Patients & Carers meeting February 2017
| Date | Speaker | Title | Time starts | Duration |
| February 2017 | MSc Medical Mycology students | Medical mycology for me and my country | 0'00'00secs | 1'30'00secs |
| Graham Atherton | Health Smartphone App and singing for health | |||
| Led by Graham Atherton | Entire meeting |
Manchester University runs a 1-year taught Masters Degree in Medical Mycology that is available to students from all over the world. As part of their studies we invite them to meet our patients group in order to give them experience of what living with some of the most serious fungal infection is like. The students introduce themselves to the community by each giving a short talk about themselves, their countries and their studies. Given the diversity of the applicats backgrounds there is always a lot of interested discussion after each talk.
The group then discussed the new smartphone APP designed to help diagnose and advise on health symptoms and the impact joining a singing group would have on our health
Resources mentioned:
- Youtube Video of Delsa Ghorbani singing in the Iranian version of X-factor.
- Babylon Smartphone Health APP
- Singing for health (BLF information)
Patients & Carers meeting January 2017
| Date | Speaker | Title | Time starts | Duration |
| January 2017 | Tim Entwistle | Better diet improves our health and is especially useful for those with chronic illness | 0'00'00secs | 1'30'00secs |
| Led by Graham Atherton | Entire meeting (alternate version) |
Tim Entwistle is a researcher working on the impact of a healthy diet on the health of chronically ill people. Tim works in the Heart and Lung Transplant Unit at the University Hospital of South Manchester.
Resources mentioned:
- Benefits of Mediterranean diet for chronic lung disease (British Lung Foundation)
- Mediterranean diet (Patient.info)
- Is garlic an everyday superfood?: the facts (NHS information website)
- A-Z The health benefits of many foods
- European Confederation for Medical Mycology
- Manchester ECMM Centre of Excellence
Patients & Carers meeting December 2016
| Date | Speaker | Title | Time starts | Duration |
| December 2016 | Azad Aziz | Request for patients representative on research project panel | 0'00'00secs | 0'10'38secs |
| Graham Atherton | Christmas quiz 2016 | 0'10'38secs | 0'59'01secs | |
| Graham Atherton | NIHR Clinical Research Centre and ECMM Centre of Expertise | 1'09'39secs | 0'11'33secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
- National Institute for Health Research
- Patient partnering with NIHR
- NIHR bid awarded to Manchester
- European Confederation for Medical Mycology
- Manchester ECMM Centre of Excellence
Patients & Carers meeting November 2016
| Date | Speaker | Title | Time starts | Duration |
| November 2016 | Paul Bowyer | Why do people get ABPA? - our latest research | 0'00'00secs | 0'37'08secs |
| Graham Atherton | Chronic inflammation and mast cells | 0'37'08secs | 0'52'15secs | |
| Led by Graham Atherton | Entire meeting |
Resources mentioned:
Manchester Fungal Infection Group
Patients & Carers meeting October 2016
| Date | Speaker | Title | Time starts | Duration |
| October 2016 | Liz Wilson | Outpatient Parenteral Antimicrobial Therapy (OPAT) | 0'00'00secs | 0'39'45 secs |
| Graham Atherton | Antifungal resistance - change the pauses Mycotoxin slows down cilia |
0'39'45secs | 0'40'15secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
- In-host adaptation and acquired triazole resistance in Aspergillus fumigatus: a dilemma for clinical management.
- Fungal Aflatoxins Reduce Respiratory Mucosal Ciliary Function.
Fungal Infection Trust website
Patients & Carers meeting September 2016
| Date | Speaker | Title | Time starts | Duration |
| September 2016 | Ginny Wall | Breathworks and Mindfulness | 0'00'00secs | 1'08'30secs |
| Graham Atherton | Group projects | 1'08'30secs | 0'24'30secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
Breathworks
- www.breathworks-mindfulness.org.uk
- www.breathworks-mindfulness.org.uk/research
- www.breathworks-mindfulness.org.uk/mindfulness-courses
- www.breathworks-mindfulness.org.uk/online-courses
- Soundcloud.com
Scottish Medicines Consortium https://www.scottishmedicines.org.uk/ National Institute for Health and Care Excellence https://www.nice.org.uk/get-involved/stakeholder-registration James Lind Alliance http://www.jla.nihr.ac.uk/about-the-james-lind-alliance/ James Doubleday Manchester fund http://www.doubledayfund.org.uk/ European Lung Foundation http://www.europeanlung.org/en/
Other relevant information resources
- The Stress Management Society
- NHS Choices: Understanding stress & its management
- 10 stress busters
- Cognitive behavioural therapy
- Kelly McGonigal: How to make stress your friend
- Mindfulness a description by Prof Mark Williams
- BBC Breakfast TV: What can mindfulness do for chronic pain?
- 3 minute breathing space presented by Prof Mark Williams
- Be mindful online resources
Patients & Carers meeting August 2016
| Date | Speaker | Title | Time starts | Duration |
| August 2016 | Graham Atherton | Stress: What is it and how to manage it | 0'00'00secs | 1'00'40secs |
| Chris Harris | Exercise and Breathing | 1'00'40secs | 0'18'30secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
- The Stress Management Society
- NHS Choices: Understanding stress & its management
- 10 stress busters
- Cognitive behavioural therapy
- Kelly McGonigal: How to make stress your friend
- Mindfulness a description by Prof Mark Williams
- BBC Breakfast TV: What can mindfulness do for chronic pain?
- 3 minute breathing space presented by Prof Mark Williams
- Be mindful online resources
Patients & Carers meeting July 2016
| Date | Speaker | Title | Time starts | Duration |
| July 2016 | Graham Atherton | Indoor Air Quality | 0'00'00secs | 0'48'43secs |
| Dr. Karl Heyes and Dr Alexandra Ball | Aspergillosis and Lung transplant: "If my lungs are that bad, why can't I just have a transplant?" | 0'48'43secs | 1'05'00secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
- Stewart Armstrong's daily vlog 'A month in the Life'
- All of Aspergillus Website Youtube video's
- European Lung Foundation (ELF) needs you! TELL US ABOUT YOUR EXPERIENCES OF TRAVELLING BY AIR WITH OXYGEN
- British Lung Foundation on air quality www.blf.org.uk/search/site/air%20quality
- Greenfacts for particulates
- US EPA comprehensive guidelines on air cleaners
- UK Allergy Seal of Approval
- NASA listing of plants that can help remove indoor gasses & odours
- Ventilation advice (UK) www.isse.org.uk
- NHS Blood and Transplant
Patients & Carers meeting June 2016
| Date | Speaker | Title | Time starts | Duration |
| June 2016 | Chris Harris | Funding new antifungals at the NAC | 0'00'00secs | 0'22'30secs |
| David Denning | A summary of all the antifungals in development | 0'22'30secs | 1'04'30secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
How to bolster the antifungal pipeline
Patients & Carers meeting May 2016
| Date | Speaker | Title | Time starts | Duration |
| May 2016 | Jenny Ratner | Patient involvement in Research | 0'00'00secs | 0'50'10secs |
| Graham Atherton | Patient Networking and FIT are 25 | 0'50'10secs | 1'27'15secs | |
| Led by Graham Atherton | Entire meeting (alternate version) |
Resources mentioned:
National Institute for Health Research
James Lind Alliance
Access Pfizer