Aspergillosis Patient Conference 2025 – summary and recording

The Aspergillosis Patient Conference 2025 took place online on 29 November 2025. The event was co-organised and co-presented by the National Aspergillosis Centre (NAC) and The Aspergillosis Trust, in collaboration with the European Lung Foundation (ELF).

The free conference brought together people living with aspergillosis, carers, patient advocates, clinicians and researchers from across Europe and beyond. Its focus was firmly patient-centred, combining clinical expertise with lived experience to improve understanding, awareness and care.

🎥 The full conference recording is now available to watch online, enabling anyone who missed the live event to benefit from the sessions and discussions.

What the conference covered

Across the programme, speakers explored:

• What aspergillosis is and the different forms it can take

• Symptoms and diagnostic challenges, including delays in recognition

• Current treatment and management approaches

• Living with aspergillosis, shared directly by patients

• What needs to improve, including awareness, education and access to specialist care

Live questions, polling and discussion ensured that patient priorities and real-world concerns shaped the conversation throughout.

Speakers and perspectives

The conference featured a broad range of patient advocates and clinical experts, including:

• People with lived experience of chronic pulmonary aspergillosis (CPA) and allergic bronchopulmonary aspergillosis (ABPA)

• Representatives from NAC, The Aspergillosis Trust and the ELF Aspergillosis Patient Advisory Group

• Respiratory physicians, infectious disease specialists and researchers involved in European clinical guidelines and research

This mix ensured that sessions reflected both medical best practice and day-to-day patient realities.

Who the recording is useful for

The on-demand recording is particularly valuable for:

• People living with aspergillosis and related lung conditions

• Family members, carers and supporters

• Healthcare professionals seeking a patient-focused overview

• Patient organisations and advocates working in respiratory or fungal disease

Why this conference matters

Aspergillosis remains under-diagnosed and poorly understood, despite its significant impact on health and quality of life. This conference highlighted:

• The importance of patient voices in education and guideline development

• The need for earlier diagnosis and clearer care pathways

• The value of collaboration between specialist centres, patient charities and European organisations

By making the recording freely available, NAC, The Aspergillosis Trust and ELF have ensured the conference continues to support patients, carers and professionals well beyond the live event.