The Iqela leNkxaso leZiko leSizwe leAspergillosis in Facebook inamalungu angama-2700 ukususela ngoJuni 2023, kwaye iqulethe abantu abaneentlobo ezahlukeneyo ze-aspergillosis. Uninzi luya kuba ne-Alergic Bronchopulmonary Aspergillosis (ABPA), abanye baya kuba ne-Chronic Pulmonary Aspergillosis (CPA) kwaye abambalwa baya kuba neSibefu esiMandundu esineFungal Sensitivity (SAFS) iinkcazo ezinokuthi zifunyanwe. kwenye indawo kule webhusayithi.
UFacebook usivumela ukuba siqhube iivoti zamathuba athile ukuzama ukufunda kolu luntu lukhulu, kwaye sinikezela apha ezinye zezinto esizifundileyo:
Ingaba umsebenzi weNational Aspergillosis Centre CARES Team (NAC CARES) unawuphi umphumo kubomi bezigulane zethu?
Kule poll, sikhethe ukubuza abo bantu basebenzisa i Izibonelelo zenkxaso ye-NAC CRES (oko kukuthi, aspergillosis.org, iintlanganiso zeveki, iintlanganiso zeNyanga, amaqela enkxaso kaFacebook, kunye namaqela olwazi lweTelegram) ukucinga ngalo naluphi na utshintsho kwimpilo yabo ngaphambi nasemva kokuba befumene ezo zixhobo. Siza kuphinda lo msebenzi ngamaxesha athile ukujonga naluphi na utshintsho ekuhambeni kwexesha njengoko sisenza utshintsho ukuzama ukuphucula ukhathalelo lwesigulane.
15hi ngoFebruwari 2023
Kucacile ngoko nangoko kolu lokuvota ukuba abantu abaninzi abathe basabela banethemba elikhulu ngokusebenzisa inkxaso ye-NAC CARES. Ama-57/59 (97%) aphendule ngokuncomekayo. Esi sisiphumo esinomkhethe kwaye bambalwa abantu abangazifumaniyo ezi zixhobo ziluncedo abaza kuzisebenzisa ukuvota!
Iinzuzo eziphambili kwizigulana zokusebenzisa inkxaso ye-NAC CARES zibonakala ngathi:
- Ukuqonda ngcono i-aspergillosis
- Zive unolawulo ngakumbi
- Ukungakhathazeki
- Inkxaso kuluntu
- Ubudlelwane obungcono bokusebenza kunye noogqirha
- Lawula iQoL ngcono
- Ngaphantsi wedwa
Kwabambalwa inxalenye yenkxaso ye-NAC CRESS ibenze baziva bebi kakhulu (2/59 (3%), kwaye siyaqonda ukuba ayinguye wonke umntu ofuna ukwazi ngakumbi malunga nemeko yempilo yakhe, mhlawumbi ekhetha ukuvumela iqela labo lezonyango ukuba liyilawule ngaphandle kokubandakanya. ngokwabo? Ukuba yinyani, eso sisiphumo esibalulekileyo kwaye kufuneka siyihloniphe loo mbono, kodwa sizame ukuchonga indlela yokubandakanya aba bantu ngokusebenzayo ekulawuleni ukhathalelo lwempilo yabo njengoko kumiselwe ukuba oku kuphucula iziphumo zesigulana. https://www.patients-association.org.uk/self-management.