Living With Aspergillosis Hub

Living with a long-term lung condition can affect every part of life — work, family, energy levels, mood and daily routines.
This hub brings together real-life tips, patient stories, lifestyle advice, pacing techniques and ways to stay active safely.

Home, damp and mould

Damp, mould and poor housing can make respiratory symptoms harder to manage. For practical advice on recognising problems, reducing exposure and getting housing help, visit our Damp, Mould and Housing hub.


Topics in This Hub

Latest “Living With Aspergillosis” Articles

Person joining an online aspergillosis support group and sharing experiences with other patients

Getting the Best from Aspergillosis Support Groups

September 10, 2026

Choosing how much information to learn about aspergillosis without becoming overwhelmed

How Much Do I Need to Know About My Aspergillosis?

September 10, 2026

People taking part in a friendly online peer-support session for aspergillosis

Thursday Sessions: Support beyond clinic—finding information and connection that feels right for you

September 10, 2026

Patient and family member discussing aspergillosis with a specialist healthcare professional.

Getting a Second Opinion or Specialist Advice for Aspergillosis

September 9, 2026

Carer supporting a loved one with aspergillosis at home, with information about practical help and looking after yourself.

Practical Support for Carers of Someone with Aspergillosis

September 9, 2026

Older couple sitting together at home, representing support for a loved one with aspergillosis.

When Caring Becomes Overwhelming: Support for Family Carers

September 9, 2026

Family and friends talking together at home about living with aspergillosis.

Talking to Friends and Family about Aspergillosis

September 9, 2026

Older couple relaxing together at home, representing living well with aspergillosis and supportive care.

Living Well with Aspergillosis: Understanding Palliative and Supportive Care

September 9, 2026

Laptop displaying trusted palliative and supportive care resources, including practical support, planning ahead and help for families and carers.

🌐 Trusted Online Resources for Palliative and Supportive Care

September 9, 2026

Marcela and Tom from the European Aspergillosis Patient Advisory Group at the ERS Congress 2026

European Aspergillosis PAG at ERS 2026: from patient to partner

September 8, 2026

Woman checking a steroid emergency card and medical summary while tapering prednisolone

Prednisolone tapering: mood changes, low cortisol and staying safe

September 8, 2026

Infographic explaining the benefits of keeping a health diary for people with aspergillosis, including symptom tracking, identifying triggers, managing brain fog, preparing for medical appointments, monitoring progress and improving self-management.

The Power of Keeping a Health Diary When You Have Aspergillosis

September 3, 2026

Person sitting by a window with a warm drink, reflecting on finding meaning and support while living with chronic illness

When illness changes life: finding meaning and support

August 28, 2026

Older person sitting quietly beside a garden with a book and cup of tea, reflecting on life with aspergillosis.

Making room for life alongside aspergillosis

August 28, 2026

The Thursday Sessions online aspergillosis support meeting, every Thursday at 10 am UK time, illustrated with three people joining from home.

The Thursday Sessions: When Managing Treatment Becomes as Exhausting as Managing Illness

August 27, 2026

Infographic showing the difference between sharing a patient experience, interpreting what happened and giving medical advice.

“It Worked for Me”: How to Use Health Advice from Patient Support Groups

August 24, 2026

The Thursday Sessions online aspergillosis support meeting, every Thursday at 10 am UK time, illustrated with three people joining from home.

The Thursday Sessions: Living with Aspergillosis Day to Day

August 21, 2026

Three people joining a friendly online aspergillosis support meeting from home using a laptop, tablet and phone.

Join our online aspergillosis meetings

August 21, 2026

Infographic comparing 0.9%, 3%, 6% and 7% nebulised saline for mucus clearance and bronchiectasis.

Nebulised saline: what do 0.9%, 3%, 6% and 7% actually mean?

August 20, 2026

Person joining an online support group for people with aspergillosis and other lung conditions.

Finding Extra Support Beyond Aspergillosis: Groups for People with Lung Conditions

August 19, 2026

Electric fan in a home during hot weather with infographic explaining how fans cool the body, when they may be less effective, hydration advice, heat exhaustion symptoms, and guidance for people with aspergillosis and chronic lung conditions.

Electric Fans in Hot Weather: Helpful or Harmful?

August 19, 2026

Clean air and lung health infographic showing ventilation, indoor air quality, pollution, filtration and ways to reduce respiratory exposure outdoors.

Clean Air and Lung Health

August 17, 2026

Person resting quietly on a sofa during a difficult day living with a lung condition

When living with aspergillosis feels especially hard

August 14, 2026

Patient talking with a healthcare professional about support and treatment choices

Complementary therapies and aspergillosis: finding relief without losing sight of treatment

August 13, 2026

Patient receiving a specialist antifungal medicine delivery at home

Getting specialist antifungal medicines delivered to your home: a guide to NHS homecare

August 13, 2026

Illustration of lungs connected to icons representing respiratory research, infection, treatment and patient–clinician partnership

ERS Vision Live

August 11, 2026

Person reducing respiratory infection risk through ventilation, handwashing, vaccination and mask use

Respiratory Infections and Aspergillosis: Reducing Your Risk and Knowing When to Seek Help

August 7, 2026

Older woman wearing gloves and gardening from a stool beside an established raised flower bed.

Gardening Safely With Aspergillosis: Soil, Compost and Mould Exposure

August 6, 2026

Cannabis leaf and dried flower beside an illustration of lungs, with airborne fungal particles between them. Caption: Cannabis can contain fun

Cannabis, Smoking and Aspergillosis: What Patients Need to Know

August 6, 2026

Illustration showing the close communication between the brain, lungs and nervous system, explaining how breathing is influenced by physical, neurological and emotional factors in people living with aspergillosis.

Living with Aspergillosis: Understanding the Brain–Lung Connection

August 6, 2026

HEPA air cleaner, humidity monitor and filtered vacuum cleaner in a clean, ventilated bedroom

Anti-allergen products: what is worth buying?

August 4, 2026

Older woman using oxygen watches a bird in her garden while holding a cup at home.

When chronic illness changes your life: loss, acceptance and finding what still matters

July 23, 2026

Two older women having a supportive conversation over coffee, one wearing oxygen tubing

Why talking to someone who understands can make chronic illness feel more manageable

July 23, 2026

A man and woman sitting together at home in a quiet, supportive conversation.

Adjusting to a lifelong diagnosis: emotional support for people with aspergillosis and those close to them

July 22, 2026

A patient speaking confidently with a healthcare professional while a companion takes notes during an appointment.

Speaking up about your healthcare: self-advocacy and independent advocacy

July 21, 2026

People listening supportively in an aspergillosis peer-support group, with different paths representing individual patient journeys.

Your Story Matters—but It Is Not Someone Else’s Future

July 17, 2026

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