Alison: living with ABPA and adrenal insufficiency

Alison lives in New Zealand and has allergic bronchopulmonary aspergillosis (ABPA), bronchiectasis and other complex health conditions. In this video, she shares her experience of developing adrenal insufficiency after long-term steroid treatment and the challenges of managing several conditions at once.

Recognising that something had changed

Alison was diagnosed with ABPA in 2019. In 2022, after coming off long-term steroid treatment, she began experiencing severe fatigue, nausea and difficulty getting herself moving. She wondered whether adrenal insufficiency might explain what was happening and contacted her GP. Tests and a hospital assessment led to a diagnosis of steroid-induced adrenal insufficiency.

Managing complex conditions and care

Alison describes the difficulty of balancing treatment for ABPA with the effects of long-term steroid use and adrenal insufficiency. Her care became more complicated when appointments were repeatedly postponed during the pandemic and it was difficult to access specialist advice. She also discusses living with other health problems and the uncertainty of working out which condition may be contributing to a change in how she feels.

Practical ways Alison manages day to day

Alison talks about keeping records of symptoms and medication, carrying medical information and emergency supplies, and learning to explain her needs to healthcare professionals. She stresses the value of patient support groups, where people can share experience and feel understood.

She also describes adapting her activities and finding projects that bring purpose and enjoyment while recognising that her energy and capacity can change. Support from other patients has helped her feel less alone and better able to advocate for herself.

This page shares Alison’s personal experience. It is not medical advice. Her discussion of steroid treatment, medication timing and emergency plans should not be used as instructions. Anyone with adrenal insufficiency should follow the individual plan agreed with their healthcare team.