Pano paNational Aspergillosis Center, tinonzwisisa kukosha kwekupa rubatsiro uye kudada pachedu pakuunza avo vakabatwa neaspergillosis pamwechete.
Kuburikidza nematanho edu enhau dzemagariro, boka redu revhiki nevhiki rekutsigira uye misangano yevarwere pamwedzi, tinopa mapuratifomu anosvikika uko vanhu vanogona kubvunza mibvunzo, kugovana zvavakasangana nazvo muhupenyu neaspergillosis, uye kuratidza manzwiro avo uye kushushikana - nevanhu vanonzwisisa pekutanga. Nhengo dzedu dzinogara dzichigovera zano reanecdotal uye isingaperi sosi yerutsigiro nekurudziro. Chikwata cheNAC chinogara chiripo kuti chipe ruzivo, signpost kune zviwanikwa, uye pamusangano wepamwedzi wega wega, tinopa pamusoro penyaya dzine chekuita neaspergillosis.
Tine vhiki nevhiki boka rekutsigira zoom rinosangana yega yega Chipiri na2pm, Thursday na10am uye musangano wakanyanya wepamwedzi weChishanu wekutanga wemwedzi wega wega 1-3pm. Munhu wese anogamuchirwa. Misangano yakavharwa, uye haufanirwe kunge uri murwere weNAC - kutaura zvazviri, hautombofanire kunge uri muUK - tinogamuchira vanhu vanobva pasi rese!
Alison Heckler anobva kuNew Zealand, uye ane Allergic Bronchopulmonary Aspergillosis (ABPA). Alison aive nemoyo munyoro zvekuti akatiudza kuti sei, mavhiki mazhinji, achigara achipfuura nguva yake yekurara kuti abatanidze musangano wedu wevhiki werutsigiro.
Ndakapinda muAspergillosis Support Group pandakatanga kubatwa nechirwere chinonzi aspergillosis. Ini ndakapihwa zero ruzivo, saka ndanga ndichitsvaga kwainovimbika kunobva ruzivo. Ndakanga ndichirwara panguva iyoyo, uye imwe nhengo yeboka yakandivimbisa kuti kana mishonga yangu yave yakarurama, ndaizowana imwe nhanho yehupenyu zvakare.
Wese munhu aikurudzira asi achiri kutaura chokwadi uye akatendeseka pamusoro pekuoma kwemamiriro acho.
Graham nevamwe kubva kuchikwata cheNAC vaigona kupindura mibvunzo kubva kune ruzivo, maonero ehunyanzvi, pamwe nekupa ruzivo nezvetsvagurudzo nebudiriro.
Ini hapana wandinoziva muNZ ane Aspergillosis, saka zvakanaka kuve neboka reshamwari dzinotora pandinenge ndiri (health-wise), vasingade tsananguro uye vane zvinhu zvinokurudzira zvekutaura. Vanoitira hanya kubva pachinzvimbo chehukama nekunzwisisa kuti "kutaridzika zvakanaka" hazvireve kuti ndiri ini.
Zvinobatsirawo, pandinenge ndichinyanya kushushikana, kuziva kuti vamwe vari kubata nenhau dzakatowanda uye kudzosa zvinhu mugwara.
Nekuti boka iri rinenge riri reBritish, nhaurirano yacho inowanzotarisana neNHS, asi kunyangwe izvo zvinobatsira kuti ndirambe ndiine maonero. Pane ruzivo runofanira kuunganidzwa. NZ ine yakafanana Public Health System, uye timu yangu yazvino yekurapa inoita seinonzwisisa ABPA. Nekukanganisa kwayo kwese, ndinotenda zvikuru zvatinazvo, kunyanya kana ndine manzwisisiro ehurongwa mune dzimwe nyika.
Ini ndinoda misangano chaiyo paZoom nekuti ndiri kutaurirana nevanhu chaivo; haingori chikafu chakanyorwa chisingazivikanwe. Tinogona kuseka uye kuseka pamwe chete uye kugovana zvishoma zvehupenyu hwedu. Hurukuro dzakanangana zvishoma, dzinowanzoitwa nemubvunzo wemumwe munhu, dzinodzidzisa uye dzinobatsira. Izvi zvinobva zvarumbidza zvinyorwa zvakakosha zvakatumirwa pamapeji ekutsigira uye webhusaiti.
Kuti uwane rumwe ruzivo uye ruzivo rwekuti ungajoinha sei misangano yedu, tevera iyi link iripazasi:
https://aspergillosis.org/support/6226-2/
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