Patient and Carer Stories

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This is a collection of stories, mainly told by the patients themselves or their carers. Some are unusual cases, one is by a doctor and some are in memorium but all offer insight into what it is to live with the illness aspergillosis. This is often helpful for fellow patients, new patients, carers and increasingly medical student and doctors. 

It would be great if you could contribute your story – it can be long or short and you might not think it important but there will probably be something in it that makes someone else think a little more about what they are going through; whether that be what the patient is going through, what their carer and family is going through or what the patients in their clinic are going through.

Title
Mike Chapman
Patient stories from World Aspergillosis Day
The day I got told I am going to die
WHO WANTS TO LIVE FOREVER? by Elizabeth Hutton
‘I’M STILL STANDING – (ME ‘N ELTON!) by Elizabeth Hutton
EVERY BREATH YOU TAKE … (Apologies to ‘The Police’ and ‘Sting’)
My Story: When I was dying....
Listen to 2015 Hippocrates Prize Open winners
Listen to Hippocrates Young Poet Prize for Poetry & Medicine 2015
Listen to all the winning Hippocrates NHS poems
Panthera by Parthenia M. Hicks
THOUGHTS OF A FUNGI
Dear Doctor, I have Read your Play BY LORD BYRON (GEORGE GORDON)
Finding Poetry in Illness: A reader’s journey of self-transformation from disease to ease.
The Poetry Ward A doctor dispenses poems to patients and medical students.
Welcome to my Aspergillosis page!
Sue Hurlburt
Steph Smith
Serena Wells
Roberta Bentley
Peter K
Peter Allen
Pat Peterson
Mike Firth - Diver
Mick
Mary Jo
Margaret Griffiths
Man dies after inhaling fungal spores from garden compost
MagStar
M. Scott Johansen
Lisa McNeil
Kimberley Wendzel
Kay A.
John Bradley
Joan Becker - Xolair
Jim Azeltine
Jen W
Greg Howard
Donna Asbridge
Coping with Aspergillosis
Coping from a carers viewpoint…
Colin
Chip Chapman
Carol Saville
Becky Jones
Anne's story
Abby Beats Serious Acute Aspergillosis and Leads a Normal Life
The Power of a Legend
Awareness by Liz Smith
THE HUNT by Billy Roberts
THE OLD DIPSOMANIAC by Billy Roberts
NOVEMBER THOUGHTS by Billy Roberts
After the diagnosis by Christian Wiman
In Appreciation of the Carer
Poetry at the GAFFI Launch
Decomposition: An Anthology of Fungi-Inspired Poems
11 irregular stanzas on trimming toenails by Kat Couch
Soup's On! by Del Maximo
Some Drs are odd by Mr Bigglesworth
GROWING THE ART OF YOUR SCIENCE By Andrew Newman
THE FOREST’S FLOORS By Luke Heaton
MUSCARIA IN MIND – by Ted Tudd
PLAYFUL BOYS – By Elizabeth Sheedy
The fungal thread of death by John Lucas
An Ode to the Mushroom
My Foot Fungus
Fungal Poems: Pourriture Noble BY MARIE PONSOT
Hope is... Aspergillosis Support Group Poem written with Caroline Hawkridge
Aspergillus in a well-loved pillow written by Caroline Hawkridge

Want to share your story?

Head over to our Blog Submission Area to write about your own experiences living, or caring for someone, with aspergillosis.