Patients & Carers meeting December 2016
| Date | Speaker | Title | Time starts | Duration |
| December 2016 | Azad Aziz | Request for patients representative on research project panel | 0'00'00secs | 0'10'38secs |
| Graham Atherton | Christmas quiz 2016 | 0'10'38secs | 0'59'01secs | |
| Graham Atherton | NIHR Clinical Research Centre and ECMM Centre of Expertise | 1'09'39secs | 0'11'33secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
- National Institute for Health Research
- Patient partnering with NIHR
- NIHR bid awarded to Manchester
- European Confederation for Medical Mycology
- Manchester ECMM Centre of Excellence
Patients & Carers meeting November 2016
| Date | Speaker | Title | Time starts | Duration |
| November 2016 | Paul Bowyer | Why do people get ABPA? - our latest research | 0'00'00secs | 0'37'08secs |
| Graham Atherton | Chronic inflammation and mast cells | 0'37'08secs | 0'52'15secs | |
| Led by Graham Atherton | Entire meeting |
Resources mentioned:
Manchester Fungal Infection Group
Patients & Carers meeting October 2016
| Date | Speaker | Title | Time starts | Duration |
| October 2016 | Liz Wilson | Outpatient Parenteral Antimicrobial Therapy (OPAT) | 0'00'00secs | 0'39'45 secs |
| Graham Atherton | Antifungal resistance - change the pauses Mycotoxin slows down cilia |
0'39'45secs | 0'40'15secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
- In-host adaptation and acquired triazole resistance in Aspergillus fumigatus: a dilemma for clinical management.
- Fungal Aflatoxins Reduce Respiratory Mucosal Ciliary Function.
Fungal Infection Trust website
Patients & Carers meeting September 2016
| Date | Speaker | Title | Time starts | Duration |
| September 2016 | Ginny Wall | Breathworks and Mindfulness | 0'00'00secs | 1'08'30secs |
| Graham Atherton | Group projects | 1'08'30secs | 0'24'30secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
Breathworks
- www.breathworks-mindfulness.org.uk
- www.breathworks-mindfulness.org.uk/research
- www.breathworks-mindfulness.org.uk/mindfulness-courses
- www.breathworks-mindfulness.org.uk/online-courses
- Soundcloud.com
Scottish Medicines Consortium https://www.scottishmedicines.org.uk/ National Institute for Health and Care Excellence https://www.nice.org.uk/get-involved/stakeholder-registration James Lind Alliance http://www.jla.nihr.ac.uk/about-the-james-lind-alliance/ James Doubleday Manchester fund http://www.doubledayfund.org.uk/ European Lung Foundation http://www.europeanlung.org/en/
Other relevant information resources
- The Stress Management Society
- NHS Choices: Understanding stress & its management
- 10 stress busters
- Cognitive behavioural therapy
- Kelly McGonigal: How to make stress your friend
- Mindfulness a description by Prof Mark Williams
- BBC Breakfast TV: What can mindfulness do for chronic pain?
- 3 minute breathing space presented by Prof Mark Williams
- Be mindful online resources
Patients & Carers meeting August 2016
| Date | Speaker | Title | Time starts | Duration |
| August 2016 | Graham Atherton | Stress: What is it and how to manage it | 0'00'00secs | 1'00'40secs |
| Chris Harris | Exercise and Breathing | 1'00'40secs | 0'18'30secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
- The Stress Management Society
- NHS Choices: Understanding stress & its management
- 10 stress busters
- Cognitive behavioural therapy
- Kelly McGonigal: How to make stress your friend
- Mindfulness a description by Prof Mark Williams
- BBC Breakfast TV: What can mindfulness do for chronic pain?
- 3 minute breathing space presented by Prof Mark Williams
- Be mindful online resources
Patients & Carers meeting July 2016
| Date | Speaker | Title | Time starts | Duration |
| July 2016 | Graham Atherton | Indoor Air Quality | 0'00'00secs | 0'48'43secs |
| Dr. Karl Heyes and Dr Alexandra Ball | Aspergillosis and Lung transplant: "If my lungs are that bad, why can't I just have a transplant?" | 0'48'43secs | 1'05'00secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
- Stewart Armstrong's daily vlog 'A month in the Life'
- All of Aspergillus Website Youtube video's
- European Lung Foundation (ELF) needs you! TELL US ABOUT YOUR EXPERIENCES OF TRAVELLING BY AIR WITH OXYGEN
- British Lung Foundation on air quality www.blf.org.uk/search/site/air%20quality
- Greenfacts for particulates
- US EPA comprehensive guidelines on air cleaners
- UK Allergy Seal of Approval
- NASA listing of plants that can help remove indoor gasses & odours
- Ventilation advice (UK) www.isse.org.uk
- NHS Blood and Transplant
Patients & Carers meeting June 2016
| Date | Speaker | Title | Time starts | Duration |
| June 2016 | Chris Harris | Funding new antifungals at the NAC | 0'00'00secs | 0'22'30secs |
| David Denning | A summary of all the antifungals in development | 0'22'30secs | 1'04'30secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
How to bolster the antifungal pipeline
Patients & Carers meeting May 2016
| Date | Speaker | Title | Time starts | Duration |
| May 2016 | Jenny Ratner | Patient involvement in Research | 0'00'00secs | 0'50'10secs |
| Graham Atherton | Patient Networking and FIT are 25 | 0'50'10secs | 1'27'15secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
National Institute for Health Research
James Lind Alliance
Access Pfizer
Patients & Carers meeting April 2016
| Date | Speaker | Title | Time starts | Duration |
| April 2016 | Graham Atherton | 7th Advances Against Aspergillosis for patients | 0'00'00secs | 0'41'56secs |
| Reyenna Sheehan | Importance of highly effective sputum collection, and how to achieve it | 0'41'56secs | 0'25'00secs | |
| Led by Graham Atherton | Entire meeting (alternate meeting) |
Resources mentioned:
7th Advances Against Aspergillosis, Manchester
FUNGAL AND BACTERIAL YIELD FROM INDUCED SPUTUM IN RESPIRATORY OUTPATIENTS
Patients & Carers meeting March 2016 (7th AAA)
Patients Meeting at the 7th Advances Against Aspergillosis Conference in Manchester
| Date | Speaker | Title | Time starts | Duration |
| March 2016 | Ritesh Agarwal MD | Sinusitis and ABPA | 0'00'00secs | 0'16'15secs |
| Richard Moss MD | Allergic Aspergillosis and Cystic Fibrosis | 0'16'15secs | 0'16'20secs | |
| Darius Armstrong-James FRCP | NAC Satellite Clinic in London | 0'23'35secs | 0'15'05secs | |
| Stuart Levitz MD | Fungal Vaccines | 0'47'45secs | 0'13'20secs | |
| Jeanette Boyd | European Lung Foundation | 1'01'40secs | 0'16'35secs | |
| Vicky Barber | British Lung Foundation | 1'17'40secs | 0'07'10secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
This month's meeting took place at the 7th Advances Against Aspergillosis international meeting in Manchester. As a result we were able to invite a series of expert speakers from around the world to respond to our audience and patients & carers asked many important questions over an hour and a half - well worth listening to.
Also see the speakers in full video at http://www.aspergillus.org.uk/content/7th-advances-against-aspergillosis-manchester
Resources mentioned:
7th Advances Against Aspergillosis, Manchester