Patients & Carers meeting April 2016
| Date | Speaker | Title | Time starts | Duration |
| April 2016 | Graham Atherton | 7th Advances Against Aspergillosis for patients | 0'00'00secs | 0'41'56secs |
| Reyenna Sheehan | Importance of highly effective sputum collection, and how to achieve it | 0'41'56secs | 0'25'00secs | |
| Led by Graham Atherton | Entire meeting (alternate meeting) |
Resources mentioned:
7th Advances Against Aspergillosis, Manchester
FUNGAL AND BACTERIAL YIELD FROM INDUCED SPUTUM IN RESPIRATORY OUTPATIENTS
Patients & Carers meeting March 2016 (7th AAA)
Patients Meeting at the 7th Advances Against Aspergillosis Conference in Manchester
| Date | Speaker | Title | Time starts | Duration |
| March 2016 | Ritesh Agarwal MD | Sinusitis and ABPA | 0'00'00secs | 0'16'15secs |
| Richard Moss MD | Allergic Aspergillosis and Cystic Fibrosis | 0'16'15secs | 0'16'20secs | |
| Darius Armstrong-James FRCP | NAC Satellite Clinic in London | 0'23'35secs | 0'15'05secs | |
| Stuart Levitz MD | Fungal Vaccines | 0'47'45secs | 0'13'20secs | |
| Jeanette Boyd | European Lung Foundation | 1'01'40secs | 0'16'35secs | |
| Vicky Barber | British Lung Foundation | 1'17'40secs | 0'07'10secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
This month's meeting took place at the 7th Advances Against Aspergillosis international meeting in Manchester. As a result we were able to invite a series of expert speakers from around the world to respond to our audience and patients & carers asked many important questions over an hour and a half - well worth listening to.
Also see the speakers in full video at http://www.aspergillus.org.uk/content/7th-advances-against-aspergillosis-manchester
Resources mentioned:
7th Advances Against Aspergillosis, Manchester
Patients & Carers meeting February 2016
| Date | Speaker | Title | Time starts | Duration |
| February 2016 | Graham Atherton | Shortened talk | 0'00'00secs | 0'35'00secs |
| Led by Graham Atherton | Entire meeting (alternate version) |
Unfortunately we had to cancel this meeting due to room booking problems, but Graham Atherton gives a shortened version of the talk here.
Resources mentioned:
7th Advances Against Aspergillosis, Manchester
Patients & Carers meeting December 2015
| Date | Speaker | Title | Time starts | Duration |
| December 2015 | Graham Atherton | Christmas quiz | 0'00'00secs | 0'55'00secs |
| Chris Harris | Group poem | 0'55'00secs | end | |
| Led by Graham Atherton | Entire meeting |
Resources mentioned:
Aspergillosis community group poem, written by Chris Harris
Patients & Carers meeting November 2015
| Date | Speaker | Title | Time starts | Duration |
| November 2015 | Chris Kosmidis | Isavuconazole: a new antifungal drug | 0'00'00secs | 0'36'40secs |
| Graham Atherton | Patients and carers disucssion | 0'36'40secs | end | |
| Led by Graham Atherton | Entire meeting (alternate version) |
We had to switch off the discussion with patients after Chris & Graham's introduction ending at 36min 40sec as the group had to proceed privately. The slides discussed give a good deal of the information we talked about so are well worth reading once the talking has stopped.
Resources mentioned:
Patients & Carers meeting October 2015
| Date | Speaker | Title | Time starts | Duration |
| October 2015 | Maria Gamaletsou | Introduction to the background of our new medic | 0'00'00secs | 0'26'40secs |
| Graham Atherton | ERS 2015 and Take the Active Option | 0'26'40secs | 1'23'40secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Maria Gamalatsou is clinical fellow at the National Aspergillosis Centre and specialises in the treatment of aspergillosis.
Resources mentioned:
Graham Atherton:
European Respiratory Society Vision
Activity is good for your health: Dutch show cycling every week adds 6 months to your life
Aspergillus Community Booklet, Autumn 2015 edition
NOTE: increasing your activity levels is best done in consultation with your medical team and under their supervision. You physio's might give you a personalised regime or they might suggest using one of the British Lung Foundations 'Breathe Easy' groups, some of which offer group exercise sessions
Patients & Carers meeting September 2015
| Date | Speaker | Title | Time starts | Duration |
| September | Phil Langridge | The variety and use of positive expiratory pressure devices to aid mucus clearance | 0'00'00secs | 1'11'35secs |
| Graham Atherton | fungi@MANCHESTER | 1'11'35secs | 1'39'17secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Phil Langridge (Physio Phil) is our lead physiotherapist at the National Aspergillosis Centre and specialises in the treatment of aspergillosis.
Resources mentioned:
Aspergillus Community Booklet, Summer 2015 edition
Phil Langridge
PEP devices
- http://www.abcm.org.br/anais/cobem/2003/html/pdf/COB03-0535.pdf
- Cornet: http://www.curaplex.com/docs/rc_cornet/RC-Cornet-by-Curaplex-Overview-Brochure.pdf
- Quake: http://europepmc.org/abstract/med/22418284, http://thayermedical.com/wp-content/uploads/2015/05/Quake-IFU.pdf
- Aerosure: http://www.aerosure-medic.com/how-aerosure-works/, http://healthcareprofessional.aerosure-medic.com/aerosure-evidence-base/
- AerobiKA: http://www.aerobika-therapy.com/aerobika-pep-therapy/ http://www.aerobika-therapy.com/
- Lung flute: http://lungflute.co.uk/
The drug tariff (UK): •http://www.drugtariff.nhsbsa.nhs.uk/#/00215656-FA/FA00215206/Home
Graham Atherton
http://www.worcester.ac.uk/discover/pollen-forecast.html
http://www.fungimanchester.orgPoetry at the National Aspergilloisis Centre
Fungal Infection Trust Appeals www.fit.care
Donate to Fungal Infection Trust by mobile phone (UK only) - to donate £5 send the message ASPE14 £5 via SMS text to 70070
Patients & Carers meeting August 2015
| Date | Speaker | Title | Time starts | Duration |
| August 2015 | Alan Savage | Home care, health and use of social resources in the local community | 0'00'00secs | 0'52'30secs |
| Chris Harris | Poetry | 0'52'30secs | 1'09'35secs | |
| Graham Atherton | Planning Autumn booklet | 1'09'35secs | 1'43'00secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Alan Savage was asked to chat about his initiative to better promote the many social & creative activities that take place in our local communities. Alan is based in Manchester but he works for a Home Care company that have offices throughout the UK (and US), some of which also list activities in their local area. Most of the listed activities have been run for many years (e.g. social clubs, charities) but are not well publicised, many are of value to people looking for activities to fill their time (especially the retired, disabled or just lonely!) so Alan has constructed a listing. The company he runs suggest those who are unable to travel to these (largely free of charge) activities might make use of their services to help organise, transport and accompany. Home Instead are a high-end fee charging concern working hard to integrate their services with local community and local social & health services.
After the break Chris then collected a few more suggestions for a group poem and Graham discussed the content for the forthcoming Autumn Aspergillosis Booklet.
Resources mentioned:
Aspergillus Community Booklet, Summer 2015 edition
Home Instead WOW community information leaflets
Poetry at the National Aspergilloisis Centre
Fungal Infection Trust Appeals www.fit.care
Donate to Fungal Infection Trust by mobile phone (UK only) - to donate £5 send the message ASPE14 £5 via SMS text to 70070
Patients & Carers meeting July 2015
| Date | Speaker | Title | Time starts | Duration |
| July 2015 | Gemma Hayes | Aspergillus, Asthma and ABPA - Where are we and where are we going? | 0'00'00secs | 0'26'45secs |
| Chris Harris | Skype Consults | 0'26'15secs | 0'15'00secs | |
| Creative writing | ||||
| Led by Chris Harris | Entire meeting (alternate version) | 1'00'00secs |
Resources mentioned:
Poetry at the National Aspergilloisis Centre
Fungal Infection Trust Appeals www.fit.care
Donate to Fungal Infection Trust by mobile phone (UK only) - to donate £5 send the message ASPE14 £5 via SMS text to 70070
Patients & Carers meeting June 2015
| Date | Speaker | Title | Time starts | Duration |
| June 2015 | Graham Atherton | Biomes and improved diagnostics | 0'00'00secs | 0'45'15secs |
| Travel tips | 0'45'15secs | 1'01'40secs | ||
| Cause of death - we need your help | 1'01'40secs | 1'28'30secs | ||
| Led by Graham Atherton | Entire meeting (alternate version) |
Graham Atherton chatted about the rise of a new concept in medical research - the study of the bacteria & fungi that live on us and in us and their effect on our health (Biomes/Microbiomes/Mycobiomes). Chris Harris (NAC Manager) went through how best to prepare for flights abroad, giving us plenty of notice for assessing you for travel and all the paperwork that needs to be completed before you can fly with your medication and oxygen cylinders.
Resources mentioned:
Code of a Killer (BBC TV)
The lung mycobiome: an emerging field of the human respiratory microbiome
European Health Insurance Card (EHIC) Hints for US travellers who need to travel with oxygen cylinders Suggestions for travel insurance:
- Asthma UK (lots more advice here and a wide range of insurers)
- MoneySupermarket
- Worldwideinsure.com
Fungal Infection Trust Appeals www.fit.care
Donate to Fungal Infection Trust by mobile phone (UK only) - to donate £5 send the message ASPE14 £5 via SMS text to 70070