National Aspergillosis Centre (NAC) Patient & Carer Support meeting: July 2021

Our support meetings are informal and designed to provide participants to chat, to ask questions and to listen to some expert opinions on a variety of subjects related to aspergillosis in some way – you can often ask questions too. No-one need go away without their questions having an answer from the NAC team.

This month we had a talk from University of Manchester & Manchester Fungal Infection group (MFIG) researcher Jorge Amich Elias on his research into new ways to treat aspergillosis – this one even has a medication ready to go!

View full Video here

We also had an informative talk on the important subject of Power of Attorney from NAC team member Lauren Amphlett.

See a collection of our meetings going back several years here

National Aspergillosis Centre (NAC) Patient & Carer Support meeting: June 2021

Our support meetings are informal and designed to provide participants to chat, to ask questions and to listen to some expert opinions on a variety of subjects related to aspergillosis in some way – you can often ask questions too. No one need go away without their questions having an answer from the NAC team.

This month we had a talk from National Aspergillosis Centre Team’s Graham Atherton with an update on the COVID pandemic and its implications for aspergillosis patients in the UK, Beth Bradshaw of NAC talks about lung function tests and Chris Harris gives us our weekly exercises for 10 mins.

View full Video here

See a collection of our meetings going back several years here

Recording of Managing Breathlessness talk now available!

Recording from 15 April 2021, when our specialist physiotherapist Phil Langridge gave a talk to our aspergillosis patient and carers support group on breathlessness.

—–Contents of video—-

  • 00:00 Intro
  • 01:05 Meaning of breathlessness
  • 03:19 When to seek help (Safety net)
  • 04:09 Causes of breahlessness
  • 06:53 Things that can be done to help with breathlessness
  • 17:19 Techniques to help with breathlessness – Mechanics
  • 21:44 Techniques to help with breathlessness – Positions for recovery
  • 24:09 Techniques to help with breathlessness – Timing
  • 29:27 Techniques to help with breathlessness – Worry
  • 32:09 Techniques to help with breathlessness – Other
  • 41:04 Take home points
  • 43:16 Q&A

You can read more about managing breathlessness here.

The British Lung Foundation has a wealth of information on breathlessness here. 

Patients meeting November 2018

DateSpeakerTitle
November 2018 Findra Setianingrum The role of Aspergillus Ig G level monitoring in CPA patients with surgery
Megan Bridgeland Help us develop the new patients website
Graham Atherton Help us research a new QoL questionnaire
Click here to view meeting/alternate version/Facebook recording

Resources mentioned:

http://www.nacpatients.org.uk (Old patients website)

https://www.aspergillosis.org (New patients website in development)

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