Ukuzulazula ku-rollercoaster yesifo esingelapheki kuyinto eyingqayizivele futhi evame ukuhlukanisa. Uhambo olungagcwaliswa ngokungaqiniseki, ukubonwa njalo esibhedlela, kanye nokufuna okungapheli kokubuyela esimeni esijwayelekile. Lokhu kuvame ukuba yiqiniso kubantu abanezifo ezingapheli zokuphefumula, njenge-aspergillosis.
Kulo mbhalo, u-Evelyn uqala uhambo lokuzindla, elandisa ngokuvela kokugula kwakhe kusukela ekuxilongweni kwasebuntwaneni kuze kube namuhla, umugqa wesikhathi obonakala nge-cystic bronchiectasis enzima yamazwe amabili eyaba nzima ukubunjwa kwe-aspergillus kanye ne-scedosporium engajwayelekile kakhulu. Ku-Evelyn, ukugcina idayari, ukuphawula izimpawu, izifo, namasu okwelapha kube yindlela yokwenza umqondo wokungabikezeli kwempilo yakhe. Lo mkhuba, owafakwa eminyakeni edlule ngumeluleki ocabanga phambili, weqa ukusetshenziswa kwawo okungokoqobo, uguqukela ekubeni ithuluzi elibalulekile lokuhlomisa isiguli kanye nokuzimelela.
Lapho esesha iwebhu ukuze athole usizo lokucwenga idayari yakhe yezimpawu, u-Evelyn wahlangana nephepha elinesihloko esithi: I-Bronchiectasis Exacerbation Diary. Leli phepha laliyisambulo sohlobo oluthile. Kukhanyisele izici ezivame ukunganakwa zokuhlangenwe nakho kwesiguli futhi kwaqinisekisa izimpawu ezivame ukungaqondakali u-Evelyn abhekana nazo. Kuwubufakazi bamandla ocwaningo olugxile esigulini kanye nomthelela wokubona isipiliyoni esiphilayo esivunywa ezincwadini zesayensi.
Ukucabangisisa kuka-Evelyn ngezansi kuyisikhumbuzo semithelela ebanzi yokugula okungalapheki ekuphileni kwansuku zonke kanye nesidingo sokuzivumelanisa nendlela yokuphila yansuku zonke.
Njengomphumela wengxoxo noLauren muva nje mayelana nokusetshenziswa kwedayari/ijenali yezimpawu, ngihlangane nephepha elishicilelwe ku-inthanethi, 'I-Bronchiectasis Exacerbation Diary'. Ngitholwe ngiseyingane nginesifo sokuphefumula esingamahlalakhona esiqhubeke impilo yami yonke, ngine-cystic bronchiectasis enzima yamazwe amabili ene-colonization ye-aspergillus kanye nesikhunta esingandile, i-scedosporium.
Sekuyisikhathi eside ngijwayele ukugcina amanothi ezimpawu/ukutheleleka/ukwelashwa, njengoba ngikhuthazwe ukwenza kanjalo, eminyakeni eminingi edlule, ngomeluleki ukuze kube lula ukubhekisela kuma-aphoyintimenti. Ugcizelele ukuthi ukwelapha izifo kufanele kuncike emphumeleni wesiko lesikhwehlela nokuzwela hhayi ngendlela “ye-roulette yaseRussia”, njengoba abiza ama-antibiotic abanzi; ngaphandle kokwazi ukuthi hlobo luni lokutheleleka oluhilelekile. Ngiyabonga, udokotela wami wabambisana naye, njengoba ngaleso sikhathi amasiko ayengeyona inkambiso. (Ngangesaba ukuthola udumo njengesiguli se-bolshie!)
Ukufunda iphepha elishiwo ngenhla kwaba isambulo. Kuhlanganise izinhlobonhlobo zezimpawu engiba nazo nsuku zonke, ngisho nezimpawu engangizizwa zingafaneleki ukuzisho lapho ngibonisana nomtholampilo. Ngaphezu kwalokho, ngazizwa ngiqinisekisiwe.
Kuke kwaba nezikhathi, nakuba kungavamile, lapho ngike ngazingabaza, akubangakho lapho omunye umtholampilo ethi ngine-psychosomatic. Leli bekuyiphuzu lami eliphansi kakhulu. Ngokujabulisayo, ngemva kwalokhu ngadluliselwa kudokotela wokuphefumula esibhedlela iWythenshawe okwathi lapho isiko elithile libonisa i-aspergillus, wangidlulisela ekunakekelweni kukaProfesa Denning; njengoba bethi "wonke amafu anomugqa wesiliva". Ngaphambilini u-Aspergillus wayeke watholakala endaweni yesiko kwesinye isibhedlela ngo-1995/6, kodwa akazange aphathwe ngendlela ayephathwa ngayo e-Wythenshawe.
Akuzona kuphela izimpawu zansuku zonke ezicatshangelwe esihlokweni, kodwa futhi nomthelela osheshayo okuhlangenwe nakho kweziguli ekuphileni kwansuku zonke. Futhi, ngomqondo obanzi, umthelela ojwayelekile ezimpilweni zethu kanye nokulungiswa sonke esibhekana nakho ekubhekaneni nakho - konke engingakwazi ukukubona kalula empilweni yami.
Ngazizwa ngikhuthazekile ngokufunda leli phepha njengoba naphezu kwazo zonke izinhlobo ezahlukene zamapheshana olwazi lwesiguli engiwafunde eminyakeni edlule, awekho ayephelele kangako.