Denda razvino inguva inotyisa isu tese, asi inogona kunyanya kurovera tsinga kune avo vari kurarama nemamiriro emapapu. IEuropean Lung Foundation yakanyora nyaya ina kubva kuvanhu vanorarama nezvirwere zvemapapu zvakagara zviripo, uye zvakaitika kwavari kurarama munguva ino. Mumwe mupiro unobva kune aspergillosis murwere uye co-muvambi we Aspergillosis Trust, Sandra Hicks, uye akakopwa pazasi. Kuverenga zvese zvakapihwa, kana kugovera chako chiitiko, tinya pano.
Iyo Aspergillosis Trust yakaramba ichiunganidza uye kugovera zviitiko zveavo vanorarama neaspergillosis panguva ino. Kuverenga nekugovana nyaya, kana kuziva zvimwe nezvebasa reTrust, tinya pano kuti ushanyire webhusaiti yavo.
Sandra Hicks:
Mukupera kwesvondo rekupedzisira raFebruary 2020, ndakave nekukosora kwakawanda kupfuura zvamazuva ese. Ndakaramba ndakarara, sezvo ndainzwa kuneta zvakanyanya kupfuura mazuva ese uye zvatowanda! Ndine aspergillosis, Nontuberculous Mycobacteria (NTM), asima uye bronchiectasis yakarongedzerwa nePseudomonas. Chikonzero chezvirwere izvi zvisingawanzoitiki is arare primary immunodeficiency (PID) syndrome, zvinoreva kuti immune system yangu haigadziri masoja ekudzivirira chirwere zvakanyanya.
Musi wa1 Kurume, ndakarwadziwa zvakanyanya parutivi rwangu rwekurudyi, ndakanzwa senge ndadhonza mhasuru pakati pembabvu yangu neimwe muhuro mangu. Marwadzo acho airwadza zvekuti ndakatadza kukosora uye chokwadi ndaitadza kufemereka. Ndaive ndawedzerawo kutadza kufema. Ndakaona zvaive nani kuti ndikwire pamusoro pemarwadzo, kuti ndikwanise kubvisa mapapu angu. Ndakanga ndiine chikosoro chinobereka, kwete chisingaperi, chikosoro chakaoma sezvakanyorwa muCCIDID-19 zviratidzo. Ndakanzwa isinganyatso kuenderana netsanangudzo ye 'mireza mitsvuku' yeCOVID-19. Pahuro pacho hapana pandairwadza. Ndakanga ndine tembiricha yakanyanya, iyo yakakwira kusvika 39.5 ° C muvhiki yekutanga yaKurume. Ndakanzwawo musoro nedzungu, asi handina kurasikirwa nekunzwa kana kunhuwa. Chiratidzo chekupedzisira kwaive kukosora-kusviba kutsvuku, gobvu mucous (hemoptysis) kashoma pazuva, kwemavhiki akati wandei. Handisati ndambove nehemoptysis kusvika pakadaro, kana kuti rima rakatsvuka (kunyangwe mucous inogona dzimwe nguva kuve 'pinky' muruvara).
My routine CT scan yandinayo yeaspergillosis yakaratidza kuvandudzwa uye haina kuratidza kukura kwehemoptysis. Saka kwandiri zvakaita sekuti pane chimwe chinhu chaiitika mukuwedzera kumatambudziko emapapu enguva dzose.
Ndaive nekubvunzana parunhare pachinzvimbo chekugadzwa kukiriniki yekunze nevarairi vaviri. Yekutanga yaive neyangu mycology consultant musi wa25 Kurume. Akanzwa kuti zvaigoneka kuti ndingadai ndakave neCOVID-19. Takakurukura nzira dzokurapwa kwangu nguva dzose. Ndinofanira kupinda muchipatara zuva nezuva kwemazuva gumi nemana eIV caspofungin, kana kuti ndinofanira kunonoka kurapwa? Kunyangwe dai ndisina kuve neCCIDID-14, ndiri muchikamu chekudzivirira uye ndakange ndarairwa kuti ndigare pamba kwemavhiki gumi nemaviri. Muyero wenjodzi waive wekuda kutanga kurapwa nekukurumidza. Izvi zvakakonzerwa nehuwandu hwakaderera hwenyaya dzeCCIDID-19 muUK panguva iyoyo, zvichienzaniswa neEurope yese. Ini ndainetsekana kuti kana tikatevera maitiro akafanana neItari, Spain neFrance, zvino mumavhiki maviri-12 anotevera, huwandu hwenyaya uye kufa kwaizokwira zvakanyanya. Pakatanga kutenderera uku kwekurapa musi wa19 Kurume, pakanga paine zviuru zana nemakumi mana nevasere vakafa kubva kuCOVID-2 vakashumwa kuUK. Nemusi weSvondo weIsita, 3 Kubvumbi zuva rekupedzisira kurapwa, pakanga paine zviuru gumi nemazana matanhatu nemakumi matanhatu nevaviri vakafa muUK. Yakanga iri nguva inotyisa zvikuru, kupinda muchipatara zuva nezuva mukati memavhiki maviri iwayo. Kudai ndakanga ndanonoka kurapwa, chipatara chingadai chisina kukwanisa kundirapa. Chimiro changu chemapapu chinogonawo kunge chakashata. Ndinogona kunge ndave panjodzi huru yekubata COVID-30 futi. Ndichitarira shure, chakava chisarudzo chakarurama kwandiri.
Chipangamazano wangu we immunology akatiwo munaKurume 27 mune imwe nguva yekufona, kuti zvaigoneka kuti ndave neCOVID-19. Nekudaro, hapana nzira yekuziva chokwadi kana ndine. COVID-19 bvunzo dzeropa dzinotarisa kuvepo kwemasoja ekudzivirira chirwere anogadzirwa ne immune system. Kana masoja ekudzivirira chirwere aya aripo, zvinoreva kuti munhu akamboita utachiona kare. Nekudaro, bvunzo idzi dzinogona kunge dzisina chokwadi muvanhu vane primary immunodeficiency syndromes, nekuti isu hatigaro gadzira masoja ekudzivirira chirwere nemazvo. Chipangamazano uyu akati havasati vaziva chokwadi kana kuve neCCIDID-19 zvinoreva kuti uchakudziridza kusadzivirirwa. Akataurawo kuti kana varwere vachida kuuya kuzorapwa vanotora matanho ekudzivirira kutapukirwa: vanodhonza machira pakati pemibhedha, munhu wese anopfeka masiki, vashandi vanopfekawo maapuroni nemagurovhosi.
Saka, handisati ndaziva kana ndakave neCCIDID-19, asi zvinogoneka! Ini pamwe handifi ndakazivawo. Kana iyi yaive yakapfava kana pakati nepakati COVID-19, yaive ichiri yakashata zvakakwana pamusoro peyakajairika mamiriro emapapu.
Mamiriro ezvinhu anosiririsa zvikuru kuti vanhu vakawanda vakarasikirwa neupenyu nguva isati yakwana. Huwandu huripo hwekufa muUK i34, 636 (18 May). Zvakanyanya kukosha kugara pamba kune vedu vane chirwere chemapapu, avo vari panjodzi. Ini pachangu handisi kuona 'kugadzirisa nekukurumidza' kwedenda iri uye zvinokwanisika kuti pave neyechipiri neyechitatu wave. Ndiri kutarisira kuti jekiseni iri kuwanikwa, saka rinodzivirira vanhu vakawanda.