan:
Survei panganyarna ngungkabkeun yén hiji tina tilu jalma di Inggris masih teu sadar kana jasa anu ditingkatkeun ieu dina prakték GP na. Nyebarkeun kecap ngajamin yén langkung seueur jalma tiasa nyandak kauntungan tina dukungan anu sayogi.
Pangrojong anu ditingkatkeun dina prakték GP mangrupikeun léngkah anu penting pikeun nyiptakeun sistem kasehatan anu dipuseurkeun ku komunitas. Éta sadayana ngeunaan mastikeun yén anjeun nampi perawatan anu leres, ti profésional anu leres, dina waktos anu pas.
Upami anjeun hoyong terang langkung seueur, kunjungan nhs.uk/GPservices pikeun ngajalajah jasa anu dilegaan anu aya dina prakték GP anjeun.
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