Carers & Family

People listening supportively in an aspergillosis peer-support group, with different paths representing individual patient journeys.

Your Story Matters—but It Is Not Someone Else’s Future

Couple walking together along a winding coastal path symbolising the emotional journey of living with chronic illness, including hope, setbacks, recovery and ongoing adaptation.

Learning to Live with Chronic Illness: Is It Really Like Grieving?

Preparing for a Disability Assessment: A Practical Guide for People Living with Aspergillosis in UK

Originally published: August…

Whiteboard, medication organiser, diary and reminders illustrating the hidden workload of managing chronic illness, medications and healthcare appointments.

The Hidden Job Nobody Talks About: Living with Chronic Illness

Illustration showing an aspergillosis patient health summary, myMFT patient portal, steroid emergency card, NHS number card and inhaler, highlighting the key medical information patients should carry for emergency and routine healthcare.

Do You Carry Your Aspergillosis Information With You?

Illustration of a woman living with aspergillosis sitting wrapped in a blanket looking exhausted and thoughtful while people in the background make dismissive comments, highlighting the emotional burden and invisible symptoms of chronic lung disease.

Living With Aspergillosis: When Others Do Not Fully Understand How You Feel

Why Join an Online Support Group if You Have Aspergillosis?

You are not alone with…

Donating Your Body for Medical Research in the UK

Including research that may…

Why Aspergillosis Is So Hard to Diagnose

When Symptoms Are Real but Answers Are Not: Understanding Uncertainty

Last reviewed: 18 March 2026…