Patient Stories

MagStar

My name is Maggie Murray from Christchurch, New Zealand. I have 3 beautiful grown daughters and I used to work with young offenders here in Christchurch. However my life dramatically changed when I was exposed to Aspergillus Fumigatus through unfiltered air...

M. Scott Johansen

ABPA & prednisolone I`m 71 year old, male, living south/east in Norway . Since 7 years old I got asthma, which developed later on to chronic obstructive pulmonary lung disease (copd), and have therefore used a lot of prednisolon during the years combined with...

Lisa McNeil

In November 2003 I suffered 2 ectopic pregnancies within weeks of each other, I had been pregnant with twins. The first operation bled the baby that was trapped in my tube (they were trying to save the tube) but unfortunately there was another baby in there and 10...

Kimberley Wendzel

July 16, 2013 Hi I am Kimberly and here is my journey which has just began. Please help me with whatever experience you have because I only know what I have read. In January during my annual check-up my blood work showed that I had hypothyroidism, which ment that my...

Kay A.

I’m a 60 year old gal, diagnosed with asthma since age 2 and ABPA since age 45. I’m pretty sure the ABPA dates back to age 30, though, because that’s when I started having recurrent atelectasis, once or twice a year. Usually I could clear it by myself, with some...

John Bradley

This is my Aspergillus story, told using my posts on the Aspergillus Forum. It stands as a pretty accurate diary and guide to how the diagnosis and treatments have made me feel. Monday, September 22, 2008 8:00 PM Hi, I'm also new to the group and am very fortunate...

Joan Becker – Xolair

This is my story about Xolair. I have been on it for about 6 years. In 2003 I was seen at National Jewish in Denver. At the time it was suggested that perhaps it might help with my Aspergillus even though that is an off label use. My pulmonologist was willing to try...

The day I got told I am going to die

Friday 13th March 2015 was the day I got told I was going to die. Today makes 2 years since that day. If you are new to my channel a bit about me. My name is Stewart Armstrong I have Sarcoidosis, Chronic Pulmonary Aspergillosis (CPA) and a very low CD4 count. I...

Nasilele Simukulva: Chronic Pulmonary Aspergillosis

Nasilele describes her experience of living with CPA after a prior diagnosis of Tuberculosis and then having a severe cough that did not respond to antibiotics. A CT scan identified a fungal ball and she was treated with antifungal medication for 18 months. Nasilele...