In this later conversation, Marcela talks about the practical and emotional parts of living with ABPA. She describes adapting her work and social plans when her energy or symptoms change, recognising when she needs to rest, and finding hobbies and activities that remain manageable and enjoyable.
Marcela also discusses explaining her needs to other people, the frustration of having to change plans, and the value of learning from others who understand the condition. She says that the National Aspergillosis Centre’s patient support group has helped her feel less alone.
Read Marcela’s earlier story: Marcela’s experience of ABPA: diagnosis, treatment and finding support
Marcela also shares personal experiences relating to treatment, exercise, breathing practices, food and environmental triggers. These are her own experiences and should not be taken as medical advice or recommendations for others.
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