Patients & Carers meeting July 2016
| Date | Speaker | Title | Time starts | Duration |
| July 2016 | Graham Atherton | Indoor Air Quality | 0'00'00secs | 0'48'43secs |
| Dr. Karl Heyes and Dr Alexandra Ball | Aspergillosis and Lung transplant: "If my lungs are that bad, why can't I just have a transplant?" | 0'48'43secs | 1'05'00secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
- Stewart Armstrong's daily vlog 'A month in the Life'
- All of Aspergillus Website Youtube video's
- European Lung Foundation (ELF) needs you! TELL US ABOUT YOUR EXPERIENCES OF TRAVELLING BY AIR WITH OXYGEN
- British Lung Foundation on air quality www.blf.org.uk/search/site/air%20quality
- Greenfacts for particulates
- US EPA comprehensive guidelines on air cleaners
- UK Allergy Seal of Approval
- NASA listing of plants that can help remove indoor gasses & odours
- Ventilation advice (UK) www.isse.org.uk
- NHS Blood and Transplant
Patients & Carers meeting June 2016
| Date | Speaker | Title | Time starts | Duration |
| June 2016 | Chris Harris | Funding new antifungals at the NAC | 0'00'00secs | 0'22'30secs |
| David Denning | A summary of all the antifungals in development | 0'22'30secs | 1'04'30secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
How to bolster the antifungal pipeline
Patients & Carers meeting May 2016
| Date | Speaker | Title | Time starts | Duration |
| May 2016 | Jenny Ratner | Patient involvement in Research | 0'00'00secs | 0'50'10secs |
| Graham Atherton | Patient Networking and FIT are 25 | 0'50'10secs | 1'27'15secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
National Institute for Health Research
James Lind Alliance
Access Pfizer
Patients & Carers meeting April 2016
| Date | Speaker | Title | Time starts | Duration |
| April 2016 | Graham Atherton | 7th Advances Against Aspergillosis for patients | 0'00'00secs | 0'41'56secs |
| Reyenna Sheehan | Importance of highly effective sputum collection, and how to achieve it | 0'41'56secs | 0'25'00secs | |
| Led by Graham Atherton | Entire meeting (alternate meeting) |
Resources mentioned:
7th Advances Against Aspergillosis, Manchester
FUNGAL AND BACTERIAL YIELD FROM INDUCED SPUTUM IN RESPIRATORY OUTPATIENTS
Patients & Carers meeting March 2016 (7th AAA)
Patients Meeting at the 7th Advances Against Aspergillosis Conference in Manchester
| Date | Speaker | Title | Time starts | Duration |
| March 2016 | Ritesh Agarwal MD | Sinusitis and ABPA | 0'00'00secs | 0'16'15secs |
| Richard Moss MD | Allergic Aspergillosis and Cystic Fibrosis | 0'16'15secs | 0'16'20secs | |
| Darius Armstrong-James FRCP | NAC Satellite Clinic in London | 0'23'35secs | 0'15'05secs | |
| Stuart Levitz MD | Fungal Vaccines | 0'47'45secs | 0'13'20secs | |
| Jeanette Boyd | European Lung Foundation | 1'01'40secs | 0'16'35secs | |
| Vicky Barber | British Lung Foundation | 1'17'40secs | 0'07'10secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
This month's meeting took place at the 7th Advances Against Aspergillosis international meeting in Manchester. As a result we were able to invite a series of expert speakers from around the world to respond to our audience and patients & carers asked many important questions over an hour and a half - well worth listening to.
Also see the speakers in full video at http://www.aspergillus.org.uk/content/7th-advances-against-aspergillosis-manchester
Resources mentioned:
7th Advances Against Aspergillosis, Manchester
Patients & Carers meeting February 2016
| Date | Speaker | Title | Time starts | Duration |
| February 2016 | Graham Atherton | Shortened talk | 0'00'00secs | 0'35'00secs |
| Led by Graham Atherton | Entire meeting (alternate version) |
Unfortunately we had to cancel this meeting due to room booking problems, but Graham Atherton gives a shortened version of the talk here.
Resources mentioned:
7th Advances Against Aspergillosis, Manchester
Patients & Carers meeting December 2015
| Date | Speaker | Title | Time starts | Duration |
| December 2015 | Graham Atherton | Christmas quiz | 0'00'00secs | 0'55'00secs |
| Chris Harris | Group poem | 0'55'00secs | end | |
| Led by Graham Atherton | Entire meeting |
Resources mentioned:
Aspergillosis community group poem, written by Chris Harris
Patients & Carers meeting November 2015
| Date | Speaker | Title | Time starts | Duration |
| November 2015 | Chris Kosmidis | Isavuconazole: a new antifungal drug | 0'00'00secs | 0'36'40secs |
| Graham Atherton | Patients and carers disucssion | 0'36'40secs | end | |
| Led by Graham Atherton | Entire meeting (alternate version) |
We had to switch off the discussion with patients after Chris & Graham's introduction ending at 36min 40sec as the group had to proceed privately. The slides discussed give a good deal of the information we talked about so are well worth reading once the talking has stopped.
Resources mentioned:
Patients & Carers meeting October 2015
| Date | Speaker | Title | Time starts | Duration |
| October 2015 | Maria Gamaletsou | Introduction to the background of our new medic | 0'00'00secs | 0'26'40secs |
| Graham Atherton | ERS 2015 and Take the Active Option | 0'26'40secs | 1'23'40secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Maria Gamalatsou is clinical fellow at the National Aspergillosis Centre and specialises in the treatment of aspergillosis.
Resources mentioned:
Graham Atherton:
European Respiratory Society Vision
Activity is good for your health: Dutch show cycling every week adds 6 months to your life
Aspergillus Community Booklet, Autumn 2015 edition
NOTE: increasing your activity levels is best done in consultation with your medical team and under their supervision. You physio's might give you a personalised regime or they might suggest using one of the British Lung Foundations 'Breathe Easy' groups, some of which offer group exercise sessions
Patients & Carers meeting September 2015
| Date | Speaker | Title | Time starts | Duration |
| September | Phil Langridge | The variety and use of positive expiratory pressure devices to aid mucus clearance | 0'00'00secs | 1'11'35secs |
| Graham Atherton | fungi@MANCHESTER | 1'11'35secs | 1'39'17secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Phil Langridge (Physio Phil) is our lead physiotherapist at the National Aspergillosis Centre and specialises in the treatment of aspergillosis.
Resources mentioned:
Aspergillus Community Booklet, Summer 2015 edition
Phil Langridge
PEP devices
- http://www.abcm.org.br/anais/cobem/2003/html/pdf/COB03-0535.pdf
- Cornet: http://www.curaplex.com/docs/rc_cornet/RC-Cornet-by-Curaplex-Overview-Brochure.pdf
- Quake: http://europepmc.org/abstract/med/22418284, http://thayermedical.com/wp-content/uploads/2015/05/Quake-IFU.pdf
- Aerosure: http://www.aerosure-medic.com/how-aerosure-works/, http://healthcareprofessional.aerosure-medic.com/aerosure-evidence-base/
- AerobiKA: http://www.aerobika-therapy.com/aerobika-pep-therapy/ http://www.aerobika-therapy.com/
- Lung flute: http://lungflute.co.uk/
The drug tariff (UK): •http://www.drugtariff.nhsbsa.nhs.uk/#/00215656-FA/FA00215206/Home
Graham Atherton
http://www.worcester.ac.uk/discover/pollen-forecast.html
http://www.fungimanchester.orgPoetry at the National Aspergilloisis Centre
Fungal Infection Trust Appeals www.fit.care
Donate to Fungal Infection Trust by mobile phone (UK only) - to donate £5 send the message ASPE14 £5 via SMS text to 70070