病人和照顾者的故事

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This is a collection of stories, mainly told by the patients themselves or their carers. Some are unusual cases, one is by a doctor and some are in memorium but all offer insight into what it is to live with the illness aspergillosis. This is often helpful for fellow patients, new patients, carers and increasingly medical student and doctors. 

It would be great if you could contribute your story – it can be long or short and you might not think it important but there will probably be something in it that makes someone else think a little more about what they are going through; whether that be what the patient is going through, what their carer and family is going through or what the patients in their clinic are going through.

标题
Mike Chapman
Patient stories from World Aspergillosis Day
我被告知要死的那一天
谁想永远活着?伊丽莎白·赫顿(Elizabeth Hutton)
“我仍然站在–(ME'N ELTON!)”,伊丽莎白·赫顿(Elizabeth Hutton)
EVERY BREATH YOU TAKE … (Apologies to ‘The Police’ and ‘Sting’)
My Story: When I was dying....
Listen to 2015 Hippocrates Prize Open winners
Listen to Hippocrates Young Poet Prize for Poetry & Medicine 2015
Listen to all the winning Hippocrates NHS poems
Panthera by Parthenia M. Hicks
THOUGHTS OF A FUNGI
亲爱的医生,我已读过你的扮演罗伯·拜伦(乔治·戈登)
在疾病中寻找诗歌:读者从疾病到缓解自我的自我转化之路。
诗歌病房一位医生向患者和医学生分发诗歌。
欢迎来到我的曲霉病页面!
苏·赫尔伯特(Sue Hurlburt)
史蒂芬·史密斯
小威
罗伯塔·本特利
彼得·K
彼得·艾伦
帕特·彼得森
Mike Firth - Diver
米克
玛丽·乔
玛格丽特·格里菲思(Margaret Griffiths)
男子从花园堆肥中吸入真菌孢子后死亡
魔星
斯科特·约翰森(M. Scott Johansen)
丽莎·麦克尼尔
金伯利·温泽尔
凯A.
约翰·布拉德利
Joan Becker - Xolair
Jim Azeltine
Jen W
格雷格·霍华德
Donna Asbridge
应对曲霉病
Coping from a carers viewpoint…
科林
芯片查普曼
卡罗尔·萨维尔
贝基琼斯
Anne's story
艾比击败严重的急性曲霉病并过着正常的生活
传奇的力量
Liz Smith的意识
THE HUNT by Billy Roberts
THE OLD DIPSOMANIAC by Billy Roberts
NOVEMBER THOUGHTS by Billy Roberts
After the diagnosis by Christian Wiman
In Appreciation of the Carer
Poetry at the GAFFI Launch
Decomposition: An Anthology of Fungi-Inspired Poems
11 irregular stanzas on trimming toenails by Kat Couch
Soup's On! by Del Maximo
Some Drs are odd by Mr Bigglesworth
GROWING THE ART OF YOUR SCIENCE By Andrew Newman
THE FOREST’S FLOORS By Luke Heaton
MUSCARIA IN MIND – by Ted Tudd
PLAYFUL BOYS – By Elizabeth Sheedy
The fungal thread of death by John Lucas
An Ode to the Mushroom
我的脚真菌
真菌诗:高贵的品格通过玛丽·庞索
Hope is... Aspergillosis Support Group Poem written with Caroline Hawkridge
卡洛琳·霍克里奇(Caroline Hawkridge)的可爱枕头中的曲霉菌

Want to share your story?

Head over to our Blog Submission Area to write about your own experiences living, or caring for someone, with aspergillosis.