Living with aspergillosis can affect much more than the lungs. Fatigue, breathlessness, treatment, medical appointments and uncertainty can influence work, family life, relationships, exercise, travel, mood and everyday routines.
Managing a long-term condition is not only about medical treatment. Learning how to pace activities, stay active where possible, manage symptoms, look after emotional wellbeing and adapt everyday life can all form part of living well with aspergillosis.
This hub brings together practical information about daily life with aspergillosis, including activity and exercise, fatigue and pacing, work, sleep, diet and nutrition, relationships, emotional wellbeing, travel, environmental issues and experiences shared by other patients and families.
Topics in This Hub
Latest Living With Aspergillosis Articles
Why does someone with chronic disease feel so tired?
August 8, 2022
The importance of detecting cancer early
July 8, 2022
Aspergillosis and Fatigue
June 20, 2022
Singing for lung health
May 24, 2022
Monkeypox outbreak
May 23, 2022
Drug Induced Photosensitivity
May 9, 2022
Medical Alert Paraphernalia
February 21, 2022
Advice for patients on long-term steroid treatment
February 21, 2022
Adrenal insufficiency
February 4, 2022
Differences between ABPA and CPA
January 5, 2022
The importance of microbiomes
December 16, 2021
Grieving for the life you once had
December 10, 2021
Vaccine Types
November 22, 2021
Vitamin D supplements
November 3, 2021
Walk and paint yourself back to health & wellbeing
October 14, 2021
Antifungal Drug Pipeline
October 8, 2021
Is it COVID or just a cold?
September 24, 2021
World Sepsis Day 2021
September 13, 2021
Aspergillosis and Depression: A Personal Reflection
September 1, 2021
Therapeutic drug monitoring (TDM)
August 9, 2021
Palliative Care – Not What You Might Think
June 15, 2021
How to exercise with aspergillosis
May 5, 2021
COVID Vaccination Side Effects
April 26, 2021
How to manage breathlessness
April 23, 2021
Indoor Air Quality at Home (NHS guidelines )
April 12, 2021
COVID Vaccination – hesitating?
February 24, 2021
What is an MDT?
February 17, 2021
Aspergillosis Monthly Patient & Carer Meeting
February 5, 2021
World Aspergillosis Day 2021
February 2, 2021
World Aspergillosis Day, 1 February 2021
January 28, 2021
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