Vakawanda vedu tichave tichiziva nzira yekushungurudzika mushure mokunge mudiwa afa, asi wakamboona here kuti nzira imwe chete inowanzoitika paunoonekwa kuti une chirwere chisingaperi chakadai seaspergillosis? Kune manzwiro ekurasikirwa akafanana zvikuru: - kurasikirwa kwechikamu chehutano hwako, kurasikirwa nemunhu wawaimbova, kurasikirwa nekuzvimirira uye kusava nechokwadi nezveramangwana.

1. Kurasikirwa neutano: Kuongororwa kwechirwere chisingaperi kunowanzoreva kutarisana nechokwadi chekurarama nemamiriro ezvinhu anozokanganisa muviri wako pamwe nekugara kwako mupfungwa. Uku kurasikirwa kwehutano kunogona kuve kwakakosha uye kungada kuti ugadzirise mararamiro ako, maitiro ezuva nezuva, uye zvinotarisirwa zveramangwana. Kuchinjira ku'maitiro matsva' kwakaomera vamwe. Kune aspergillosis vazhinji vanotaura kuti vanopera simba nekukurumidza sezvo zuva rega rega richifambira, saka vanofanirwa kuronga kuchengetedza simba mangwanani ega ega.
2. Shanduko mukuzivikanwa: Chirwere chisingaperi chinogona kukanganisa maonero aunozviita uye maonerwo aunoita vamwe. Zvinogona kuda kuti vatsanangurezve kuzivikanwa kwavo, mabasa, uye hukama hwavo, zvinova zvinonetsa uye zvinokonzeresa kusuwa. Kune humwe hukama hwako hwepedyo, panogonawo kuve nekuchema muitiro wavanofanira kuitawo.
3. Kurasikirwa kwekuzvimirira: Zvichienderana nekuoma kweaspergillosis yako, vanhu vanogona kurasikirwa nekuzvimirira sezvavanovimba nevamwe kuti vabatsirwe nemabasa ezuva nezuva, kurapwa, kana kufamba. Kurasikirwa uku kunogona kutungamirira kumanzwiro ekuvhiringidzika uye kusuruvara. Izvi zvinokanganisawo vanhu vanogara pedyo newe semuenzaniso murume/mukadzi wako kana mudiwa wako, sezvo vachifanirawo kuwirirana nekushanduka kwemabasa ako. Kurasikirwa kwekuzvimirira kunogona kuva kwemanzwiro, muviri uye zvemari.
4. Kusava nechokwadi nezveramangwana: Aspergillosis hairapike pari zvino (kunyangwe vashoma vane aspergilloma vangava nesarudzo yekuvhiyiwa) uye inosanganisira kuenderera mberi kwekutarisira uye kusava nechokwadi nezvekufamba kwechirwere, kushanda kwekurapa, uye mhedzisiro yenguva refu. Kusava nechokwadi uku kunogona kuparira kunzwa kwokufunganya, kutya, uye kusuruvara pamusoro penguva yemberi.
5. Social and emotional impact: Chirwere chisingaperi chinogona kukanganisa ukama, kugarisana nevamwe, uye kugara zvakanaka mupfungwa. Iwe unogona kamwe kamwe kunzwa wakasarudzika sezvo varwere vazhinji vanotsanangura kusateererwa kana kunzwisiswa neshamwari nemhuri. Iwe nevanhu vauri pedyo navo mungachemedza kurasikirwa nesocial connections, masisitimu ekutsigira, kana kugona kutora chikamu muzviitwa zvavaimbofarira.

Zvakakosha kuti vanhu vanoonekwa vaine chirwere chisingaperi vabvume uye vasimbise manzwiro avo ekusuwa uye kutsvaga rutsigiro kubva kune varapi vehutano, vadikani, mapoka ekutsigira, kana nyanzvi dzehutano hwepfungwa sezvinodiwa. Kugadzirisa uye kugadzirisa kushungurudzika kunogona kubatsira vanhu kurarama nekuongororwa kwavo, kugadzirisa hupenyu nechirwere chisingaperi, uye kuwana chinangwa nechinangwa pasinei nematambudziko avangatarisana nawo. Kutadza kunyatsogadzirisa nzira yekuchema kunogona kutungamirira mukuderera kwehupenyu uye kuora mwoyo.

Ungagadzirisa sei chirwere chisingaperi uye kushungurudzika?
Kugadzirisa kusuruvara mushure mekuongororwa kwechirwere chisingaperi kunogona kuva kwakaoma uye kunoenderera mberi, asi kune nzira dzakawanda dzinogona kubatsira vanhu kurarama uye kugadzirisa kune chokwadi chavo chitsva. Heano mamwe mazano:

1. Bvuma uye simbisa manzwiro ako: Zvibvumire kubvuma uye kuratidza manzwiro ako, kungava kusuwa, kutsamwa, kutya, kana kushungurudzika. Rangarira kuti kusuwa imhinduro yechisikigo pakurasikirwa, uye zvakanaka kuti unzwe mutsara wemanzwiro, mamwe acho angave asingatarisirwe mukati mako uye mune avo vari pedyo newe.
2. Tsvaka rubatsiro: Usazeza kusvika kushamwari, nhengo dzemhuri, mapoka anotsigira, kana nyanzvi dzeutano hwepfungwa kuti uwane rutsigiro nekunzwisisa (nemishonga kana kumwe kurapwa kana zvichidikanwa). Kutaura kune vamwe vakasangana nematambudziko akafanana kunogona kusimbisa uye kupa ruzivo rwakakosha uye nzira dzekugadzirisa. National Aspergillosis Center muManchester, UK inomhanyisa muunganidzwa wemapoka akabatikana kwazvo ekutsigira vanhu vane marudzi ese easpergillosis.Chisingaperi Pulmonary Aspergillosis (CPA), Allergic Bronchopulmonary Aspergillosis (ABPA), Acute Inokuvadza Aspergillosis (AIA kana IA), Asthma Yakanyanya neFungal Sensitization (SAFS), Aspergillus bronchitis nezvimwe. Mapoka ekutsigira anowanikwa kuburikidza Facebook uye Telegraph uye inosanganisira Mapoka emusangano wevhidhiyo kaviri pasvondo. Mumapoka aya, munokwanisa kusangana nevamwe varwere vave vachirarama nechirwere che<em>aspergillosis kwemakore akawanda uye vakasununguka uye vane hushamwari pamwe nevashandi veNAC pamibvunzo ipi zvayo yaungava nayo.
3. Zvidzidzise: Dzidza zvakawanda sezvaunokwanisa nezvehutano hwako, marapirwo angasarudzwa, uye nzira dzekuzvitarisira. Kunzwisisa chirwere chako uye kuti ungachigadzirisa sei kunogona kukubatsira kuti unzwe uine simba uye uchidzora hutano hwako. Iyo National Aspergillosis Center inomhanyisa webhusaiti inodzidzisa kuti ikubatsire kukutungamira kune akanakisa masosi eruzivo pa aspergillosis.org.
4. Gadzira network yekutsigira: Kana uchikwanisa, zviunganidze neshamwari nemhuri dzinotsigira uye dzinonzwisisa vanogona kupa betsero inoshanda, tsigiro yemirangariro, uye kurudziro. Kuva nerutsigiro rwakasimba runogona kuita mutsauko mukuru mukurarama nechirwere chisingaperi. Dzimwe nguva rubatsiro rusina rusaruro rwenyanzvi kubva kune chipangamazano runogona kubatsira pakuita sarudzo.
5. Zvibate zvakanaka: Isa pamberi pekuzvitarisira uye ita kuti hutano hwako hwepanyama uye hwepfungwa zvive pekutanga. Izvi zvinogona kusanganisira kuzorora zvakakwana, kudya kudya kwakaringana, kuita maekisesaizi enguva dzose (sezvakakodzera), kudzidzira nzira dzekuzorora, uye kuwana zvinhu zvinokuunzira mufaro nokugutsikana.
6. Isa zvinangwa zvinogoneka: Rongedza zvaunotarisira uye zvigadzirire zvinangwa zvinogoneka zvichibva pane zvauri kugona uye zvausingakwanisi. Kamura zvibodzwa zvakakura kuita nhanho diki, dzinogoneka, uye pemberera zvawakabudirira munzira. Varwere vazhinji vanoona zvichibatsira kupfuudza zuva zviri nani kana vakashandisa chipunu dzidziso kugadzirisa zvirinani kuwanda kwesimba ravangava naro zuva rega rega.
7. Dzidzira kungwarira uye kubvuma: Dzidzira unyanzvi hwekufunga, sekufema kwakadzika, kufungisisa, kana kurovedza muviri, kukubatsira kuti urambe wakadzikama uye uripo panguva iyoyo. Kugamuchira hazvireve kurasa tariro, asi kubvuma uye kumbundira chokwadi chako chazvino uchitarisa pane zvaunogona kudzora.
8. Tsvaka rubatsiro rwenyanzvi kana zvichidiwa: Kana uri kunetsekana kurarama neshungu, kuzvidya mwoyo, kuora mwoyo, kana zvimwe zvinetso zveutano hwepfungwa, usazeza kutsvaga rubatsiro kubva kune nyanzvi yehutano hwepfungwa. Therapy inogona kupa nzvimbo yakachengeteka yekuongorora manzwiro ako, kukudziridza nzira dzekugadzirisa, uye kuwana rutsigiro.

Rangarira kuti kugadzirisa kusuwa uye kugadzirisa kuhupenyu nechirwere chisingaperi rwendo, uye zvakanaka kutsvaga rubatsiro nerutsigiro munzira. Iva nemoyo murefu newe, dzidzira kuzvinzwira tsitsi, uye tora zvinhu zuva rimwe panguva.

Akararama ruzivo kubva kuAlison

Chekutanga, tingangoda kutsanangura kuti Kushungurudzika chii..

Tinoshandisa izwi kurwadziwa asi chii chatinonzwisisa pazviri? Ndinofunga kuti tsananguro & kunzwisisa kunoshanduka patinosangana nematambudziko ehupenyu. Imwe yetsanangudzo dzinoshandiswa ndeye "Tangled web of emotions". Hasha, kusuwa, kuodzwa mwoyo, misodzi, kuvhiringidzika, kurasikirwa nekuzivikanwa, kuchinja kwemafungiro, kuvhiringidzika, kuora mwoyo, kurega basa. Rondedzero yacho inenge isingaperi uye haisi muhurongwa hwakatsetseka kana kufambira mberi kwenguva.

Chimwe chinhu mukurangarira kwedu ndeichi mhaka, mamwe acho anogadzirwa nekugamuchira kwedu uye kuomerera kune izvo zvave "tsika dzemagariro". Zvinoita sekunge pane kurambwa kwekusadzivirika kwerufu & kuparara kwemiviri yedu yenyama. Saka kana zvinhu izvi zvave kuoneka zvakanyanya muhupenyu hwedu hwezuva nezuva isu tinoda & kutarisira kukwanisa kuzvigadzirisa uye kudzivirira mhedzisiro. Kana izvi zvikasaitika, tinosuwa &/kana kunzwa tiine mhosva kuti hatikwanise kuzadzisa tarisiro idzodzo Saka tinofanira “Gadzirisa Nhamo yedu” asi zvakare; chirevo ichocho chinorevei?

Kune munhu wese, zvinotora maitiro akasiyana nekuti mamiriro ese akasiyana kune iye munhu. hukama hunobatanidzwa, kukura kwechirwere, kuti chinoratidzika sei, uye kuti chinowedzera sei. Maonero atinoita upenyu. Kugadzirisa Kusuwa kwedu kunoda chirango chakaoma chekutarisa izvo zvatinotenda zvakanyanya pahupenyu, ndezvipi kurasikirwa uye kushandura pfungwa idzodzo kubva pa'ruzivo rwemusoro' kuenda ku'kugamuchirwa kwemoyo' pamwe nekugadzirisa kune zvinoshanda & shanduko. Zvose zvinotora nguva nesimba, uye zvinonetesa. Kubva pane zvakaitika kwandiri ndinogona kupa zvinotevera:

• Kuva neBoka Rekutsigira rakazadzwa nevanhu vakafamba nzira pamberi pako rubatsiro rwakakura.
• Kuverenga zvinyorwa pamusoro pemamiriro ako uye maitiro ekuzvigadzirisa.
• Kutaura neshamwari.
• Kunyora maitirwo acho kunobatsirawo sezvo uchikwanisa kutarisa kumashure woona kufambira mberi uye zvinhu zvawaizoedza kuita asi usati wazviongorora. Izvi zvinogona zvakare kubatsira zvakanyanya kutaura nezvazvo paunenge uchitaura nenyanzvi yako yehutano.

Zviitiko zvose izvi zvichatibatsira kuti tigadzirise Chirwere chedu Chisingaperi.

Chimwe chinhu chinouya mukubata neChirwere Chisingaperi chimiro chechimiro uye kukosha kwacho kunoonekwa munharaunda. Ndisati ndawana chirwere cheAspergillosis, takaudzwa kuti iCancer yeLung. Pakazochinja kuita Aspergillosis mwanasikana wangu (Palliative Care Physician) akati kuongororwa kweCancer kungadai kwakave nyore! Chikonzero cheizvi ndechekuti Cancer inzvimbo inonzwisiswa munharaunda, kune rutsigiro rwakakura munzvimbo, kutsvaga mari kukuru uye kuziva uye vanhu vanoungana. Pane nzira yakajeka yekurapa uye zvinotarisirwa. (Zvakafanana neChirwere cheMwoyo & imwe kana maviri mamwe mamiriro akatsigirwa zvakanaka).

Mamiriro emapapu kune rumwe rutivi ane chiseko chausina kutarisira mapapu ako, saka une mhosva uye/kana zvinongoreva kuti haufeme zvakanaka asi zvinogona kudzorwa uye hazvina simba guru. pahupenyu hwako. Funga nezvekuti Anti Smoking Campaigns inoratidzwa sei.

Mamiriro emapapu asingarapiki anewo huwandu hwepamusoro apo mamiriro ekugara ari murombo uye ini ndinoona sekufurira kuti inguva yakawanda sei nezviwanikwa zvinogona kuiswa mumishandirapamwe yekuzivisa nekutsvaga.

Ndatenda kuNAC neve National Aspergillosis Tsigiro (inotungamirwa neNHS) & Aspergillosis Trust Tsigiro (inomhanyiswa nevarwere veaspergillosis paFacebook) yeruzivo rwakavimbika, nhungamiro, kusimukira kwetsvakiridzo uye nyaya dzevarwere www.aspergillosis.org www.aspergillosistrust.org

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