The Iqembu leNational Aspergillosis Center Support ku-Facebook inamalungu angu-2700 kusukela ngoJuni 2023, futhi iqukethe abantu abanezinhlobo ezihlukahlukene ze-aspergillosis. Abaningi bazoba ne-Allergic Bronchopulmonary Aspergillosis (ABPA), abanye bazoba ne-Chronic Pulmonary Aspergillosis (CPA) kanti abambalwa bazoba ne-Asthma Enzima ene-Fungal Sensitivity (SAFS) izincazelo zayo ezingatholakala. kwenye indawo kule webhusayithi.
I-Facebook isivumela ukuthi senze ukuvota ngezikhathi ezithile ukuze sizame ukufunda kulesi sixuku esikhulu sabantu, futhi sethula lapha okunye esikufundile:
Umsebenzi weNational Aspergillosis Centre CARES Team (NAC CARES) unamuphi umthelela ezimpilweni zeziguli zethu?
Kule nhlolovo, sikhethe ukubuza labo bantu abasebenzisa i- Izinsiza zokusekela ze-NAC CARES (okungukuthi, i-aspergillosis.org, imihlangano yamasonto onke, imihlangano yanyanga zonke, amaqembu asekelayo e-Facebook, namaqembu olwazi lwe-Telegram) ukuze bacabange nganoma yiluphi ushintsho empilweni yabo ngaphambi nangemva kokuthola lezo zinsiza. Sizophinda lo msebenzi ngezikhathi ezithile ukuze sihlole noma yiziphi izinguquko ngokuhamba kwesikhathi njengoba senza izinguquko ukuze sizame ukuthuthukisa ukunakekelwa kwesiguli.
I-15th February ngo-2023
Kuyacaca masinyane kule Nhlolovo ukuthi iningi labantu abaphendulile bebenethemba elikhulu ngokusebenzisa ukwesekwa kwe-NAC CARES. Ama-57/59 (97%) aphendule kahle. Lokhu kungase kube umphumela ochemile futhi abantu abambalwa abangazitholi ziwusizo lezi zinsiza abangazisebenzisa ukuvota!
Izinzuzo eziyinhloko ezigulini zokusebenzisa ukwesekwa kwe-NAC CARES kubonakala sengathi:
- Qonda kangcono i-aspergillosis
- Zizwe unamandla okulawula
- Ukukhathazeka okungaphansi
- Ukusekelwa komphakathi
- Ubudlelwano obungcono bokusebenza nodokotela
- Phatha i-QoL kangcono
- Ngaphansi kwedwa
Kwabanye ingxenye ethile yokwesekwa kwe-NAC CARES kwabenza bazizwa kabi kakhulu (2/59 (3%)), futhi siyazi ukuthi akuwona wonke umuntu ofuna ukwazi okwengeziwe ngesimo sakhe sezokwelapha, mhlawumbe akhethe ukuvumela ithimba labo lezokwelapha lisilawule ngaphandle kokubandakanya ngokwabo? Uma kuyiqiniso, lokho kuwumphumela obalulekile futhi kudingeka siwuhloniphe lowo mbono, kodwa futhi sizame ukuhlonza ukuthi singababandakanya kanjani kangcono laba bantu ekuphatheni ukunakekelwa kwezempilo kwabo siqu njengoba kutholakala ukuthi lokhu kuthuthukisa imiphumela yesiguli. https://www.patients-association.org.uk/self-management.