Abaninzi bethu baya kuqhelana nenkqubo yentlungu emva kokufa komntu othandekayo, kodwa ngaba uye waqaphela ukuba inkqubo efanayo iyenzeka rhoqo xa ufumanisa ukuba unesifo esingapheliyo njenge-aspergillosis? Kukho iimvakalelo ezifanayo zokulahlekelwa:- ukulahlekelwa yinxalenye yempilo yakho, ukulahlekelwa ngumntu obukade unguye, ukuphulukana nokuzimela kunye nokungaqiniseki ngekamva.

1. Ukulahlekelwa yimpilo: Ukuxilongwa kwesigulo esingapheliyo kudla ngokuthetha ukujamelana nenyaniso yokuphila kunye nemeko eya kuba nefuthe emzimbeni wakho kunye nentlalontle yakho. Le lahleko yempilo inokubaluleka kwaye inokufuna ukuba uhlengahlengise indlela ophila ngayo, imisebenzi yemihla ngemihla, kunye nolindelo lwekamva. Ukuziqhelanisa 'nendlela entsha yesiqhelo' kunzima kwabanye. Kwi-aspergillosis uninzi lukhankanya ukuba luphelelwa ngamandla ngokukhawuleza njengoko usuku ngalunye luqhubeka, ngoko ke kufuneka bacwangcise ukonga amandla ntsasa nganye.
2. Utshintsho kwisazisi: Isigulo esinganyangekiyo sinokuyichaphazela indlela ozijonga ngayo wena nendlela abanye abakujonga ngayo. Isenokufuna ukuba bachaze ngokutsha ubuni, indima yabo, kunye nobudlelwane, nto leyo enokuba ngumngeni kunye nenkqubo yokudala usizi. Kwezinye ubudlelwane bakho obusondeleyo, kusenokubakho inkqubo yokuba buhlungu ekufuneka badlule kuyo ngokunjalo.
3. Ukuphulukana nokuzimela: Ngokuxhomekeke kubunzima be-aspergillosis yakho, abantu ngabanye banokufumana ukulahlekelwa ngukuzimela njengoko bexhomekeke kwabanye ngoncedo kwimisebenzi yemihla ngemihla, unyango, okanye ukuhamba. Le lahleko inokukhokelela kwimvakalelo yokudakumba nosizi. Oku kukwachaphazela nabantu abahlala kufutshane nawe umz. iqabane lakho okanye iqabane lakho, njengoko kufuneka nabo bamkele utshintsho kwiindima zakho. Ilahleko yokuzimela inokuba yimvakalelo, ngokwasemzimbeni nangokwemali.
4. Ukungaqiniseki ngekamva: I-Aspergillosis ayinyangeki okwangoku (nangona abambalwa abane-aspergilloma banokukhetha ukwenza utyando) kwaye ibandakanya ulawulo oluqhubekayo kunye nokungaqiniseki malunga nokuqhubela phambili kwesifo, ukuphumelela kwonyango, kunye neziphumo zexesha elide. Oku kungaqiniseki kunokufak’ isandla ekubeni nexhala, uloyiko nentlungu ngekamva.
5. Impembelelo kwezentlalo neemvakalelo: Izigulo ezingapheliyo zinokuchaphazela ubudlelwane, intlalontle kunye nokuphila kakuhle ngokweemvakalelo. Usenokuziva ulikheswa njengoko izigulane ezininzi zichaza ukungamanyelwa okanye ukuqondwa ngabahlobo kunye nosapho. Wena kunye nabantu osondele kubo ninokuba buhlungu ngenxa yokuphulukana nonxibelelwano loluntu, iinkqubo zenkxaso, okanye ukukwazi ukuthatha inxaxheba kwimisebenzi ebebeyonwabele.

Kubalulekile ukuba abantu abafunyanwe banesigulo esinganyangekiyo bavume kwaye baqinisekise iimvakalelo zabo zentlungu kwaye bafune inkxaso kubaboneleli bezempilo, ababathandayo, amaqela enkxaso, okanye iingcali zempilo yengqondo njengoko kuyimfuneko. Ukujongana nokujongana nosizi kunokunceda abantu bajamelane nokuxilongwa kwabo, balungelelanise ubomi nesigulo esinganyangekiyo, kwaye bafumane intsingiselo kunye nenjongo ngaphandle kwemingeni abanokujamelana nayo. Ukungaphumeleli ukujongana ngokufanelekileyo nenkqubo yokulila kunokukhokelela ekuwohlokeni kwendlela yokuphila kunye nokudandatheka.

Ungasilawula njani isifo esingapheliyo kunye nosizi?
Ukulawula usizi emva kokuxilongwa kwesifo esingapheliyo kunokuba yinkqubo enzima kwaye eqhubekayo, kodwa kukho izicwangciso ezininzi ezinokunceda abantu bajamelane kwaye balungelelanise inyaniso yabo entsha. Nanga amanye amacebiso:

1. Yazisa kwaye uqinisekise iimvakalelo zakho: Zivumele ukuba uvume kwaye uveze iimvakalelo zakho, nokuba lusizi, umsindo, uloyiko, okanye ukuphoxeka. Khumbula ukuba intlungu yimpendulo yendalo kwilahleko, kwaye kulungile ukuva uluhlu lweemvakalelo, ezinye zazo ezinokuthi zingalindelekanga zombini kuwe nakwabo basondeleyo kuwe.
2. Funa inkxaso: Ungalibazisi ukufikelela kubahlobo, amalungu osapho, amaqela enkxaso, okanye iingcali zempilo yengqondo ukuze ufumane inkxaso nokuqonda (kunye namayeza okanye olunye unyango ukuba luyafuneka). Ukuthetha nabanye abaye bafumana imingeni efanayo kunokuqinisekisa kwaye kunikeze ukuqonda okubalulekileyo kunye nezicwangciso zokumelana. Iziko leSizwe le-Aspergillosis eManchester, e-UK liqhuba ingqokelela yamaqela enkxaso axakeke kakhulu kubantu abanazo zonke iintlobo ze-aspergillosis.I-Aspergillosis yePulmonary engapheliyo (CPA), I-Aspergillosis ye-Alergic Bronchopulmonary (ABPA), Acute Ukuhlaselwa kweAspergillosis (I-AIA okanye i-IA), I-Asma eMandundu kunye noKwazisa ukungunda (SAFS), Aspergillus bronchitis kunye nokuninzi. Amaqela enkxaso afikeleleka nge Facebook kunye neTelegram kwaye zibandakanya Amaqela eenkomfa ngevidiyo kabini ngeveki. Kula maqela, unokudibana nabanye abaguli abaphila ne-aspergillosis iminyaka emininzi kwaye bavuleleke kakhulu kwaye banobuhlobo kunye nabasebenzi be-NAC ngayo nayiphi na imibuzo onokuba nayo.
3. Zifundise: Funda kangangoko unako malunga nemeko yakho, iindlela zonyango, kunye neendlela zokuzinyamekela. Ukuqonda isigulo sakho kunye nendlela yokulawula kuso kunokukunceda uzive unamandla kwaye ukwazi ukulawula impilo yakho. Iziko leSizwe leAspergillosis liqhuba iwebhusayithi yolwazi ukukunceda ukukukhokelela kweyona mithombo yolwazi ilungileyo aspergillosis.org.
4. Phuhlisa uthungelwano lwenkxaso: Ukuba unako, zingqonge abahlobo nentsapho abakuxhasayo nabanokuqonda abanokunikela uncedo olusebenzisekayo, inkxaso yeemvakalelo nokhuthazo. Ukuba nenethiwekhi yenkxaso eyomeleleyo kunokwenza umahluko omkhulu ekujonganeni nesifo esingapheliyo. Ngamanye amaxesha uncedo olungenamkhethe oluvela kumcebisi lunokuba luncedo xa usenza izigqibo.
5. Zikhathalele: Beka phambili ukuzikhathalela kwaye wenze impilo yakho yomzimba kunye neemvakalelo ibe yeyona nto iphambili. Oku kunokubandakanya ukuphumla ngokwaneleyo, ukutya ukutya okunezondlo, ukwenza umthambo rhoqo (njengoko kufanelekile), ukuqhelisela iindlela zokuphumla, kunye nokufumana imisebenzi ekuzisela uvuyo nokwaneliseka.
6. Zibekele usukelo olusengqiqweni: Lungisa ulindelo lwakho kwaye uzibekele usukelo olusengqiqweni ngokusekwe kubuchule bakho kunye nokulinganiselwa kwakho. Yahlula iinjongo ezinkulu zibe ngamanyathelo amancinci, alawulekayo, kwaye ubhiyozele impumelelo yakho endleleni. Izigulana ezininzi zifumanisa ukuba ziyanceda ukudlula imini ngcono ukuba ziyayisebenzisa ithiyori icephe ukulawula ngcono ubungakanani bamandla abanokuba nawo suku ngalunye.
7. Ziqhelanise nokuqaphela kunye nokwamkela: Zenza ubuchule bokucinga, njengokuphefumla okunzulu, ukucamngca, okanye ukuzilolonga kwengqondo, ukukunceda uhlale usisiseko kwaye ubekhona ngalo mzuzu. Ukwamkela akuthethi ukuba ulahle ithemba, kodwa kukwamkela kunye nokwamkela ubunyani bakho bangoku ngelixa ugxile kwinto onokuyilawula.
8. Funa uncedo lwengcali ukuba luyafuneka: Ukuba unengxaki yokuhlangabezana nentlungu, ixhala, ukudakumba, okanye ezinye iinkxalabo zempilo yengqondo, ungalibazisi ukufuna uncedo ingcali yezempilo yengqondo. Unyango lunokubonelela ngendawo ekhuselekileyo yokuphonononga iimvakalelo zakho, ukuphuhlisa izicwangciso zokumelana, kwaye ufumane inkxaso.

Khumbula ukuba ukulawula intlungu kunye nokulungelelanisa ubomi kunye nesifo esingapheliyo luhambo, kwaye kulungile ukufuna uncedo kunye nenkxaso endleleni. Yiba nomonde kuwe, ziqhelanise novelwano, kwaye uthathe izinto ngosuku olunye ngexesha.

Waphila amava ukusuka eAlison

Okokuqala, kusenokufuneka sichaze ukuba yintoni Intlungu..

Sisebenzisa igama intlungu kodwa yintoni ukuqonda kwethu ngayo? Ndicinga ukuba ingcaciso kunye nokuqonda kuyatshintsha njengoko sifumana ubunzima obuninzi bobomi. Enye yeenkcazo ezisetyenziswayo yi-“A tangled web of emotions”. Umsindo, usizi, ukuphoxeka, iinyembezi, ukuphoxeka, ukulahlekelwa bubuntu, ukuguquka kwemizwelo, ukudideka, ukudakumba, ukuyeka umsebenzi. Uluhlu luphantse lungabinasiphelo kwaye alukho kulo naluphi na ucwangco olucocekileyo okanye ukuqhubela phambili kwexesha.

Enye inkalo yokuqwalasela kwethu ityala, ezinye zazo eziveliswa kukwamkelwa kwethu kunye nokuthobela oko kuye kwaba "imilinganiselo yentlalontle". Kubonakala ngathi kukho ukukhanyelwa kokungathinteleki kokufa kunye nokuwohloka kwemizimba yethu yenyama. Ke xa ezi zinto zibonakala kakhulu kubomi bethu bemihla ngemihla sifuna kwaye silindele ukukwazi ukuzilungisa kwaye siphephe iziphumo. Xa oku kungenzeki, siba buhlungu kunye/okanye sizive sinetyala lokuba asikwazi ukuhlangabezana nolu lindelo Ngoko ke kufuneka “Phucula Intlungu yethu” kodwa kwakhona; lithetha ukuthini elo binzana?

Kumntu ngamnye, kuya kuthatha iindlela ezahlukeneyo kuba yonke imeko yahlukile kuloo mntu. ubudlelwane obubandakanyekayo, ubungakanani besifo, indlela ezibonakalisa ngayo, kunye nendlela esiqhubela ngayo. Indlela esibujonga ngayo ubomi. Ukujongana nentlungu yethu kufuna uqeqesho olunzima lokujonga ukuba zeziphi iinkolelo zethu ezingundoqo ebomini, yintoni ilahleko kunye nokutshintsha ezo ngqikelelo ukusuka 'kulwazi olusentloko' ukuya 'kulwamkelo lwentliziyo' kunye nokuziqhelanisa neempembelelo ezibambekayo kunye notshintsho. Konke oku kuya kuthatha ixesha namandla, kwaye kuyadinisa. Ngokusuka kumava am ndingacebisa oku kulandelayo:

• Ukuba neQela leNkxaso elizaliswe ngabantu abaye bahamba phambi kwakho luncedo olukhulu.
• Ukufunda amanqaku malunga nemeko yakho kunye nendlela yokulawula ngayo.
• Ukuthetha nomhlobo.
• Ukubhala inkqubo kukwaluncedo njengoko unokujonga ngasemva ubone inkqubela kunye nezinto obuzakuzama ukuzenza kodwa awukaphononongi. Oku kunokuba luncedo kakhulu xa uthetha nengcali yakho yezempilo.

Yonke le misebenzi iya kusinceda ukuba sijamelane neZifo zethu eziNgapheliyo.

Enye into efika ekujonganeni neSigulo esiNgapheliyo bubume bemeko kunye nokubaluleka kwaso eluntwini. Ngaphambi kokuba ndifumane ukuxilongwa kweAspergillosis, saxelelwa ukuba nguMhlaza Wemiphunga. Xa loo nto yatshintsha yaba yi-Aspergillosis intombi yam (uGqirha woNonophelo) wathi ukuxilongwa koMhlaza bekuya kuba lula! Isizathu soku kukuba uMhlaza yimeko eqondwayo ngokwentlalo, kukho inkxaso ebanzi ekhoyo, unyuso lwengxowa-mali enkulu kunye nokwazisa kunye nabantu bayajikeleza. Kukho indlela ecacileyo eya kunyango kunye nolindelo. (Ngokufanayo neSifo seNtliziyo kunye nenye okanye ezimbini iimeko ezixhaswa ngemali).

Iimeko zemiphunga kwelinye icala zinebala elingazange liyikhathalele imiphunga yakho, ngoko ke unetyala kwaye/okanye kuthetha nje ukuba akuphefumli kakuhle kodwa inokulawulwa kwaye ayinampembelelo enkulu. ebomini bakho. Cinga ngendlela amaPhulo okuchasa ukuTyaya aziswa ngayo.

Iimeko ezingapheliyo zemiphunga zikwanoxhatshazo oluphezulu apho iimeko zokuphila zihlwempuzekileyo kwaye ndibona oko njengokuphembelela ukuba lingakanani ixesha kunye nezibonelelo ezinokufakwa kumaphulo okwazisa kunye nophando.

Enkosi kwi-NAC kunye ne Inkxaso yeSizwe yeAspergillosis (iqhutywa yi-NHS) & Inkxaso ye-Aspergillosis Trust (eqhutywa yizigulane ze-aspergillosis kwi-Facebook) ngolwazi oluthembekileyo, izikhokelo, uphuhliso lophando kunye namabali esigulane www.aspergillosis.org www.aspergillosistrust.org

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