The National Aspergillosis Center Rutsigiro boka mu Facebook ine 2700 nhengo kubva munaJune 2023, uye ine vanhu vane marudzi akasiyana-siyana e aspergillosis. Vazhinji vachave neAllergic Bronchopulmonary Aspergillosis (ABPA), vamwe vachange vaine Chronic Pulmonary Aspergillosis (CPA) uye vashoma vachave neSevere Asthma ine Fungal Sensitivity (SAFS) tsananguro dzinogona kuwanikwa. kune imwe nzvimbo pane ino webhusaiti.
Facebook inotibvumira kuti timhanye sarudzo dzekuyedza kudzidza kubva kuhuwandu hwevanhu vakawanda, uye tinopa pano zvimwe zvatakadzidza:
Ko basa reNational Aspergillosis Center CARES Team (NAC CARES) rinokanganisa sei hupenyu hwemurwere wedu?
Pasarudzo iyi, takasarudza kubvunza vanhu vanoshandisa iyo NAC CARES zvekutsigira zvekushandisa (kureva, aspergillosis.org, Misangano yevhiki nevhiki, Misangano yeMwedzi, mapoka ekutsigira Facebook, uye mapoka emashoko eTeregiramu) kuti vafunge nezve chero shanduko kuhutano hwavo vasati vawana izvo zvekushandisa. Tichadzokorora chiitiko ichi nguva nenguva kuti titarise chero shanduko nekufamba kwenguva sezvatinoita shanduko kuyedza kuvandudza kutarisirwa kwevarwere.
15th February 2023
Zviripachena kubva muPoll iyi kuti vanhu vazhinji vakadaira vaive vakanaka nezvekushandisa rutsigiro rweNAC CARES. 57/59 (97%) vakapindura zvakanaka. Izvi zvingangove mhedzisiro yakarerekera uye vanhu vashoma vasingawane zviwanikwa izvi zvinobatsira vangave vachizvishandisa kuvhota!
Mabhenefiti makuru kuvarwere ekushandisa rutsigiro rweNAC CARES anoita kunge:
- Nzwisisa aspergillosis zviri nani
- Inzwa zvakanyanya kutonga
- Pasina kunetseka
- Rubatsiro munharaunda
- Zvirinani kushanda hukama nevarapi
- Tonga QoL zvirinani
- Zvishoma ndega
Kune vashoma chikamu cherutsigiro cheNAC CARES chakaita kuti vanzwe zvakanyanya (2/59 (3%)), uye tinoziva kuti havasi vese vanoda kuziva zvakawanda nezvehutano hwavo, pamwe vachisarudza kurega boka ravo rekurapa richizvigadzirisa pasina kusanganisa. ivo pachavo? Kana ichokwadi, icho chinhu chakakosha kutsvaga uye isu tinofanirwa kuremekedza maonero iwayo, asi zvakare edza kuona maitiro ekuita zvirinani vanhu ava mukushingairira kutonga kwavo kwehutano sezvo zvichisimbiswa kuti izvi zvinovandudza mhedzisiro yemurwere. https://www.patients-association.org.uk/self-management.