Ini handifanire kufungidzira kuti kune vanhu vazhinji vachiri pano kuti vakwanise kutaura ngano ine zita riri pamusoro!

Background:

Kwemakore akawanda ndaitambura nenguva yezviratidzo zvinotyisa 'sefuruwenza, ndisingakwanise kumira kukosora, kudikitira husiku uye kuneta - uye ndaigara ndichirapwa nemishonga inorwisa mabhakitiriya uye antihistamines (ini ndiri munhu asingawirirani nemhuka, guruva, mite uye kurumwa, nezvimwewo, nezvimwe zvakadaro, ) uye akanga amboonekwa kuti ane asthma. Dzimwe nguva ndaikosora mabrown mucus plugs (sezvandinoziva iye zvino anonzi) asi ndanga ndisingazivi kukosha kwawo.

Chiitiko changu chechangobva kuitika chaive chakapoteredza Kurume 2015 uye chaive chakafanana mukusimba kune zvimwe zviitiko zvakapfuura, ndiine kurwadziwa kunogara mumapapu angu ekurudyi. Pashure pokutsungirira kwevhiki dzinoverengeka, ndakatora kosi yokutanga yemishonga inorwisa mabhakitiriya pasina chimuko. Ndakamirira mamwe mavhiki mashoma, asi chirwere chacho chakanga chandipedza simba. Zvino mumwe weChiremba pakuvhiyiwa kwangu, uyo ane hunyanzvi uye ane hanya, akaraira imwe nzira yakasiyana yemishonga inorwisa mabhakitiriya uye, mushure mekuongororwa, akataura kuti kana pasina kuvandudzwa, ndinofanira kutorwa x-ray. Ndakanga ndisati ndambopihwa mukana we x-ray kana kumwe kuferefeta kare.

Pakanga pasina kuvandudzika, saka ndakadzokera kunovhiyiwa, asi pakanga pasina nguva yokuonana naChiremba mumwe cheteyo zvakare. Ndakarairwa kuti zvino ndakanga ndisisina utachiona, asi zvakaonekwa kuti x-ray yakanga yataurwa uye mafomu akapihwa, nezano rekuti kusangana / mhedzisiro inogona kutora kusvika masvondo matanhatu. Ndakanga ndichirwara zvakanyanya uye ndakamuudza kuti ndakanga ndisingakwanisi kufema uye kuti ndaifema, uye ndakakurudzira salbutamol inhaler inogona kubatsira panguva ino (sezvo izvi zvakanga zvapa zororo pane dzimwe nguva), asi akapindura achiti tinofanira kumirira. kune zvabuda. Zvakare, antihistamines yakanyorerwa.

Nekufamba kwazvakaita, ndakakwanisa kuwana x-ray nekukasira kuQueens Medical Hospital, Nottingham, mukupera kwaChivabvu, uye nyanzvi yeredhiyopi ine mutsa yakave nemhedzisiro zuva raitevera chairo. Chiremba anga ataura x-ray akandiridzira nhare nemhedzisiro uye akaraira kuti mufananidzo waratidza 'misa' pabapu rangu rekurudyi, izvo zvaizoda kuferefetwa - uye kuti nhanho dzinotevera dzaizoteverwa nekukurumidza. Akapfuura nemumikana wakasiyana-siyana - uye takabvumirana kuti, sezvo ndakanga ndisati ndarasikirwa nechido changu chekudya, kana kupera uremu, yaisazonyanya kuve cancer. Mushure mehurukuro ndakati inogona kungova 'gunge' - ruregerero kune 'chiremba taura'! Aive anyatsoteerera zvandaiona pakugadzwa nemumwe Chiremba, paakazofona pave paya achiti akange aronga kuti ndinyorerwe salbutamol, kuitira kuti ndisunungure kufema kwangu.

Kukurumidza-Kutsvaga Kunotanga:

Nhanho inotevera yaive yakarongwa nekukurumidza PET / CT scan paNottingham City Hospital pakutanga kwaJune. Kusvika kumisangano iyi kwanga kwakaoma zvikuru, sezvo ndairwara uye ndaneta zvikuru, ndiine mwedzi yokusarara - pakufamba ndaigara ndichikosora, zvekuti mabhunu aiita kurutsa. Kumwe kugadzwa kwakaitwa kwemavhiki maviri gare gare kune zvawanikwa kuRoyal Derby Hospital. I am a single lady ndokuenda ndega kuma results. Mumiriri akapa zano rekuti akange aongorora scan, kuti ndaiva nebundu pazasi pebapu rangu rekurudyi, iro rakanga "ravepo nguva refu kwazvo" - uye kuti iye nechikwata chake vaive vasina chokwadi panguva iyi kuti vaigona here kana kuti kwete. shanda! Sezvaunogona kufungidzira, ndakanga ndiri mukuvhunduka kukuru, asi ndakakwanisa kufunga kuburikidza nechokwadi chokuti ndakanga ndisina zviratidzo zvikuru zvehuremu uye kurasikirwa kwechido - uye ndakakumbira kuona scan. Zvakanyanya zvisingafadzi - asi ndakanga ndichiri kunetseka kuti aiziva sei kuti iyi yaive kenza (uye kwete gunge chete!), kudzamara ndaona 'matende' aibva mubundu - uye, chokwadi, ndakakotama kuruzivo rwake rwepamusoro.

Mukukurukurirana ndakataura nezvefivha yakanyanya uye zviratidzo zvinoshamisa uye pakuongororwa, akandiyambira kuti "ndichiri kuzara nehutachiona" uye akaraira mishonga inorwisa mabhakitiriya yakasimba kwazvo. Akabvunza nhanho dzangu dzekusimba (zvakanaka kwazvo kusvika iyi 'chikamu' chazvino) uye kuti ndanga ndichiri kuzviitira zvese - Hongu (uye kune wese wese!). Akarayira kuti ndaizoda kuvhenekwa zvakare uye bronchoscopy ndisati ndasarudza kana paigona kuvhiyiwa. Ndakazoona pave paye, pakugamuchira zvinyorwa zvangu zvekuchipatara, kuti mapapu akanga adonhawo zvishoma. Mukoti ane mazvikokota aivepo panguva yemusangano akandisarudzira - uye akatoanyora mudhayari rangu. Kusvikira nhasi, pane zvikamu zverwendo rwokudzokera zvandisingachayeuki! Ndinoyeuka ndichirutsa zvakare!

Panguva ino, ndakaita kuti shamwari dzangu dzizive mamiriro ezvinhu uye ndakapedza mavhiki mashoma akatevera ndichifunga kwekuvhiyiwa - uye kana ichi chingave chinhu chakanaka, kana zvichibvira. Rwendo rwokuenda kuSwitzerland rwakanga rwava kutanga kutaridzika runofadza zvikuru! Pfungwa yerufu rwava pedyo inoita kuti munhu aongororezve zvese - uye ndaigara ndichinzwa "Asi, handisati ndatanga!" Ndine chokwadi chekuti takafa – tese tiri kuenda negwara rimwe chete, asi mafiro anotyisa kwazvo! Ndaifanirawo kusarudza kwandaizoitwa pashure pokuvhiyiwa (kana kwaizoitika) uye dzakawanda dzeshamwari dzangu dzakakumbira kuti ndigare kudzimba dzavo kuti ndipora. Shamwari iri muLiverpool, inova radiologist, yakatsvaga machiremba epamusoro ekuvhiya panzvimbo yangu. Ndakaita mazita e'kuita' nepfungwa - kuronga mari, kuronga mariro, nezvimwewo. Ndakagamuchira makadhi anobaya mwoyo, tsamba nemaemail ekutsigira neminamato (Sikh, Muslim, Catholic, Jewish, Church of England, nezvimwewo) - masangano ose. vakagamuchirwa! Mwana womunun’una wangu anodiwa, Jan, iye zvino anogara kuPakistan, akaronga kuenda kumba nendege kuti apedze mazuva mashomanana neni uye akanditsigira zvikuru mupfungwa uye anoshanda. Shamwari dzangu dzepamoyo chaidzo dzakashanya, dzichiuya nezvipo uye shamwari yangu inodiwa, Sam, akauya akaremerwa nezvokudya zvine utano zvakawanda – zvose zvaishamisa uye zvaishamisa.

Ini, pakati, shamwari Maureen (l) naMaura (r) - Judith mugirazi, achitora mufananidzo - June 2015

Kutevera kuongorora kunotevera uye (nenjodzi) bronchoscopy, kumwe kugadzwa kwakaitwa kwemhedzisiro mavhiki maviri gare gare. Uku kwaiva kutsvaga kuti kuvhiyiwa kungakwanisika here – uye shamwari yepedyo zvikuru, Colleen, akandiperekedza.

Imwe Shock - Imwe Kuongororwa:

Mubvunzo wekutanga waChipangamazano kwandiri waiva wokuti “Uri murimi webindu here?” - Ndakapindura kuti hongu, ndaive murimi anorema-basa (chimwe chezvandinoda). Mubvunzo unotevera waiti "Une composter here?" - Ndakatsanangura kuti ndakaita, asi handisisina. Akabvunzawo kana ndakakosora maplugs ebrown 'cauliflower' - Hongu! Ini neshamwari yangu takatadza kunzwisisa kuti mibvunzo iyi yaitungamira kupi - asi akabva atsanangura kuti iye nechikwata chake vaive vakurukura nezvenyaya iyi uye vakafunga kuti ini ndaiita kunge ndine zviratidzo zveAllergic Broncho Pulmonary Aspergillosis (ABPA), chiitiko chisingawanzo kuunzwa. nealergic reaction kune spores - kunyangwe izvi zvisina kudzoreredza kuongororwa kwebundu rekutanga - panogona kunge paine mbiri mbiri. Yakanakisa, Ace Medical Detective! Izvo zvinofanirwa kucherechedzwa kuti iyo 'copycat tumour' inokonzerwa neABPA mumapapu inoratidza pamifananidzo sebundu.

Ndaifanira kuongororwa ropa nekuchimbidza, ndakapihwa mushonga wepamusoro dosage steroid kurapwa uye mamwe maantibiotics - uye ndikayambirwa kuti ndisatange mushonga kusvika ndanzwa mhinduro. Nekusimbiswa kweABPA, ndaizobva ndave pasi pekuchengetwa kweRoyal Derby Hospital kwehupenyu hwangu hwese. Shamwari yangu neni takanga tiine manyawi - kunyangwe tisina 'kubuda musango' - pakanga patova netariro yakawanda, kunyangwe panguva iyi - simba remunamato!

Ropa rakatorwa, mishonga yakanyorwa mumaoko - Ndakasvika kumba uye maawa mashoma gare gare mwana wehanzvadzi yangu akasvika - mazuva ekufara! My Consultant akandiridzira nhare manheru iwayo kuti ndakange ndaedza ABPA, zvekuti yaive "kubva pachikero" (yakakura kupfuura zviuru zvishanu) uye aspergillus chaiyo IgE ye5,000, inova giredhi 59 uye yakakwira zvakanyanya. Ndaifanira kutanga kurapwa nekukurumidza. Sezvo bronchoscopy yanga yakundikana (parutivi rwangu - ichiri hutachiona panguva iyoyo) izvi zvaifanira kudzokororwa, sezvo zvingave zvine njodzi kumirira mamwe mavhiki matanhatu, panguva ino pamwe pasi peanesthetic - iyo ine zvakare ' njodzi. Akandiyeuchidzawo kuti chirwere chepakutanga hachikwanisi kudzikiswa panguva ino uye kuti imwe scan ingave yakakosha mushure memavhiki matanhatu ekurapwa.

Ndichangotanga kutora mishonga, ndakatanga kunzwa kurerukirwa uye ndakakwanisa kubata dzimwe hope - kudenga! Ndakanga ndichiri nemamwe mavhiki matanhatu kuti scan yaitevera iitwe, saka ndakaronga zvinhu zvakakosha zvekutarisira - kudya kwemasikati neshamwari, kugadzwa kwevagadziri vebvudzi, nguva dzekugadzira manicure uye kujoinhazve spa yangu yekutuhwina neJacuzzi - uye ndakashandira mushandi webindu. Iniwo kicheni yangu yakagadziridzwa, sezvo ndaifanira kugara ndakabatikana, zvese mumuviri nepfungwa. Nguva yose iyi ndainyatsotsigirwa neshamwari dzangu chaidzo uye nekufamba kwenguva uye ndaiita sendaigamuchira kurapwa kwacho, ndakanga ndava kutonyanya kuzvivimba. Panguva iyi Consultant wangu akaridza runhare achiti, vakurukura nechikwata, vakanga vasarudza kusandiisa pane imwe bronchoscopy, asi kumirira kusvika kunotevera scan, saka ivowo, sezviri pachena, vainzwa vane chivimbo. Zvakare panguva ino ndakatsvaga ruzivo nezveABPA, ndichiona kuti hapana mushonga, asi kuti, ndinovimba, inogona kutarisirwa. Kune marudzi akasiyana-siyana uye mazinga emamiriro ezvinhu uye, dai kurapwa kwe steroid kusina kubudirira, mamwe madhiragi aripo, asi ane zvimwe zvakakomba-migumisiro. Sezvo maspores ari kumhepo, hapana kuadzivisa zvachose.

Aspergillus uye Aspergillosis Webhusaiti:

“Aspergillosis chirwere chinokonzerwa nefungus Aspergillus. Aspergillosis inotsanangura nhamba huru yezvirwere zvinosanganisira zvose kutapukirwa uye kukura kwefungus pamwe chete nemhinduro dzechirwere. Aspergillosis inogona kuitika munhengo dzakasiyana-siyana, muvanhu nemhuka. Nzvimbo dzinowanzozivikanwa dzehutachiona ndiyo midziyo yekufema (mapapu, sinuses) uye zvirwere izvi zvinogona kuva:

Invasive (semuenzaniso Invasive Pulmonary Aspergillosis - IPA)

Isiri-inoparadza (semuenzaniso Allergic Pulmonary Aspergillosis - ABPA)

Chronic pulmonary uye aspergilloma (semuenzaniso chisingaperi cavitary, semi-invasive)

Asma yakaoma ine fungal sensitization (SAFS)"

Ndakanga zvino ndava kufema pasina kurwadziwa mumapapu angu uye ndakanga ndisingafemereki kana kukosora uye ndakanga ndakarara, kunyange zvazvo ndakanga ndichakaneta zvikuru, dzimwe nguva kusvika pakuneta. Masvondo matanhatu gare gare, ndakavhenekwa zvakare uye, pandakanga ndakamirira kugadzwa kwemhedzisiro, ndakaona kunetseka kuramba ndiine tariro - dzimwe nguva kusahadzika kwaiuya kuchipinda.

Ini naColleen takaenda tese kumaresults (sezvo achindiperekedza pamaappointments ese). Hatina kuwana nguva yokugara pasi mukamuri rokubvunzurudza Mushandi asati atipa zano nomufaro rokuti “Kune mashoko akanaka bedzi!” Kuongororwa kwechangobva kuitika kwakaratidza kuti 'copycat tumor' yakanga yanyangarika, ichingosara mavanga mashoma. Saka – handisisiri kufa (zvakanaka kwete mune ramangwana, zvakadaro)! Ini ndaifanira kuenderera mberi nekurapa pahurongwa hwekudzikisa, izvo ndakaita kwemwedzi mitanhatu, nekuongororwa kwemazinga eIgE matanhatu-vhiki uye kubvunzana. Kutevera izvi, ini zvino ndinotora inhaled steroids (Clenil Modulite) kaviri zuva nezuva. Sezvo vakapindura zvakanaka kwazvo kurapwa, zvakabva zvasarudzwa kuti izvi zvinogona kuderedzwa kusvika kumwedzi mitatu yekugadzwa. Zvinogoneka kuti ndigone kufambira mberi kusvika padanho rinotevera, Chronic Aspergillosis, asi hazviratidzike seine fungidziro yechokwadi - kungo "kumirira uye kutarisa nzira".

Parizvino ndingati kufema kwangu ndiko kwakanakisa kwave kwave kwemakumi emakore uye pakubvunzana kwangu kwekupedzisira zvakaratidzwa kuti Respiratory Clinic inogona kunge isiri iyo nzvimbo yakakodzera kwandiri, uye kuti zvingave zviri nani kwandiri kuti ndionekwe neAllergy. Nyanzvi.

Kugara neABPA:

Ini handitenderwe zvirimwa zvemumba uye nerombo rakanaka, pasi rangu repasi harina kapeti, saka ndinokwanisa kuichengeta isina guruva / mite. Sezvo ichi chiri chirwere chekudzivirira muviri, ndinotora Vitamin C zuva rega rega, uyewo ini iye zvino ndava kushayiwa zvakanyanya muVitamin D, saka tora iyo sekuwedzera, uye kurwisana nekuneta / kuneta, ndatanga kutora Vitamin B100. Ndine zvimwe 'zvisinganzwisisike' zviratidzo, zvandisingazive kuti izvi zvine hukama nechirwere here kana kuti kwete, asi ndinofungidzira munhu wese ane chirwere chakati anosangana nazvo. Parizvino ndiri mukuregererwa, asi kana pakava nekudzikira, kuvhiyiwa kwangu kunobata Derby Hospital nekukasira. Ndinogara ndichiudzwa kuti ndinotaridzika zvakanaka sei (kunyangwe pandaiva pahutano hwangu hwakaipisisa), izvo zvinondiita kuti ndinzwe zvakanaka, asi ndinofunga zvakakosha kuyeuka kuti kutarisa zvakanaka, hakuenzane nekuva akanaka! Nekuda kwekurapa steroid kwandakawana pamusoro pedombo-nehafu muhuremu, izvo zvisiri nyore kurasikirwa, asi ini ndinotora zvinyoro-nyoro kurovedza muviri nekushambira. Ndaenda pamudyandigere, asi enderera mberi nebasa rangu rekuzvidira neAgency yandaishanda naro muNottingham uye neimwe sangano rinobatsira muDerby (kunyangwe ndichiwana kukosha kwekuzvifambisa pachangu) - inondichengeta ndakabatikana, ndinonakidzwa nazvo - uye zvinochengeta pfungwa dzangu. kubvisa kushushikana kwangu!

Gadheni rangu - ndinofanira kupfeka mask yeHEPA sefa pakurima - asi handina simba racho zvakadaro!

Ndakabatana neAspergillosis Support Group, inova chikamu chevashandi vekutsigira varwere veNational Aspergillosis Center paWythenshawe Hospital (UHSM) Manchester, uye ndinowana mukana wakananga kune nyanzvi mune dzakawanda minda inobatanidzwa mukutsvagisa uye kurapwa kweaspergillosis uye zvinonyanya kukosha. ruzivo nezve mamiriro uye inopa misangano pamwedzi kuManchester Hospital. Imwe nhengo, Stuart Armstrong, uyo anoda kusimudzira ruzivo, aive nenyaya yake muDaily Mail pa15 Kukadzi 2016. 

Read more: www.dailymail.co.uk/health/

Ndinoona kuti zvakakosha kuzivisa nezvechirwere ichi chakakomba, kunyanya pakati pevanaChiremba, sezvo kuongororwa ropa kuri nyore kunogona kusimbisa kuongororwa uye kurapwa kunogona kutanga kare. Kana ikasarapwa, inogona kukonzera kukuvara kwakanyanya uye kunouraya kumapapu. Imwe nhengo iri 'kuyedza' mapiro nemaduvheti akazadzwa neshinda sezvo, sezviri pachena, mbambaira dzisingafarire makushe - zvinoita sekunge ingave mari yakakosha!

Ndakapona…. nekuda kwaChiremba ane hanya akasarudza kuferefeta, timu inoshamisa paRoyal Derby Hospital, rutsigiro rweshamwari dzangu dzinodiwa, dzimwe ngirozi dzine simba dzinochengeta, uye simba remukati randakanga ndisingazivi kuti ndinaro! Chidimbu changu chitsva: "Unongorarama kaviri ...."

Kunyanya ndinoramba ndine tariro mumaonero angu asi, dzimwe nguva, ndinokundwa nekuva 'pasi' zvishoma - ndichigara ndichirangarira kuti hapana-ane hutano hwakakwana uye kuti vanhu vazhinji vane imwe mhando yehurwere yavanofanira kubata nayo. Ndinogara ndichizviyeuchidza kuti ikozvino ndave nekuongororwa (zviri nani pane yepakutanga) uye handikwanise kuva mumaoko akachengeteka kupfuura timu yakangwara yevanachipangamazano paRoyal Derby Hospital.

February 2016