Medical Alert Paraphernalia

Zvinhu zvekuzivikanwa zvekurapa zvakaita semabhurekete zvakagadzirirwa kuzivisa vashandi vehutano nezvemamiriro ezvinhu anogona kukanganisa kurapwa panguva yekukurumidzira kwausingakwanise kutaura wega.

Kana uine chirwere chisingaperi, chikafu kana zvinodhaka zvinodhaka, kana kutora mishonga yakadai seyenguva refu steroids kana anticoagulants, inogona kuchinja marapirwo aungagamuchira, uye zvakakosha kuti vashandi vehutano vazive uye vanogona kuita saizvozvo. Mumamiriro ezvinhu apo iwe unogona kunge usingazivi kana kusakwanisa kutaura, chenjedzo yezvokurapa inogona kupa ruzivo rwakakosha maererano nemamiriro ezvinhu, mishonga uye hama yepedyo.

Ndezvipi zvinhu zvechenjedzo zvekurapa zviripo?

Zvinhu zvakawanda zvakasiyana-siyana zvechenjedzo zvekurapa zviripo, iyo inonyanya kuzivikanwa ndeye bracelet inopfekwa uye inozivikanwa zviri nyore munjodzi.

Kune akati wandei emakambani epamhepo ane mukurumbira kwaunogona kutenga bracelet yekuzivisa yekurapa, akati wandei akanyorwa pazasi. Ndokumbirawo uone kana uchitenga online kuti kambani iri pamutemo uye kuti zvishongo zvavo zvinozivikanwa nevashandi vehutano.

https://www.medicalert.org.uk/collections/

https://www.amazon.co.uk/Medic-Alert-Bracelets/s?k=Medic+Alert+Bracelets

Mharidzo yeClub Club muBhodhoro

Mharidzo yeClubs Clubs muBhodhoro inzira iri nyore asi inoshanda yekuti vanhu vachengete ruzivo rwavo rwemunhu uye rwezvekurapa kwavanogona kuwanikwa munguva yekukurumidzira pafomu yakajairwa uye munzvimbo yakafanana - firiji.

Mharidzo muBhodhoro (inozivikanwa mukati meShumba seMIAB) inobatsira vashandi ve emergency emergency kuchengetedza nguva yakakosha mukuziva munhu nekukurumidza uye kuziva kana aine allergies kana kutora mishonga yakakosha.

MaParamedics, mapurisa, vanodzima moto uye masevhisi ezvekugarisana vanotsigira chirongwa ichi cheLions chekuponesa hupenyu uye vanoziva kutarisa mufiriji kana vaona zvinamira zveMharidzo muBhodhoro zvichipihwa. Chirongwa chinopa runyararo rwepfungwa kuti rubatsiro rwekurapa rwekukurumidza uye rwakakodzera runogona kupihwa, uye vepedyo vehama / vekukurumidzira vanogona kuziviswa.

Nzira yekuwana Mharidzo muBhodhoro

Veruzhinji nemamwe masangano vanogona kuwana Mharidzo muBhodhoro kit nekubata kirabhu yekwavo yeLions; mamwe mashoko aripo pano.

Aspergillosis uye zvakanakira kurovedza muviri zvinyoro - maonero emurwere

Mufananidzo wemurume nemukadzi vari kurovedza muviri mumba mavo. Vese vari vaviri vari munzvimbo ye squat vakaisa maoko avo pamberi pavo. Matinji akatarisa mukati.

Vaviri vakuru vanofara vari mumba kumba, vachiita maekisesaizi vari mumba.

Cecilia Williams ane chirwere che aspergillosis muchimiro che aspergilloma uye Chronic Pulmonary Aspergillosis (CPA). Mune ino post, Cecilia anotaura nezve kwakareruka asi kugaro kurovedza muviri kwakabatsira sei kunatsiridza hutano hwake nekugara zvakanaka.

 

Ndakadhawunirodha gwaro remaekisesaizi (inowanikwa pano) munaSeptember gore rino. Mwero wangu weokisijeni wanga uchityisa, uye ndaida kuita imwe nzira yekugadziridza pulmonary kumba. Ndakashamiswa kuti maekisesaizi ari muchirongwa aifanira kuitwa zuva nezuva, sezvo mapurogiramu ekare emapapu pachipatara aingova katatu pavhiki. Zvisinei, purogiramu iyi yakanga iri nyore zvikuru.

Ndinoita muitiro wekutambanudza maminetsi mashoma ndisati ndaita maekisesaizi, uye zvino ndaunza huremu hwe 2.5kg, asi ndaizozviita pasina uremu pandakatanga. Ndakatanga pane yakaderera nhamba ye reps yekugara uye yakamira maekisesaizi uye zvishoma nezvishoma ndakawedzera kune yakakurudzirwa seti. Ndinotora nguva yangu kuita maekisesaizi sezvo ndichifemeruka, uye nguva yandinotora zvinoenderana nerudzi rwezuva randiri kuita. Ini ndinotyora danho remaminitsi makumi matatu kuita maviri; chinhu chekutanga mangwanani uye chimwe mushure mekudya kwemasikati. Kana ndikaenda kunotandara panze, ndinongoita mamwe maekisesaizi uye hapana nhanho yetsika. Ndinoedza nepandinogona napo kuisa pfungwa dzangu pakufema kwangu sezvinoratidzwa pachati. Ini ndinoshandisa nzira dzekufema dzinokurudzirwa naPhil (National Aspergillosis Center Specialist Physiotherapist, vhidhiyo iripo pano), kunova kwave kuda kwangu kuti ndidzorere kufema kwangu.

Pandakatanga chirongwa ichi, mwero wangu wekuzara kweokisijeni waive wakashata. Ndakanga ndisingafeme kwenguva refu, uye ndaitambura zuva rose nekupishana kwemhino kunotyisa uye kudonha kwepamhino - ndaingogara ndichipfungaira nemakristasi ementhol. Kubatanidza maekisesaizi uye maitiro ekufema mumaitiro angu ezuva nezuva (chinhu chekutanga mangwanani muimba yangu yekurara nemahwindo akavhurika) yakave nemhedzisiro yakakura. Kuzara kwangu kunopera nyore pasina kupisa. Ndinogona kutora kufema kwakadzika uye kubata mweya wangu kwenguva refu. Ndakaona nguva yandinotora kuti ndidzoke kubva muzvikamu zvemazinga eokisijeni yakaderera uye kufema kwakawedzera. Ndinoita zviitwa zvese zviri patafura; zviyereso zvakakosha, uye nenguva nekudzidzira, ndiri kunatsiridza – kunyangwe ndisati ndatanga kuzviita nemaziso angu akavhara – handisati ndasvika! Ndinovimba kuti kunyora nhoroondo yangu yemabhenefiti kunyangwe akareruka ezvirongwa zvekurovedza muviri zvinopa vamwe kusatya uye kurudziro yekuita chirongwa chekumba-yekurovedza muviri.

 

Kana iwe uchida kuziva zvakawanda nezve kurovedza muviri ne aspergillosis, nyanzvi yedu yePhysiotherapist Phil Langdon ane hurukuro iripo kuburikidza neyedu. YouTube chiteshi pano. 

Musangano weNational Aspergillosis Center (NAC) Murwere & Muchengeti Wetsigiro: Chikunguru 2021

Misangano yedu yekutsigira haina kurongeka uye yakagadzirirwa kupa vatori vechikamu kuti vataure, kubvunza mibvunzo uye kuteerera kune dzimwe pfungwa dzenyanzvi pamhando dzakasiyana dzezvidzidzo zvine chekuita neaspergillosis neimwe nzira - unogona kazhinji kubvunza mibvunzo zvakare. Hapana anoda kuenda pasina mibvunzo yavo ine mhinduro kubva kuchikwata cheNAC.

Mwedzi uno takava nehurukuro kubva kuYunivhesiti yeManchester & Manchester Fungal Infection boka (MFIG) muongorori Jorge Amich Elias pakutsvakurudza kwake nzira itsva dzokurapa aspergillosis - uyu ane kunyange mushonga wakagadzirira kuenda!

Ona Vhidhiyo yakazara pano

Takavawo nehurukuro inodzidzisa pamusoro penhau inokosha ye Simba reGweta kubva kunhengo yechikwata cheNAC Lauren Amflett.

Ona a kuunganidzwa kwemisangano yedu kubva makore akati wandei kuno

Palliative Care - Kwete Zvaungafunga

Vanhu vanorwara nguva nenguva vanokumbirwa kuti vafunge kupinda munguva yekugamuchira rubatsiro rwekurwara. Pachinyakare kuchengetedzwa kwepalliative kwaienzaniswa nekupera kwehupenyu hwekutarisira, saka kana ukapihwa palliative care inogona kutyisa tarisiro uye ndezvemuzvarirwo kufunga kuti vashandi vako vehutano vari kukugadzirira nhanho dzekupedzisira dzehurwere hwako. Hazvina kudaro.

Kupera-kwe-hupenyu kutarisira kunowanzo kutenderera pakuita kuti inguvai yawasiya yakasununguka pazvinogoneka. Kuwedzera kurongeka kwekuchengetedza kunoita zvakawanda kupfuura izvozvo - iyo NHS ruzivo peji paKupera-kwe-hupenyu kuchengetedza inosanganisira zvinotevera:

Kupera kwehupenyu kuchengetedza kunosanganisira palliative care. Kana uine chirwere chisingarapike, kurapwa kwepalliative kunoita kuti ugadzikane sezvinobvira, by kugadzirisa marwadzo ako nezvimwe zviratidzo zvinoshungurudza. Zvinosanganisirawo rutsigiro rwepfungwa, rwemagariro uye rwemweya kwauri nemhuri yako kana vachengeti. Izvi zvinodaidzwa kuti maitiro akazara, nekuti anobata newe semunhu "akazara", kwete hurwere kana zviratidzo zvako.

Palliative care haingori yekuguma kwehupenyu - unogona kuwana rubatsiro rwekunyorovesa pakutanga pahurwere hwako, uchiri kugamuchira mamwe marapirwo ekurapa mamiriro ako.

Kana tataura nezve palliative care kumapoka edu evarwere heano mamwe emashoko:

Palliative care inogona kubatsira zvikuru. Mumwe munhu wandakashanda naye akanga asina kusimba patakatanga kuonana makore mashomanana adarika mushure mekushanda nesimba. Aitotadza kutaura. Akaendeswa kune chimwe chikwata chemunharaunda chekuchengetedza varwere pane imwe hospice uko vakakwanisa kupa zvakasiyana-siyana zvezviitiko, kurapwa kwakakwana uye kushamwaridzana. Iye zvino ari nani zvikuru uye murume ane kutaura, achifamba nehupenyu huri nani.

 vanopinza kudzikama nouchokwadi mumamiriro ezvinhu umo vasingawanzovapo.

Ini handigone kukurudzira kuendeswa kune palliative care zvakakwana. Ndapota usafunge kuti palliative care uye kupera kwehupenyu kuchengetedza kwakafanana.

Palliative care inounzwa neruzhinji rwenyanzvi dzekurapa kuitira kuti mukwanise kubvunza kuburikidza naChiremba wenyu kana chiremba wechipatara. Inogona kuunzwa munzvimbo dzakati wandei - mumienzaniso mishoma yatakanzwa nezve nguva pfupi yadarika imwe hospice yemuno yakapa rutsigiro rwekuzadzisa zvinangwa zvega zvekugara zvakanaka - kumurwere nemuchengeti wavo nemhuri. Zvakaita mutsauko mukuru kuhupenyu hwevanhu vaibatanidzwa.

Hospice UK

 

Aspergillosis Murwere & Muchengeti Tsigiro

Maoko mazhinji anofananidzira vanhu vanouya pamwechete uye vane hanya uye vachiuya pamwechete kuti vabatsire mumwe nemumwe neaspergillosis yavo.

Pano paNational Aspergillosis Center, tinonzwisisa kukosha kwekupa rubatsiro uye kudada pachedu pakuunza avo vakabatwa neaspergillosis pamwechete.

 

Kuburikidza nematanho edu enhau dzemagariro, boka redu revhiki nevhiki rekutsigira uye misangano yevarwere pamwedzi, tinopa mapuratifomu anosvikika uko vanhu vanogona kubvunza mibvunzo, kugovana zvavakasangana nazvo muhupenyu neaspergillosis, uye kuratidza manzwiro avo uye kushushikana - nevanhu vanonzwisisa pekutanga. Nhengo dzedu dzinogara dzichigovera zano reanecdotal uye isingaperi sosi yerutsigiro nekurudziro. Chikwata cheNAC chinogara chiripo kuti chipe ruzivo, signpost kune zviwanikwa, uye pamusangano wepamwedzi wega wega, tinopa pamusoro penyaya dzine chekuita neaspergillosis.

Tine a vhiki nevhiki boka rekutsigira rinosangana (zvichida) China yega yega na10am uye imwe yakarongeka musangano wepamwedzi neChishanu chekutanga chemwedzi wega wega, 1 - 3 pm. Munhu wese anogamuchirwa. Misangano yakavharwa, uye haufanirwe kunge uri murwere weNAC - kutaura zvazviri, hautombofanire kunge uri muUK - tinogamuchira vanhu vanobva pasi rese!

Alison Heckler anobva kuNew Zealand, uye ane Allergic Bronchopulmonary Aspergillosis (ABPA). Alison aive nemoyo munyoro zvekuti akatiudza kuti sei, mavhiki mazhinji, achigara achipfuura nguva yake yekurara kuti abatanidze musangano wedu wevhiki werutsigiro.

 

Ndakapinda muAspergillosis Support Group pandakatanga kubatwa nechirwere chinonzi aspergillosis. Ini ndakapihwa zero ruzivo, saka ndanga ndichitsvaga kwainovimbika kunobva ruzivo. Ndakanga ndichirwara panguva iyoyo, uye imwe nhengo yeboka yakandivimbisa kuti kana mishonga yangu yave yakarurama, ndaizowana imwe nhanho yehupenyu zvakare.

 

Wese munhu aikurudzira asi achiri kutaura chokwadi uye akatendeseka pamusoro pekuoma kwemamiriro acho.

Graham nevamwe kubva kuchikwata cheNAC vaigona kupindura mibvunzo kubva kune ruzivo, maonero ehunyanzvi, pamwe nekupa ruzivo nezvetsvagurudzo nebudiriro.

 

Ini hapana wandinoziva muNZ ane Aspergillosis, saka zvakanaka kuve neboka reshamwari dzinotora pandinenge ndiri (health-wise), vasingade tsananguro uye vane zvinhu zvinokurudzira zvekutaura. Vanoitira hanya kubva pachinzvimbo chehukama nekunzwisisa kuti "kutaridzika zvakanaka" hazvireve kuti ndiri ini.

Zvinobatsirawo, pandinenge ndichinyanya kushushikana, kuziva kuti vamwe vari kubata nenhau dzakatowanda uye kudzosa zvinhu mugwara.

 

Nekuti boka iri rinenge riri reBritish, nhaurirano yacho inowanzotarisana neNHS, asi kunyangwe izvo zvinobatsira kuti ndirambe ndiine maonero. Pane ruzivo runofanira kuunganidzwa. NZ ine yakafanana Public Health System, uye timu yangu yazvino yekurapa inoita seinonzwisisa ABPA. Nekukanganisa kwayo kwese, ndinotenda zvikuru zvatinazvo, kunyanya kana ndine manzwisisiro ehurongwa mune dzimwe nyika.

 

Ini ndinoda misangano chaiyo paZoom nekuti ndiri kutaurirana nevanhu chaivo; haingori chikafu chakanyorwa chisingazivikanwe. Tinogona kuseka uye kuseka pamwe chete uye kugovana zvishoma zvehupenyu hwedu. Hurukuro dzakanangana zvishoma, dzinowanzoitwa nemubvunzo wemumwe munhu, dzinodzidzisa uye dzinobatsira. Izvi zvinobva zvarumbidza zvinyorwa zvakakosha zvakatumirwa pamapeji ekutsigira uye webhusaiti.

Kuti uwane rumwe ruzivo uye ruzivo rwekuti ungajoinha sei misangano yedu, tevera zvinongedzo pazasi:

Aspergillosis Patient & Carer Virtual Support Group, China yega yega 10am. 

Aspergillosis Monthly Patient & Carer Meeting, Chishanu chekutanga chemwedzi wega wega, 1 - 3pm.

 

Unogona kutiwana paSocial Media:

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