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Increasing awareness, diagnosis and treatment of aspergillosis
Plan:
Here’s how to build a global-ready, multi-audience awareness strategy that reflects:
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🌍 Patients from many countries
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🇬🇧 UK’s relatively stronger but still inequitable provision
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🤝 Partnerships with European Lung Foundation (ELF)
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🫁 Linkages with European Respiratory Society (ERS)
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🧫 Inclusion of Infectious Diseases (ID) specialists (often key for CPA, ABPA, bronchiectasis).
Below is how to integrate these pieces into a coherent system that works for UK, Europe and global contexts.
⭐ Revised Strategy: 3-Level Campaign Structure
Level 1 — Global “Think Aspergillus” Awareness (ALL forms)
A high-level global campaign.
Purpose
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Set the basic expectation for clinicians worldwide:
Chronic aspergillosis exists. It is under-recognised. It is treatable. Patients must not be left undiagnosed for years. -
Establish NAC/Manchester as a centre of excellence and global knowledge generator.
Audience includes
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Respiratory specialists (global)
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Infectious Diseases physicians
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TB clinicians
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Radiologists
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GPs/primary care
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Severe asthma HCPs
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International NGOs, TB networks, antifungal stewardship groups
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Patient associations (global)
Messaging needs to be platform-agnostic
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No assumption of UK NHS pathways.
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Focus on how to recognise and what to look for, not the specifics of UK referral systems.
This also helps clinicians in resource-limited settings.
Level 2 — Europe-Focused Campaigns (via ELF & ERS)
Use ELF → ERS pathway to drive continent-wide consistency.
Purpose
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Embed CPA/ABPA/bronchitis/SAFS into European respiratory education.
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Raise awareness among ID specialists (ERS includes TBNET, ID, critical care, etc.)
What this makes possible
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Webinar series co-branded (ELF + NAC).
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ERS Congress abstracts, posters, training modules.
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European guidelines visibility (CPA is in ERS guidelines; ABPA in 2024 ISHAM criteria).
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European centre-to-centre collaboration.
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Better quality translation: patient materials in 8–10 languages.
Key clinical groups to reach
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ERS Assembly 3 (Airway Diseases),
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Assembly 7 (Infectious Diseases),
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Assembly 10 (Respiratory Infections incl. fungal),
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TBNET,
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ERS long COVID networks (symptom overlap),
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Severe asthma and difficult-to-diagnose asthma groups.
Outputs here
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Europe-wide “CPA symptom flags”
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Radiology recognition guides
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TB → CPA transition risk tools
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Country-by-country resource lists
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Adaptable patient stories
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Simple diagnostic algorithm posters
Level 3 — UK-Specific Pathways (NAC’s commissioned role)
Once a clinician audience is warmed up, UK messaging becomes more specific:
Purpose
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Reduce variation across England
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Educate GPs, respiratory teams and ID physicians on referral triggers
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Improve access to nationally commissioned services
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Reach ICS/ICBs
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Create local champions
Key audiences
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Respiratory teams in regions with low detection
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ID teams (especially tertiary hospitals needing CPA input)
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Severe asthma networks
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Radiology
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Primary care (via RCGP/GP federations)
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NHS antimicrobial stewardship teams
Outputs
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ICS-specific referral sheet
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UK diagnostic algorithm
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One-page “When to refer to NAC” tools
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GP-friendly versions
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LinkedIn posts tailored to specific ICBs
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UK-specific webinars targeted at low-detection areas
🧫 Where Infectious Diseases fits in your strategy
ID must be integrated throughout, because:
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Many countries don’t have strong respiratory care, so ID doctors manage CPA/IPA.
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ID teams already handle TB, HIV, NTM, post-COVID complications.
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They understand antifungals, drug interactions, toxicity.
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CPA is an infection interface disease: ID + respiratory + radiology.
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Hospital-based ID teams see recurrent admissions → they are a high-yield detection group.
ID-specific messaging
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CPA is not an opportunistic infection but often occurs post-infection (TB, COVID, flu).
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High mortality untreated.
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Long-term monitoring needed.
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Antifungal stewardship: interactions with rifampicin, statins, DOACs, macrolides.
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Beta-D-glucan is not reliable for CPA.
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IgG + HRCT = most important.
ID-specific outputs
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One-page antifungal interaction guide
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“When NOT to rely on galactomannan/BDG”
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Recognising cavitary disease
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Guidance for managing CPA flares vs bacterial exacerbations
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Case-based ID rounds (very effective)
ID specialists also work closely with radiology → essential for CPA detection.
🌍 Global Patient Group Integration
Your international patient base is a major asset.
Patients can help with:
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Lived experience stories from multiple countries
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Illustrating impact of misdiagnosis
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Contrasting UK provision with other systems
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Helping shape multilingual materials
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Participating in ELF advisory panels
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Speaking at ERS/ELF sessions
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Driving awareness via social media: “Patients teaching clinicians”
Why this matters
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Stories from India, Africa, Europe, Middle East, USA highlight global underdiagnosis.
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Shows clinicians this is not a rare UK niche condition — it’s global, serious, and widespread.
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Helps pressure national societies and ministries of health.
🎯 Recommended Overall Workflow (Simple)
1. Global message
“Chronic aspergillosis is under-recognised everywhere. It causes avoidable suffering. Better diagnosis saves lives.”
2. Europe-level message
“Across Europe, misdiagnosed chronic respiratory symptoms require fungal thinking.”
3. UK-level message
“We have a nationally commissioned centre — refer early, don’t wait.”
4. Condition campaigns
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CPA
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ABPA
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Aspergillus bronchitis
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SAFS
5. Targeted versions for
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Respiratory
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ID
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Radiology
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Primary care
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TB clinics
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Severe asthma hubs
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Bronchiectasis services
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LMIC clinicians
✔️ Short answer
You need both global + European + UK layers, AND separate campaigns for CPA, ABPA, bronchitis, SAFS — all under one unified umbrella.
And Infectious Diseases should be treated as a core audience equally important as respiratory.

