Ini ndiri gal ane makore makumi matanhatu, ndakabatwa neasthma kubva pazera 60 uye ABPA kubva pazera 2. Ndine chokwadi chekuti ABPA yakadzokera kuzera re45, zvakadaro, nekuti ndipo pandakatanga kuita recurrent atelectasis, kamwe kana kaviri pagore. . Kazhinji ndaigona kuibvisa ndega, neimwe PT/chipfuva kurovana, asi makore mashoma ega ega ndaiwana plug yakasimba uye ndaifanira kuenda kubronchoscopy.
Ndakanga ndiine asthma yakaoma ndichiri mudiki, uye pazera re14 ndakasvika pedyo nekusiya nyika ino - kurwiswa ikoko kwakakonzera tracheostomy uye bi-lateral pneumothorax, mavanga anondiyeuchidza kuti zvinhu zvinogona kuenda kumaodzanyemba nekukurumidza. Ndakavandudzika nezera, asi ndakanga ndichiri muchipatara kamwe chete makore mashomanana neasthma.
Zvino, pandakasvitsa makore makumi mana, ndakatanga makore gumi namashanu easthma uye isina matambudziko. Ndakashandisa my asthma control inhalers uye hapana chimwe chinhu kunze kwemultivitamin. Ndakatanga kumhanya, kuchovha bhasikoro, uye ndakatoita matriathlon mashoma mashoma. Ndakanga ndichibudirira mumusha mangu mutsva kuUS Pacific Northwest, asi ipapo, muna 40, ndakamhanyira ku“dutu rakakwana” rechirwere chemapapu. Ndakabatwa nepertussis (hongu, chikosoro chezera rangu!); ndakafumurwa zvakanyanya kuumba pamusasa wekuredza uri kure, wakapisa ABPA yangu; zvino neimwe nzira akabata atypical mycobacterial infection (m. abscessus). Pamusoro pazvo, ndakazvipa hernia yehiatal uku ndichikosora njere dzangu nepertussis, iyo sezviri pachena yakandipa GERD. Ndaiuya nerudzi rwemabayo mazuva makumi matanhatu kusvika makumi mapfumbamwe ega ega, kunyangwe pakati ndainzwa senge zvakajairika kunze kwekukosora kwakanyanya, kunogumbura. Chiremba wangu wepulmonologist akatenda kuti Sporanox yaizobatsira ABPA, asi mushure memwedzi ye2005 pa60 - 90mg doses pasina mhinduro, takazvirega. Zvakatora makore matatu ekutsvaga nyanzvi, uye kubvunzana kushoma paNational Jewish lung kiriniki muDenver, asi ikozvino ndadzokera kune yekutanga uye kuchovha bhasikoro, kukwira makomo, uye skiing zvakare. Zvangu zvekuongorora basa remapapu zvakagadzikana, asi zvakaderera pazera rangu, uye ndichagara ndichirapwa.
Ndakaita mwedzi mina yemishonga inorwisa mabhakitiriya uye 4 mwedzi yemishonga inorwisa mabhakitiriya yehutachiona hwemycobacterial, iyo inofadza haina kudzoka zvakare. Nekudaro, yangu IGE mazinga akasvika iyo 10 renji ine ABPA flare. My local allergist, pamwe nemadoc kuNational Jewish, akakurudzira kuyedza Xolair yemusanganiswa weABPA/asthma. Ndakaitanga mukupera kwa1300, apo IGE yangu yakanga yakaderera zvakare kuti ndikwanise, uye ndanga ndiri pahuwandu hwehuwandu (2007mg kamwe chete mavhiki maviri) kubva ipapo. Ndakangofanirwa kuve ne 375 prednisone yakaputika kubva ipapo, uye ndadzokera kune yangu yakajairika hutano. Ndichiri kukosora zvinhu zvakanyanya mazuva ese (ndinofungidzira kuti chikamu ichi mutongo weupenyu hwese), asi idiki uye iri nyore kurarama nayo kana ichienzaniswa nemakore matatu egehena.
Nekuti ndakarapwa nemishonga inorwisa mabhakitiriya yeIV neXolair panguva imwe chete, hapana ane chokwadi kana dambudziko rangu guru mukati memakore matatu iwayo raive ABPA kana hutachiona hwemycobacterial. Muchirimo che2011, allergist wangu wekune imwe nzvimbo akabvuma kuedza kutsigira Xolair, achiideredza kusvika 375 mg mavhiki mana. Fungidzira isu takaratidza chimwe chinhu, nekuti mushure memavhiki matanhatu, ndakatanga kukosora yero junk uye ndakazopedzisira ndave nechirwere chakakomba cheatelectasis chakazoda bronchoscopy. Zvinoshamisa, zvakadaro, iyo pathology kubva mubronch yakadzoka isina kunaka kune zvese, kusanganisira aspergillus.
Handina kumboona mhedzisiro kubva kuXolair zvachose, kunze kwechikwama chakareruka. Inodhura zvakanyanya - pamushonga wangu, mushonga wega unodhura $45,000 USD / gore uye allergist wangu anobhadharisa nguva yega yega yekutonga. Ndine inishuwarenzi yakanaka, nekutenda, asi ndichiri kupedzisira ndabhadhara $4000 USD/gore kunze-kwe-homwe.
Chero zvazvingava, ndinonzwa kufara ikozvino, uye ndinoda hupenyu hwangu hwekunze. Ndinotenda zvikuru sainzi yezvokurapa nekufambira mberi kwemakore - iyo yakasanganiswa steroid/LABA asthma control inhalers yakaita mutsauko mukuru kwandiri, uye chepamusoro-soro recombinant DNA mushonga (Xolair) hachisi chinhu chipfupi nechishamiso.
-Kay