Lo mxholo ulandelayo uveliswa kwi-ERS
Kule vidiyo ingasentla, uSandra Hicks ushwankathela amava akhe nge-hyper-IgE syndrome (HIES), i-hypoimmunedeficiency syndrome, kunye nendlela yokuphila nale meko inqabileyo yemfuza kunye nosulelo lwemiphunga oluhambelanayo buchaphazela ubomi bakhe. Njengesiphumo esithe ngqo se-HIES kunye nefuthe layo kwi-immune cascade, uSandra ngaxeshanye ulawula izifo ezingapheliyo. I-Aspergillus usulelo lwe-mycobacteria (aspergillosis),I-Mycobacterium avium-intracellulare), i-bronchiectasis colonized with Pseudomonas kunye nesifo sombefu. Uxoxa ngesiphumo sesi sifo sinqabileyo kunye nomthwalo wosulelo kubomi bakhe bemihla ngemihla, kubandakanywa neempembelelo zezinye izinto ezifana nobushushu, ukufuma kunye nokumelana ne-antimicrobial.
USandra udlulisela ithemba lakhe kwiiklinikhi eziphatha abanye ngeprofayili yesifo esifanayo, kubandakanywa nefuthe lonyango lwe-immunoglobulin; kwangethuba, ukuxilongwa ngokuchanekileyo kwe-immunodeficiencies yokuqala kunye nosulelo lomngundo; kunye nokwazi ukusebenzisana okunokwenzeka phakathi kwe-antifungals kunye namanye amayeza (https://antifungalinteractions.org). Ukwaxoxa ngokubaluleka konxibelelwano olubanzi, olufika kwangexesha ngaphakathi naphakathi kwamaqela ezinto ezininzi. Okokugqibela, uSandra ugxininisa ixabiso lenkxaso evela kwiingcali zempilo ezihlangeneyo kubantu abaneemeko zemiphunga ezingapheliyo.
USandra uye wabuyela ukuvuselelwa kwemiphunga iiklasi. Ezi zibonelela ngenzuzo enkulu, kungekuphela nje kubantu abaneCOPD kodwa nakwabo baphila nezinye iimeko zemiphunga. Ukwenza le nkonzo ifikeleleke ngokubanzi kungaphucula ulawulo lweemeko ezingapheliyo zemiphunga kwaye kunokunciphisa iindleko zokhathalelo lwempilo olunxulumeneyo.