Patient Voices

The Thursday Sessions autumn banner featuring a steaming mug, notebook and smartphone overlooking an autumn landscape.

Thursday Sessions: Living with complexity: healthcare, technology and keeping control

Patients, advocates, clinicians and researchers taking part in a respiratory health panel discussion.

Patient voices at the ERS Congress: watch the ELF recordings

Patients, clinicians and researchers sharing ideas as partners at a respiratory health meeting.

Patients and professionals working together at ERS

Illustration of older adults sharing experiences and supporting one another in a friendly group conversation

Thursday Session: Living with Aspergillosis: Finding Strength, Support and a Sense of Purpose

Thursday Conversations | 22…

Chart showing quality-of-life concerns reported by 55 people with chronic pulmonary aspergillosis (CPA) in a 2021 patient survey, including fatigue, breathlessness and loss of fitness.

What Worries People with CPA Most? Patients Tell Us

Living with CPA: What…

Chart showing quality-of-life concerns reported by 104 people with allergic bronchopulmonary aspergillosis (ABPA) in a 2021 patient-community survey.

What Worries People with ABPA Most? 104 Patients Tell Us

Living with ABPA: What…

Online aspergillosis patient support group meeting, showing people connecting and sharing experiences through video chat.

Why can an hour spent talking to other people living with aspergillosis leave us feeling better, even when our physical symptoms haven't changed?

Woman experiencing brain fog, with an illustration of the brain surrounded by mist, lungs and corticosteroid medication representing possible causes in aspergillosis.

Brain Fog in Aspergillosis: Why It Happens and What Might Help

Older patient explaining her concerns during a medical consultation while a doctor listens attentively.

What Does a Patient Have to Say to Be Heard?

Mick: living with CPA and adapting to change

Mick shares his experience of…