Amaqembu okusekela nemihlangano
Ukuxilongwa okusha kwe-aspergillosis kungakwenza uzizwe wesaba futhi uhlukanisiwe. Cishe unemibuzo eminingi futhi awunaso isikhathi esanele nomxhumanisi wakho ukuze yonke iphendulwe. Njengoba isikhathi siqhubeka ungase ukuthole kududuza ukukhuluma nezinye iziguli 'eziyitholayo' kunokuthembela kozakwethu kuphela, abangani nomndeni.
Ukwesekwa kontanga kuyithuluzi elibalulekile uma kutholakala ukuthi unesifo esingandile njenge-aspergillosis. Kungakusiza ukuthi ubone ukuthi awuwedwa futhi kukunikeze indawo yokuqonda ukuveza imizwa nokukhathazeka. Iziguli eziningi eziya emaqenjini ethu okusekela seziphila nalesi sifo isikhathi eside, futhi zivame ukwabelana ngolwazi lwazo namathiphu omuntu okuphila ne-aspergillosis.
Imihlangano Yamasonto onke Yamaqembu
Sibamba izingcingo zamaQembu zamasonto onke ezineziguli ezingaba ngu-4-8 kanye nelungu labasebenzi be-NAC isonto ngalinye. Ungasebenzisa ikhompuyutha/ikhompyutha ephathekayo noma ifoni/ithebhulethi ukujoyina ikholi yevidiyo. Zimahhala, zinamagama-ncazo futhi wonke umuntu wamukelekile. Kuyithuba elihle lokuxoxa nezinye iziguli, abanakekeli kanye nabasebenzi be-NAC. Le mihlangano iqhutshwa njalo NgoLwesibili 2-3pm futhi njalo ngoLwesine 10-11am.
Ukuchofoza i-infographics engezansi kuzokuyisa ekhasini le-eventbrite lemihlangano yethu, khetha noma iyiphi idethi, chofoza amathikithi bese ubhalisa usebenzisa i-imeyili yakho. Uyobe usuthunyelwa i-imeyili isixhumanisi samaQembu nephasiwedi ongayisebenzisela yonke imihlangano yethu yamasonto onke.
Umhlangano wanyanga zonke wamaQembu
NgoLwesihlanu wokuqala nyanga zonke kuba nomhlangano wamaQembu osemthethweni weziguli nabanakekeli abaphethwe yi-aspergillosis ophethwe ngabasebenzi e-National Aspergillosis Centre.
Lo mhlangano uqala ngo-1-3pm futhi uhlanganisa izethulo ngezihloko ezihlukahlukene futhi simema izingxoxo/imibuzo ezigulini nakubanakekeli.
Ukuze uthole imininingwane yokubhalisa neyokujoyina, vakashela:
https://www.eventbrite.com/e/monthly-aspergillosis-patient-carer-meeting-tickets-484364175287
Facebook Support Groups
Ukwesekwa Kwesikhungo Sikazwelonke Se-Aspergillosis (UK)
Leli qembu labasekeli, elakhiwe ithimba leNational Aspergillosis Centre CARES, linamalungu angaphezu kuka-2000 futhi liyindawo ephephile yokuhlangana nokuxoxa nabanye abantu abane-aspergillosis.
Amavolontiya ocwaningo lwe-CPA
I-National Aspergillosis Centre (Manchester, UK) idinga amavolontiya anesineke nabanakekeli abane-Chronic Pulmonary Aspergillosis ukuze basekele amaphrojekthi ayo ocwaningo manje nasesikhathini esizayo. Lokhu akugcini nje ngokunikela ngegazi elithile emtholampilo, kumayelana nokuzibandakanya kuzo zonke izici zocwaningo lwethu - bheka https://www.manchesterbrc.nihr.ac.uk/public-and-patients/ Manje sisemhlabeni lapho singeke sithole uxhaso oluthile lwezimali ngaphandle kokuba iziguli nabanakekeli babandakanywe kuzo zonke izigaba. Uma sinamaqembu eziguli asebenzayo kwenza izicelo zethu zoxhaso zibe yimpumelelo. Sisize sithole uxhaso olwengeziwe ngokujoyina leli qembu. Okwamanje sidinga kuphela iziguli nabanakekeli abavela e-UK ukuze bazinikele ngokuzithandela, kodwa wonke umuntu angajoyina njengoba esikhathini esizayo lokhu kungase kushintshe. Sesivele sisebenzisana ne-Skype ukuze sikwazi ukukhuluma njalo namavolontiya avela kuzo zonke izingxenye ze-UK.
yocingo
