National Aspergillosis Centre Patients Survey 2022
Day of most recent consultation *

First, a few questions about how you are being seen at the moment

1. If you have had a virtual consultation with our team either by video consultation (Attend Anywhere) or by phone, how well did you feel it went? *
2. If you were given the choice in the future, would you choose to have your consultations face to face at Wythenshawe Hospital, by video consultation or by telephone consultation? *

3. How satisfied are you with the courtesy shown to you by our team: -

NAC Administrative Team *
Clinic Nurses *
Aspergillosis Specialist Nurses *
Doctor *
Physio *
CARES team (Commmunications) *
Specialist Pharmacist *
4. How satisfied were you with the communication and care provided by each member of the NAC team?: -
NAC Administrative Team *
Clinic Nurses *
Aspergillosis Specialist Nurses *
Doctor *
Physio *
CARES team (Commmunications) *
Specialist Pharmacist *
5. How satisfied are you with the communication received regarding your clinic appointments? *
6. Have you had a consultation inbetween clinic appointments with one of our specialist nurses? *
If yes, how satisfied were with the following:
Knowledge of condition
Communication
16. Are you generally happy to participate in clinical research? *
a. If you already have, were you happy with the procedures and consent process?

A few questions about patients support outside of clinic (CARES/Comms Team).

This team provides opportunities and resources for patients and carers to be supported. Some resources are on online (aspergillosis.org, Facebook group, Weekly Zoom meeting) others are not (Patient & Carers meeting on first Friday of the month, Quarterly booklet & newsletter on every table in clinic, Information leaflets).

17. We have developed several patient information leaflets that are available online at https://aspergillosis.org/information-leaflets/ and on request in clinic. Have you seen them? *
a. If you have seen them, how useful do you think they were for you? *
NOTE: If you would like us to send you a copy of any leaflet or have a suggestion for a new leaflet, please contact us at [email protected] or phone 0161 291 5866.
18. Have you visited the new Aspergillosis patient’s and carers website? (https://aspergillosis.org/) *
a. If you have, how satisfied are you with the Aspergillosis website (aspergillosis.org)?
19. We have regular monthly patient meetings here in Manchester at 13:00 on the first Friday of every month, currently presented on Zoom online.

Join the meeting by going to the Zoom website
https://zoom.us/meeting/81137735608
(enter the code 784131 if prompted).

Have you attended this patient’s meeting on Zoom or Facebook? *
b. If no, please tick the following comments if relevant
20. We have a very active Aspergillosis Support group (>2500 members) on Facebook (https://www.facebook.com/groups/aspergillussupport/). Are you a member? *
21. There is a twice-weekly online social chat for patients & carers on Thursday at 10.00am and Tuesday at 2pm, currently using Zoom software. You can attend using your phone or any computer. The link is https://us02web.zoom.us/j/405765043 Code: 784131. Have you ever heard of it? If not please contact us at [email protected] or phone 0161 291 5866. *
a. Have you ever attended it?
22. The CARES team here at NAC have set up the Telegram App for your smartphone to enable you to contact the NAC CARES team completely privately and securely. This is useful for you to ask the team about any issues that you make be concerned about relating to NAC, and enables us to send you information too. Would you like to hear more about this? *
To contact us using Telegram, go to https://telegram.org/ and follow the instructions to install it for your phone/tablet/laptop.

Once you have it installed open a free account and message us at Lauren_NAC or Graham_NAC asking to join the NAC Telegram groups. We will do the rest.

Thank you for filling in this questionnaire, it is of great importance to us to hear your views and the results are published every year on aspergillosis.org in our annual report.

Read all of our annual reports here https://aspergillosis.org/nac-reports/

December 10, 2024By GAtherton