Kufambisa rollercoaster yechirwere chisingaperi chiitiko chakasiyana uye chinowanzozviparadzanisa nevamwe. Irwo rwendo rwunogona kuzadzwa nekusaziva, kugadzwa kuchipatara, uye kutsvaga kusingagumi kwekudzokera kune zvakajairika. Izvi zvinowanzova chokwadi kune vanhu vane chirwere chisingaperi chekufema, senge aspergillosis. 

Mune ino post, Evelyn anotanga rwendo rwekufungidzira, achirondedzera kushanduka kwechirwere chake kubva mukuongororwa kwehudiki kusvika nhasi, mutsara unoratidzwa nebilateral yakanyanya cystic bronchiectasis yakaomeswa nekuumbwa kweaspergillus uye iyo isingawanzo scedosporium. Kuna Evelyn, kuchengeta dhayari, kucherechedza zviratidzo, kutapukira, uye nzira dzekurapa yave nzira yekuita pfungwa yekusafungira kwehutano hwake. Iyi tsika, yakaitwa makore apfuura nemupi wezano wemberi, inodarika mashandisiro ayo anoshanda, ichishanduka kuita chishandiso chakakosha chekugonesa murwere uye kuzvimiririra.

Paaitsvaga rubatsiro pawebhu kuti agadzirise dhayari rake rechiratidzo, Evelyn akawana bepa rine musoro unoti: Iyo Bronchiectasis Exacerbation Diary. Bepa iri raive zaruriro yemhando. Yakajekesa pane kazhinji-inofuratirwa zvinhu zvemurwere-chiitiko uye yakasimbisa izvo zvinowanzosanzwisisika zviratidzo zvinosangana naEvelyn. Ihwo humbowo hwesimba rekutsvagisa kwakanangana nemurwere uye nemhedzisiro yekuona hupenyu hwehupenyu hunobvumwa mumabhuku esainzi. 

Evelyn's pazasi fungidziro chiyeuchidzo chezvakaremerwa zvechirwere chisingaperi pahupenyu hwezuva nezuva uye kukosha kwekujaira kufamba hupenyu hwezuva nezuva. 

Somugumisiro wehurukuro naLauren munguva pfupi yapfuura maererano nekushandiswa kwechiratidzo chechiratidzo / pepanhau, ndakawana bepa rakabudiswa paInternet, 'The Bronchiectasis Exacerbation Diary'. Ndakaonekwa ndichiri mudiki nechirwere chekufema chisingaperi chakaenderera mberi muhupenyu hwangu hwese, ndine bilateral yakanyanya cystic bronchiectasis ine colonization yeaspergillus uye isingawanzo fungi, scedosporium.

Ndagara ndakajaira kuchengeta zvinyorwa zvezviratidzo / hutachiona / kurapwa, ndakakurudzirwa kuita kudaro, makore mazhinji apfuura, neanopa mazano kuti zvive nyore kutaura pakugadzwa. Akasimbisa kurapa hutachiona hunofanirwa kuenderana nemhedzisiro yetsika ye sputum uye kunzwisiswa uye kwete pa "Russian roulette" nzira, sezvaakadana yakafara spectrum antibiotics; ndisingazivi kuti rudzii rweutachiona rwaibatanidzwa. Nechemumoyo, Chiremba weChiremba wangu aishandira pamwe, sezvo panguva iyoyo tsika dzaive dzisiri dzenguva dzose. (Ndakanga ndichitya kuwana mukurumbira semurwere webolshie!)

Kuverenga bepa rataurwa pamusoro apa chaive chizaruro. Yakaunza pamwechete huwandu hwezviratidzo zvandinoona zuva nezuva, kunyangwe zvimwe zviratidzo zvandainzwa kuti hazvina kukodzera kutaura pakusangana kwekiriniki. Uyezve, ndakanzwa kusimbiswa.

Pakave nezviitiko, kunyangwe zvisingaite, pandinenge ndisina chokwadi pachangu, hapana zvakadaro kupfuura apo mumwe chiremba akafunga kuti ndaive psychosomatic. Iyi ndiyo yaiva pfungwa yangu yakaderera. Nokuonga, pashure paikoku ndakaendeswa kuna chiremba wokufema paWythenshawe Hospital uyo, apo tsika yakaratidza aspergillus, akandiendesa kuna Purofesa Denning; sezvavanotaura "gore rimwe nerimwe rine jira resirivha". Aspergillus akanga ambowanikwa mutsika pane chimwe chipatara muna 1995/6, asi asina kurapwa sezvazvaiva paWythenshawe.

Kwete chete zviratidzo zvemazuva ese zvakatariswa muchinyorwa, asiwo mabatiro azvino anoita varwere nekurarama kwemazuva ese. Zvakare, mupfungwa yakafara, zvinokonzeresa hupenyu hwedu uye negadziriso dzatinosangana nadzo tose mukugadzirisa - zvese zvandinogona kuzviona zviri nyore muhupenyu hwangu.

Ndakanzwa kukurudzirwa kuverenga bepa sezvo kunyangwe marudzi ese akasiyana-siyana emapepa eruzivo rwevarwere andakaverenga mumakore apfuura, hapana aive akazara.