Ukuhamba nge-rollercoaster yesigulo esingapheliyo ngamava awodwa kwaye ahlala eyedwa. Luhambo olunokuzaliswa kukungaqiniseki, ukubonwa esibhedlele rhoqo, kunye nomnqweno ongapheliyo wokubuyela esiqhelweni. Oku kuhlala kuyinyani kubantu abanezifo ezingapheliyo zokuphefumla, njenge-aspergillosis. 

Kwesi sithuba, u-Evelyn uqalisa uhambo olubonakalisayo, echaza ngenguquko yesigulo sakhe ukususela ekuxilongweni kwasebuntwaneni ukuza kuthi ga ngoku, umgca wexesha ophawulwa sisibini esine-cystic bronchiectasis entsonkothileyo yikholoni ye-aspergillus kunye ne-scedosporium engaqhelekanga. Ku-Evelyn, ukugcina idayari, ukuphawula iimpawu, usulelo, kunye neendlela zonyango kube yindlela yokwenza ingqiqo yokungaqiniseki kwempilo yakhe. Lo mkhwa, owenziwe kwiminyaka eyadlulayo ngumcebisi ocinga phambili, udlula usetyenziso olusebenzayo, uguqukela ekubeni sisixhobo esibalulekileyo sokuxhobisa isigulane kunye nokuzithethelela.

Xa wayekhangela iwebhu efuna uncedo lokucokisa idayari yeempawu zakhe, uEvelyn wadibana nephepha elinesihloko esithi: I-Bronchiectasis Exacerbation Diary. Eli phepha lalisisityhilelo sodidi. Ikhanyisile imiba ehlala ingahoywa yesigulana-amava kwaye yaqinisekisa iimpawu ezihlala zingaqondakali athi uEvelyn abe nazo. Bubungqina bamandla ophando olugxile kwisigulane kunye nefuthe lokubona amava aphilayo avunyiweyo kwiincwadi zenzululwazi. 

Umboniso ka-Evelyn ongezantsi usisikhumbuzo seziphumo ezibanzi zesigulo esingapheliyo kubomi bemihla ngemihla kunye nesidingo sokuziqhelanisa nendlela yokuphila yemihla ngemihla. 

Njengomphumo wencoko noLauren kutshanje malunga nokusetyenziswa kwedayari yeempawu / ijenali, ndafumana iphepha elipapashwe kwi-intanethi, 'I-Bronchiectasis Exacerbation Diary'. Ndifunyaniswe ebuntwaneni ndinesifo sokuphefumla esinganyangekiyo esiye saqhubeka ubomi bam bonke, ndine-cystic bronchiectasis enzima ne-colonization ye-aspergillus kunye ne-rarer fungi, i-scedosporium.

Kudala ndiqhele ukugcina amanqaku eempawu / izifo / unyango, ndikhuthazwe ukuba ndenze njalo, kwiminyaka emininzi edlulileyo, ngumcebisi ukuze kube lula ukubhekisela ekuqeshweni. Wagxininisa ukunyanga izifo kufuneka kuxhomekeke kwisiphumo senkcubeko yesikhohlela kunye novelwano kwaye kungekhona kwindlela "ye-roulette yaseRashiya", njengoko wabiza i-antibiotics ebanzi; ngaphandle kokwazi ukuba luhlobo luni losulelo olubandakanyekayo. Ngombulelo, ugqirha wam wayenentsebenziswano, njengoko ngelo xesha iinkcubeko zazingeyosiqhelo. (Ndandisoyika ukufumana udumo njengesigulana sasebolshie!)

Ukufunda eli phepha likhankanywe ngasentla kwakusisityhilelo. Idibanise uluhlu lweempawu endizifumana mihla le, kwanezinye iimpawu endiziva ngathi azifanelekanga ukuba ndizikhankanye kwiindibano zekliniki. Ngaphezu koko, ndaziva ndiqinisekisiwe.

Kubekho amaxesha, nangona kunqabile, xa ndithandabuza ngokwam, akukho nanye kunaxa omnye ugqirha wathi ndine-psychosomatic. Le yayiyeyona ngongoma yam iphantsi. Okuvuyisayo kukuba, emva koku ndathunyelwa kugqirha wokuphefumla kwiSibhedlele saseWythenshawe owathi, xa inkcubeko yabonisa i-aspergillus, wandidlulisela kunyango lukaNjingalwazi uDenning; njengoko besithi "ilifu ngalinye linomgca wesilivere". U-Aspergillus wayekhe wafunyanwa esibhedlele ngowe-1995/6, kodwa akazange aphathwe ngendlela eyayisenziwa ngayo eWythenshawe.

Akunjalo kuphela iimpawu zemihla ngemihla eziye zaqwalaselwa kwinqaku, kodwa kunye nefuthe elikhawulezayo lamava ezigulane ngokuphila kwemihla ngemihla. Kwakhona, ngengqiqo ebanzi, iimpembelelo ngokubanzi kubomi bethu kunye nohlengahlengiso sonke esijongene nalo ekuhlangabezaneni nemeko - zonke ezo ndinokuthi ndizibone ngokulula kobam ubomi.

Ndizive ndikhuthazekile ngokufunda eli phepha njengoko ngaphandle kwazo zonke iintlobo ezahlukeneyo zamaphecana olwazi lwesigulana endiwafundileyo kuyo yonke le minyaka, akukho nalinye libanzi.