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News & Updates

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The NAC CARES team (Graham, Chris, Beth & Lauren) keep track of all the latest aspergillosis related medical and scientific happenings and bring together the most important bits in our blog and newsletter. We write them in non-technical language.

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Blog Articles

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Leaflets

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A guide to CPA

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A guide to ABPA

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A guide to Aspergillus Bronchitis

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A guide to SAFS

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A guide to Allergic Fungal Sinusitis

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A guide to…

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Videos

Browse our Youtube channel containing all our patients’ support meetings and other talks here

[/et_pb_text][/et_pb_column][/et_pb_row][/et_pb_section][et_pb_section fb_built=”1″ module_id=”ext-links” _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”5px||146px|||” global_colors_info=”{}”][et_pb_row _builder_version=”4.18.0″ _module_preset=”default” custom_margin=”3px|auto||auto||” custom_padding=”23px|0px|1px|0px|false|true” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.18.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.18.0″ _module_preset=”624b8eae-e2e0-40f4-a48e-83d57e3006b6″ global_colors_info=”{}”]

External links

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The NAC, together with colleagues at the University of Manchester Fungal Research Group (MFIG) work alongside the Fungal Infection Trust (FIT). Click for more about FIT.

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In order to claim government help for living with a disability you will have to complete a disability assessment. We have gathered tips from those who have been through the process.

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If you have concerns with how your aspergillosis is being managed, or questions about its treatment, you may need an independent advocate to help express your wishes.

[/et_pb_blurb][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_margin=”|auto|-6px|auto||” custom_padding=”23px|0px|1px|0px|false|true” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”John Guto: Chronic Pulmonary Aspergillosis” url=”https://youtu.be/P-1dhjK7qrY” url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/YouTube-Logo.wine_-e1668437645901.png” _builder_version=”4.18.0″ _module_preset=”default” image_icon_custom_margin=”||-15px||false|false” custom_margin=”||26px|||” global_colors_info=”{}”]

John Guto lives with Chronic Pulmonary Aspergillosis and this is his story. .

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In order to claim government help for living with a disability you will have to complete a disability assessment. We have gathered tips from those who have been through the process.

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If you have concerns with how your aspergillosis is being managed, or questions about its treatment, you may need an independent advocate to help express your wishes.

[/et_pb_blurb][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_margin=”|auto|-6px|auto||” custom_padding=”23px|0px|1px|0px|false|true” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”Nasilele Simukulva: Chronic Pulmonary Aspergillosis” url=”https://youtu.be/tMhitjhXiB4″ url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/YouTube-Logo.wine_-e1668437645901.png” _builder_version=”4.19.1″ _module_preset=”default” image_icon_custom_margin=”||-18px||false|false” custom_margin=”||-15px|||” custom_padding=”||5px|||” global_colors_info=”{}”]

John Guto lives with Chronic Pulmonary Aspergillosis which followed on from Tuberculosis. This is his story.

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Woodrow Maitland tells his experience of having aspergillosis. Like most people he hadn’t heard of aspergillosis until he was finally diagnosed and treated at the NAC.

[/et_pb_blurb][/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”Patients experience with 3 antifungals” url=”https://youtu.be/NXp4J_2Ss3M” url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/YouTube-Logo.wine_-e1668437645901.png” _builder_version=”4.18.0″ _module_preset=”default” image_icon_custom_margin=”||-18px||false|false” custom_margin=”||-69px|||” custom_padding=”||0px|||” border_color_bottom_image=”#FFFFFF” global_colors_info=”{}”]

Patient DW with childhood asthma and ABPA, describes his experience with 3 different azole antifungal drugs and showed an improvement when taking posaconazole.

 

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I am trying to raise as much awareness as possible for two diseases I have Sarcoidosis and Aspergillosis and you can all help me achieve my goal.

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Simple steps to help loosen phlegm in the lungs and easily produce sputum samples for testing in the clinic. (For aspergillosis patients or anyone with respiratory illnesses.)

[/et_pb_blurb][/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”Breaking thought cycles through mindfulness” url=”https://youtu.be/djnN73GdW7c” url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/TED-logo.png” _builder_version=”4.18.0″ _module_preset=”default” image_icon_custom_margin=”||-21px||false|false” custom_margin=”||-25px|||” custom_padding=”||0px|||” border_color_bottom_image=”#FFFFFF” global_colors_info=”{}”]

Psychiatrist Judson Brewer shares ground-breaking research on the mechanism of mindfulness practices that effectively help quell cravings of all kinds, including smoking.

[/et_pb_blurb][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_margin=”|auto|-6px|auto||” custom_padding=”23px|0px|1px|0px|false|true” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”Catherine survived acute invasive aspergillosis” url=”https://youtu.be/dIJK4GduS7g” url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/YouTube-Logo.wine_-e1668437645901.png” _builder_version=”4.18.0″ _module_preset=”default” image_icon_custom_margin=”||-18px||false|false” custom_margin=”-21px||-44px||false|false” custom_padding=”0px||20px|||” global_colors_info=”{}”]

Video interview with Catherine who developed severe invasive aspergillosis, following a kidney transplant, but was successfully treated with antifungal drugs.

[/et_pb_blurb][/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”Patient DW: Asthma & ABPA” url=”https://youtu.be/4XyOwy4eiOc” url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/YouTube-Logo.wine_-e1668437645901.png” _builder_version=”4.18.0″ _module_preset=”default” image_icon_custom_margin=”-22px||-18px||false|false” custom_margin=”||-38px|||” custom_padding=”||10px|||” global_colors_info=”{}”]

Video interview with this patient with childhood asthma and ABPA. After persistent chest infections and continuous steroids and a bad productive cough, Aspergillus was cultured from sputum in 2002.

[/et_pb_blurb][/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”Patient HM: Asthma & ABPA” url=”https://youtu.be/2Mi2qoaVwBM” url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/YouTube-Logo.wine_-e1668437645901.png” _builder_version=”4.18.0″ _module_preset=”default” image_icon_custom_margin=”-22px||-18px||false|false” custom_margin=”||-25px|||” custom_padding=”||12px|||” border_color_bottom_image=”#FFFFFF” global_colors_info=”{}”]

Video interview with patient with childhood asthma and ABPA, who showed a marked improvement in her ABPA and asthma when she commenced nebulised Amphotericin B.

[/et_pb_blurb][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_margin=”|auto|-6px|auto||” custom_padding=”23px|0px|1px|0px|false|true” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”Long-term ABPA patient” url=”https://youtu.be/e05wNLw8HsM” url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/YouTube-Logo.wine_-e1668437645901.png” _builder_version=”4.18.0″ _module_preset=”default” image_icon_custom_margin=”-22px||-15px||false|false” custom_margin=”||3px|||” custom_padding=”||3px|||” global_colors_info=”{}”]

Video Interview with long-term ABPA patient who coughed up large sputum plugs.

[/et_pb_blurb][/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”Patient with CPA who developed azole resistance” url=”https://youtu.be/T4j1jxIXEiw” url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/YouTube-Logo.wine_-e1668437645901.png” _builder_version=”4.18.0″ _module_preset=”default” image_icon_custom_margin=”-22px||-18px||false|false” custom_margin=”||-13px|||” global_colors_info=”{}”]

Patient with an aspergilloma and chronic pulmonary aspergillosis, diagnosed after coughing up blood later developed azole resistance on voriconazole

[/et_pb_blurb][/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.18.0″ _module_preset=”default” custom_padding=”30px|30px|30px|30px|true|true” box_shadow_style=”preset1″ global_colors_info=”{}”][et_pb_blurb title=”CPA patient on long-term antifungals” url=”https://youtu.be/yZN8nqsr8KE” url_new_window=”on” image=”https://aspergillosis.org/wp-content/uploads/2022/11/YouTube-Logo.wine_-e1668437645901.png” _builder_version=”4.18.0″ _module_preset=”default” image_icon_custom_margin=”-23px||-15px||false|false” custom_margin=”||-13px|||” border_color_bottom_image=”#FFFFFF” global_colors_info=”{}”]

This patient RW- with long term chronic pulmonary aspergillosis describes his experiences over 18 years during which he has taken various antifungal treatments.

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November 18, 2022By GAtherton