Trusted Palliative and Supportive Care Resources

If you are looking for more information about palliative or supportive care, it can be difficult to know where to start. The organisations below provide reliable information about symptom support, living with serious illness, help for families and carers, local services and planning ahead.

You do not need to be approaching the end of life to find some of these resources useful. Palliative and supportive care can sometimes provide additional help alongside treatment for your underlying condition.

If you are new to the subject, you may want to start with our guide Living Well with Aspergillosis: Understanding Palliative and Supportive Care.

1. Marie Curie UK

🔗 https://www.mariecurie.org.uk
One of the UK’s leading providers of end-of-life support.

Clear guides on what palliative care is
Advice on symptom management, emotional support, and practical issues
Online chat and helpline: 0800 090 2309
Information for families and carers

2. Hospice UK

🔗 https://www.hospiceuk.org
National charity supporting over 200 hospices in the UK.

Search tool to find local hospice services
Guidance on advance care planning, DNACPR, and choosing care settings
Support for people receiving palliative care at home

3. NHS: Palliative and End of Life Care

🔗 https://www.nhs.uk/conditions/end-of-life-care/
Official NHS overview of palliative care.

Describes when and how palliative care is offered
Explains where care can happen (home, hospital, hospice)
Advice on legal planning, such as Advance Decisions and Lasting Power of Attorney

4. Good Life, Good Death, Good Grief (Scotland)

🔗 https://www.goodlifedeathgrief.org.uk
Scottish-based initiative that helps people plan ahead.

Leaflets on how to talk about death and dying
“Planning Ahead” toolkit for people with long-term illness
Supports both patients and professionals

5. Compassion in Dying

🔗 https://www.compassionindying.org.uk
Specialist in advance care planning and patient rights.

Downloadable Advance Statement and Advance Decision forms
Free support to write a Living Will
Helpline: 0800 999 2434

6. Palliative Care Adult Network Guidelines (PCANG)

🔗 https://book.pallcare.info/
Clinical guidelines, but useful for patients seeking clarity on symptom control (e.g. breathlessness, cough, fatigue).