Nasilele Simukulva: Chronic Pulmonary Aspergillosis
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Nasilele describes her experience of living with CPA after a prior diagnosis of Tuberculosis and then having a severe cough that did not respond to antibiotics. A CT scan identified a fungal ball and she was treated with antifungal medication for 18 months. Nasilele was referred to the National Aspergillosis Centre, UK where a change in antifungal drug was recommended along with surgery to remove the part of the lung that contained the fungal ball. The surgery has cured the fungal infection with a dramatic improvement in symptoms.
Stephen Entwistle: Chronic Pulmonary Aspergillosis
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Stephen describes the difficulties living with Chronic Pulmonary Aspergillosis. He was initially suspected to have Tuberculosis but a year later he was finally referred to the National Aspergillosis Centre, UK. Stephen decribes a strong improvement when on antifungal medication but continued to bleed from his lungs. Bleeding was reduced significantly using a procedure called embolisation. This talk was recorded at the GAFFI meeting in Liverpool in late 2016.
Jacqueline: Chronic Pulmonary Aspergillosis
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Jacqueline lives with Chronic Pulmonary Aspergillosis and this is her story, how she was diagnosed, how she was treated and her experiences while on several different antifungal drugs. Short history: A series of chest infections that stubbornly refused to clear up led to investigation and treatment for Tuberculosis, but after starting to cough up blood Jacqueline was diagnosed with CPA at the National Aspergillosis Centre, UK. The Global Action Fund for Fungal Infections (GAFFI) held a meeting in Liverpool in late 2016 and invited several people living with aspergillosis to tell their stories.
John Guto: Chronic Pulmonary Aspergillosis
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John Guto lives with Chronic Pulmonary Aspergillosis and this is his story. The Global Action Fund for Fungal Infections (GAFFI www.gaffi.org) held a meeting in Liverpool in late 2016 and invited several people living with aspergillosis to tell their stories.
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Getting a grip on pain and the brain: Prof Lorimer Moseley
Getting a grip on pain and the brain - Professor Lorimer Moseley - Successful Ageing Seminar 2013.
Recommended by an aspergillosis patient who lives with chronic pain as helpful in managing your pain.
All day in hospital
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I have Sarcoidosis, Chronic Pulmonary Aspergillosis (CPA) and a very low CD4 count. I have challenged myself to do a daily vlog for 30 days
Follow me on twitter @StewArmstrong
This meeting was for July 2016.