👩‍⚕️ Martha’s Law – What It Means for Aspergillosis Patients

Why the law was introduced

• Martha Mills was a 13-year-old girl who died in 2021 after developing sepsis in hospital.

• Her parents felt their concerns were not acted on quickly enough and that they were not given access to a second opinion.

• In response, the government announced Martha’s Law, to ensure patients and families can easily get a second clinical opinion if they feel their concerns are not being taken seriously.

What the law requires

• Hospitals must provide a clear and simple process for patients and families to request a second opinion from a senior doctor.

• This right applies when someone feels that:

  • Their symptoms are worsening or not being managed properly.

  • They are not being listened to by the care team.

  • They need reassurance that their treatment plan is the right one.

• Staff must also inform patients and carers about this right so people know it is available.

Why this matters for people with Aspergillosis

• Aspergillosis is a rare and complex condition, and not all hospitals or clinicians have specialist knowledge.

• Symptoms (e.g. breathlessness, chest pain, fever, wheeze, coughing blood) can be misinterpreted as asthma, pneumonia, or something less serious.

• Martha’s Law means that if you or your family feel your care isn’t right, you can:

  • Request a second opinion promptly.

  • Be assessed by another senior doctor, potentially with respiratory or infectious disease expertise.

  • Gain access to the National Aspergillosis Centre or another specialist service if appropriate.

What you can do if concerned

• Speak up early: tell staff if you are worried about your symptoms getting worse.

• Ask for a second opinion: mention “Martha’s Law” if you feel you’re not being heard.

• Bring your information: if you’re an aspergillosis patient, carry your clinic letters or patient passport to help new doctors understand your condition.

• Involve carers/family: they can raise concerns on your behalf if you are too unwell.

✅ In summary: Martha’s Law ensures that patients and families have the right to be heard and to request a second medical opinion. For people with aspergillosis, this could be life-saving when symptoms are worsening and urgent, specialist input is needed.