September is Pain Awareness Month in the USA, a month dedicated to raising awareness of the issues surrounding pain and pain management. Chronic pain can be a major problem for aspergillosis patients (though speak to your doctor if the pain is extreme or worsening), and can interfere with you living a full and active life. Often it is difficult to explain hidden symptoms such as pain to doctors, friends and family, which can be frustrating and a barrier to accessing the care you need. The American Chronic Pain Association have therefore put together several resources for both patients and their healthcare professionals, in order to ensure that anyone living with chronic pain can access support for managing and living with pain.
Every Thursday at 11am (UK time), we hold an online video call meeting open to all aspergillosis patients and carers. This means that you can meet others in the aspergillosis community, even if you live too far to travel to local meetings. The group is very friendly and open, and you are free to chat about anything!
To come along and chat with this friendly group of Aspergillus veterans:
Go to https://zoom.us/j/243782379 and follow the instructions – Google Chrome browser works well. You can also dial in by phone using a local number in dozens of countries – to do this click on the link above and then ‘Join audio’ (bottom left) – you can choose from a long list of phone numbers’
The Aspergillosis Trust and its supporters have organised several events and ongoing fundraisers to raise money for the Fungal Infection Trust (FIT). Click on the link below to donate money, keep up to date with fundraising events or even think about organising your own!
On the 26th of March there will be a charity coffee morning held at Dudley Golf Club, in aid of The Aspergillosis Trust. Open to everyone, this event will include stalls selling a variety of goods, including handmade greetings cards, a raffle, and of course, refreshments! Further details can be seen on the poster below:
The NAC patient and carer support meeting is held on the first Friday of every month. The meeting is an opportunity to meet other aspergillosis patients and carers and listen to talks on a wide variety of different subjects. We usually have one main speaker, followed by updates on research and other news from the NAC communications team. There will also be refreshment breaks, so there is ample time to speak to other patients and carers, or staff. The main talk varies widely and can be anything from lifestyle and coping skills (eg. managing stress) to aspergillosis research updates. We will advertise the talks here a week ahead – if you’re more interested in some subjects than others you are more than welcome to just pop in for one talk! To watch previous meetings click here.
Where? Altounyan Suite, Wythenshawe Hospital
When? First Friday of every month 13:00-15:00 (refreshments from 12:30)
Who? NAC patients can attend in person, and anyone can watch and comment online