Patient Stories

Living with CPA and ABPA

Gwynedd was formally diagnosed with CPA and ABPA at the National Aspergillosis Centre in 2012. Below she lists some of the symptoms she experiences and what she has found helpful in managing the conditions.  These symptoms fluctuate and can be very insignificant until...

Aspergillosis and Depression: A Personal Reflection

  Alison Heckler is from New Zealand, and she has Allergic Bronchopulmonary Aspergillosis (ABPA). Below is Alison's personal account of her recent experiences with aspergillosis and the impact it has had on her mental health. Physical and mental health go hand in...

Palliative Care – Not What You Might Think

Chronically ill people are occasionally asked to consider entering a period of receiving palliative care. Traditionally palliative care was equated with end of life care, so if you are offered palliative care it can be a daunting prospect and it is entirely natural to...

An aspergillosis diagnostic journey

Aspergillosis is a rare and debilitating fungal infection that is caused by aspergillus mould. This mould is found in many places, including soil, rotting leaves, compost, dust, and damp buildings. There are several variants of the disease, mostly affecting the lungs,...

Living with hyper-IgE syndrome and aspergillosis: patient video

The following content is reproduced from ERS Breathe Vol 15 Issue 4. Click here to view the original article. https://breathe.ersjournals.com/content/breathe/15/4/e131/DC1/embed/inline-supplementary-material-1.mp4?download=true    In the above video, Sandra Hicks...

Patient stories from World Aspergillosis Day

On World Aspergillosis Day (February 1st), the Aspergillosis Trust organised a whole host of activities and awareness campaigns, to mark the occasion. Alongside their very successful Selfie Campaign, and the poster that was displayed on London buses in the run up to...

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