Abaningi bethu bayobe bejwayelene nenqubo yosizi ngemva kokushona kothandekayo, kodwa ingabe uye waqaphela ukuthi inqubo efanayo ivame ukwenzeka lapho kutholakala ukuthi unesifo esingelapheki njenge-aspergillosis? Kunemizwa efanayo yokulahlekelwa:- ukulahlekelwa ingxenye yempilo yakho, ukulahlekelwa umuntu owawunguye, ukulahlekelwa ukuzimela kanye nokungaqiniseki ngekusasa.

1. Ukulahlekelwa yimpilo: Ukuxilongwa kwesifo esingamahlalakhona kuvame ukusho ukubhekana neqiniso lokuphila nesimo esizoba nomthelela empilweni yakho engokomzimba kanye nasemoyeni. Lokhu kulahlekelwa kwempilo kungaba okuphawulekayo futhi kungase kudinge ukuthi ulungise indlela yakho yokuphila, izinqubo zansuku zonke, kanye nalokho okulindele esikhathini esizayo. Ukuzivumelanisa 'nokujwayelekile okusha' kunzima kwabanye. Nge-aspergillosis iningi lisho ukuthi amandla aphelelwa amandla ngokushesha okukhulu njengoba usuku ngalunye luqhubeka, ngakho kufanele bahlele ukonga amandla njalo ekuseni.
2. Izinguquko kubunikazi: Ukugula okungamahlalakhona kungathinta indlela ozibheka ngayo nendlela abanye abakubona ngayo. Kungase kudinge ukuthi bachaze kabusha ubunjalo babo, izindima, nobudlelwano, okungaba inqubo eyinselele futhi ebangela usizi. Kobunye ubudlelwano bakho obuseduze, kungase kube nenqubo yokudabuka okufanele badlule kuyo.
3. Ukulahlekelwa ukuzimela: Ngokuya ngobunzima be-aspergillosis yakho, abantu ngabanye bangase balahlekelwe ukuzimela njengoba bethembele kwabanye ukuze bathole usizo ngemisebenzi yansuku zonke, ukunakekelwa kwezokwelapha, noma ukuhamba. Lokhu kulahlekelwa kungaholela emizweni yokukhungatheka nokudabuka. Lokhu kuphinde kube nomthelela kubantu abahlala eduze kwakho, isib. oshade naye noma uphathina wakho, njengoba kufanele futhi bamukele ushintsho endimeni yakho. Ukulahlekelwa ukuzimela kungaba ngokomzwelo, ngokomzimba nangokwezimali.
4. Ukungaqiniseki ngekusasa: I-Aspergillosis ayelapheki njengamanje (nakuba abambalwa abane-aspergilloma bengase babe nokukhetha ukuhlinzwa) futhi kuhilela ukuphathwa okuqhubekayo nokungaqiniseki ngokuqhubeka kwesifo, ukuphumelela kokwelashwa, kanye nemiphumela yesikhathi eside. Lokhu kungaqiniseki kungabangela imizwa yokukhathazeka, yokwesaba, nosizi ngekusasa.
5. Umthelela womphakathi nemizwa: Ukugula okungamahlalakhona kungathinta ubudlelwano, ukuxhumana nabantu, kanye nempilo engokomzwelo. Ungahle uzizwe uhlukanisiwe njengoba iziguli eziningi zichaza ukungalalelwa noma ukuqondwa abangani nomndeni. Wena kanye nabantu osondelene nabo ningahle nikhale ngenxa yokulahlekelwa ukuxhumana nomphakathi, izinhlelo zokusekela, noma ikhono lokubamba iqhaza emisebenzini abake bayijabulela.

Kubalulekile ukuthi abantu abatholakala benesifo esingamahlalakhona bavume futhi baqinisekise imizwa yabo yosizi futhi bafune ukusekelwa kubahlinzeki bezempilo, abathandekayo, amaqembu asekelayo, noma ochwepheshe bezempilo yengqondo njengoba kudingeka. Ukukhuluma nokucubungula usizi kungasiza abantu ukuthi babhekane nokuxilongwa kwabo, bajwayele impilo enesifo esingamahlalakhona, futhi bathole injongo nenjongo naphezu kwezinselele abangase babhekane nazo. Ukwehluleka ukubhekana kahle nenqubo yokulila kungaholela ekuwohlokeni kwendlela yokuphila nokucindezeleka.

Ungasiphatha kanjani isifo esingelapheki nosizi?
Ukulawula usizi ngemva kokuxilongwa kwesifo esingamahlalakhona kungaba inqubo eyinkimbinkimbi futhi eqhubekayo, kodwa kunamasu amaningana angasiza abantu ukuba babhekane nesimo futhi balungise iqiniso labo elisha. Nazi ezinye iziphakamiso:

1. Vuma futhi uqinisekise imizwa yakho: Zivumele ukuthi uvume futhi uveze imizwa yakho, noma ngabe ukudabuka, intukuthelo, ukwesaba, noma ukukhungatheka. Khumbula ukuthi usizi luyimpendulo yemvelo ekulahlekelweni, futhi kulungile ukuzwa uhla lwemizwa, eminye yayo engahle ibe yinto engalindelekile kuwena nakulabo abasondelene nawe kakhulu.
2. Funa usekelo: Ungangabazi ukufinyelela abangani, amalungu omndeni, amaqembu okusekela, noma ochwepheshe bezempilo yengqondo ukuze uthole ukwesekwa nokuqonda (kanye nemithi noma okunye ukwelashwa uma kudingeka). Ukukhuluma nabanye abaye babhekana nezinselele ezifanayo kungaqinisekisa futhi kunikeze ukuqonda okubalulekile namasu okubhekana nawo. I-National Aspergillosis Centre eManchester, e-UK ineqoqo lamaqembu amatasa asekela abantu abanazo zonke izinhlobo ze-aspergillosis (I-Aspergillosis ye-Pulmonary Engapheli (CPA), I-Aspergillosis ye-Alergic Bronchopulmonary (ABPA), Acute I-Aspergillosis engavamile (I-AIA noma i-IA), I-Asthma Enzima Ngokuzwela Isikhunta (SAFS), I-Aspergillus bronchitis futhi nokuningi. Amaqembu okusekela ayatholakala nge I-Facebook neTelegram bese ufaka Amaqembu enkomfa ngevidiyo kabili ngeviki. Kula maqembu, ungahlangana nezinye iziguli osekuyiminyaka eminingi ziphila ne-aspergillosis futhi ezivuleleke kakhulu futhi ezinobungane kanye nabasebenzi be-NAC nganoma imiphi imibuzo ongase ube nayo.
3. Zifundise: Funda okuningi ngangokunokwenzeka mayelana nesimo sakho, izinketho zokwelashwa, namasu okuzinakekela. Ukuqonda isifo sakho nokuthi ungasiphatha kanjani kungakusiza uzizwe unamandla futhi ulawula impilo yakho. I-National Aspergillosis Centre isebenzisa iwebhusayithi efundisayo ukusiza ukukuqondisa emithonjeni engcono kakhulu yolwazi aspergillosis.org.
4. Yakha inethiwekhi yosekelo: Uma ukwazi, zihlanganise nabangane nomndeni abasekelayo nabaqondayo abangakunikeza usizo olungokoqobo, ukusekela okungokomzwelo nesikhuthazo. Ukuba nenethiwekhi yokwesekwa eqinile kungenza umehluko omkhulu ekubhekaneni nesifo esingamahlalakhona. Ngezinye izikhathi usizo lochwepheshe olungachemile oluvela kumeluleki lungaba nenzuzo lapho wenza izinqumo.
5. Zinakekele: Beka kuqala ukuzinakekela futhi wenze ukuphila kwakho ngokomzimba nangokomzwelo kube yinto eza kuqala. Lokhu kungase kuhlanganise ukuphumula ngokwanele, ukudla ukudla okunomsoco, ukuvivinya umzimba njalo (ngokufanelekile), ukuprakthiza amasu wokuphumula, kanye nokuthola imisebenzi ekulethela injabulo nokwaneliseka.
6. Zibekele imigomo engokoqobo: Lungisa okulindele futhi uzibekele imigomo engokoqobo ngokusekelwe emakhonweni akho amanje kanye nemikhawulo. Hlukanisa imigomo emikhulu ube yizinyathelo ezincane, ezilawulekayo, futhi ubungaze izimpumelelo zakho njengoba usaqhubeka. Iziguli eziningi zithola ukuthi kuyasiza ukudlula usuku kangcono uma zisebenzisa ithiyori ye-spoon ukuphatha kangcono inani lamandla abangaba nawo usuku ngalunye.
7. Prakthiza ukucabangela nokwamukela: Practice amasu okucabanga, njengokuphefumula okujulile, ukuzindla, noma ukuvivinya ingqondo, ukukusiza ukuthi uhlale ugxilile futhi ukhona ngaleso sikhathi. Ukwamukela akusho ukulahla ithemba, kodwa kunalokho ukuvuma nokwamukela iqiniso lakho lamanje ube ugxile kulokho ongakwazi ukukulawula.
8. Funa usizo lochwepheshe uma kudingeka: Uma unenkinga yokubhekana nosizi, ukukhathazeka, ukudangala, noma okunye okukukhathazayo ngempilo yengqondo, ungangabazi ukufuna usizo kumuntu uchwepheshe wezempilo yengqondo. Ukwelashwa kunganikeza indawo ephephile yokuhlola imizwa yakho, ukuthuthukisa amasu okubhekana nesimo, futhi uthole ukwesekwa.

Khumbula ukuthi ukuphatha usizi nokulungisa impilo enesifo esingalapheki kuwuhambo, futhi kulungile ukufuna usizo nokwesekwa endleleni. Yiba nesineke kuwe, zijwayeze ukuzihawukela, futhi uthathe izinto usuku olulodwa ngesikhathi.

Okuhlangenwe nakho okuphilayo kusuka ku-Alison

Okokuqala, kungase kudingeke sichaze ukuthi Usizi luyini..

Sisebenzisa igama usizi kodwa kuyini ukuqonda kwethu ngakho? Ngicabanga ukuthi incazelo nokuqonda kuyashintsha njengoba sibhekana nobunzima bempilo obuningi. Enye yezincazelo ezisetshenziswayo ithi “Iwebhu ephithene yemizwa”. Intukuthelo, usizi, ukudumala, izinyembezi, ukukhungatheka, ukulahlekelwa ukuthi ungubani, ukushintshashintsha kwemizwelo, ukudideka, ukucindezeleka, ukwesula. Uhlu cishe alupheli futhi alukho kunoma yikuphi ukuhleleka okuhle noma ukuqhubeka kwesikhathi.

Esinye isici ekucabangeni kwethu siwukuthi unecala, okunye kwakho okuvezwa ukwamukela kwethu nokunamathela kulokho osekuphenduke “imikhuba yezenhlalo”. Kubonakala sengathi kukhona ukuphika ukungagwemeki kokufa nokuwohloka kwemizimba yethu yenyama. Ngakho-ke lapho lezi zici ziba sobala kakhulu ezimpilweni zethu zansuku zonke sifuna futhi silindele ukukwazi ukuzilungisa futhi sigweme imiphumela. Uma lokhu kungenzeki, siba lusizi &/noma sizizwe sinecala ngokuthi asikwazi ukufeza lokho esikulindele Ngakho-ke kudingeka “Lucubungula Usizi lwethu” kodwa futhi; isho ukuthini leyo nkulumo?

Kuwo wonke umuntu, kuzothatha izinhlobo ezahlukene ngoba zonke izimo zihlukile kulowo muntu. ubudlelwano obuhilelekile, izinga lesifo, ukuthi sibonakala kanjani, nokuthi siqhubeka kanjani. Indlela esikubheka ngayo ukuphila. Ukucubungula Usizi lwethu kudinga isiyalo esinzima sokubheka ukuthi ziyini izinkolelo zethu eziyinhloko ekuphileni, yini ukulahlekelwa kanye nokususa leyo mibono isuke 'elwazini olusekhanda' iye 'ekwamukeleni inhliziyo' kanye nokulungisa imithelela nezinguquko ezingokoqobo. Konke lokhu kuzothatha isikhathi namandla, futhi kuyakhathaza. Ngokuhlangenwe nakho kwami ​​​​ngingaphakamisa okulandelayo:

• Ukuba neQembu Lokusekela eligcwele abantu abahambe ngaphambi kwakho kuwusizo olukhulu.
• Ukufunda izindatshana mayelana nesimo sakho nokuthi ungasiphatha kanjani.
• Ukuxoxa nomngane.
• Ukubhala inqubo kubuye kube usizo njengoba ungabheka emuva futhi ubone inqubekelaphambili nezinto obuzozama ukuzenza kodwa ongakazihloli. Lokhu kungase futhi kube usizo olukhulu ukubhekisela kukho lapho ukhuluma nochwepheshe bakho bezempilo.

Yonke le misebenzi izosisiza ukuthi sibhekane Nezifo Ezingamahlalakhona.

Enye into efika ekubhekaneni neSifo Esingamahlalakhona ubunjalo besimo kanye nokubaluleka kwaso okubonakala emphakathini. Ngaphambi kokuthi ngithole ukuxilongwa kwe-Aspergillosis, satshelwa ukuthi umdlavuza wamaphaphu. Lapho lokho kushintshela ku-Aspergillosis indodakazi yami (uDokotela Wokunakekela Izifo) yathi ukuxilonga Umdlavuza bekuyoba lula! Isizathu salokhu ukuthi umdlavuza yisimo esiqondwa emphakathini, kukhona ukwesekwa okukhulu okukhona, ukuqoqwa kwezimali okukhulu nokuqwashisa abantu futhi abantu bayabuthana. Kunendlela ecacile ebheke ekwelashweni nasekulindelweni. (Ngokufanayo nesifo senhliziyo & nesinye noma ezimbili izimo ezixhaswe kahle).

Ngakolunye uhlangothi izimo zamaphaphu zinenhlamba yokuthi awuzange uwabheke amaphaphu akho, ngakho-ke unecala futhi/noma kusho ukuthi awuphefumuli kahle kodwa uyakwazi ukulawuleka futhi akunawo umthelela omkhulu. empilweni yakho. Cabanga ukuthi kwethulwa kanjani Imikhankaso Yokulwa Nokubhema.

Izimo zamaphaphu ezingalapheki nazo zinokwanda okuphezulu lapho izimo zokuphila zingezinhle futhi ngibona lokho njengokuthonya ukuthi singakanani isikhathi nezinsiza ezingafakwa emikhankasweni yokuqwashisa nocwaningo.

Siyabonga ku-NAC nge Ukwesekwa kwe-Aspergillosis kazwelonke (ephethwe yi-NHS) & I-Aspergillosis Trust Support (eqhutshwa iziguli ze-aspergillosis ku-Facebook) ukuze uthole ulwazi oluthembekile, imihlahlandlela, intuthuko yocwaningo kanye nezindaba zesiguli www.aspergillosis.org www.aspergillosistrust.org

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