丽莎·麦克尼尔

2003年11月,我在几周内两次遭受异位妊娠,当时我怀有双胞胎。第一次手术使被困在我试管中的婴儿流血(他们正试图挽救试管),但不幸的是那里还有另一个婴儿,十天后它使我的输卵管破裂,我被送往急诊室。我因严重的胸部感染和抗生素离开了医院。在重复1997年发生的事情数月之后,我再次被诊断出患有支气管扩张症,这一次是在双肺中进行的–噩梦!那是2004年4月。该顾问还发现我的心脏有问题,经过更多测试,我还被诊断出患有心肌病。我决定将我的工作时间减少到每周30小时,以设法帮助我保持精力充沛并保持健康。不过,我在接下来的6年里一直在医院内外服病,花大量时间请病假和吞咽许多抗生素。我每6个月见一次顾问,他每次都问我同样的问题。 “你要养多少痰?”,“它是什么颜色?”,“自从我上次见到你以来,你有多少抗生素?”然后他在我途中送我。

After a particularly bad winter, I had spent virtually the whole of January 2010 in bed and I was thoroughly fed up and feeling very lonely. Whilst my family were brilliant and very supportive they really didn’t understand what I was going through. I decided to look for others with my condition and found Bronciestasis R Us on line. Within minutes of registering a member had contacted me to welcome me aboard and offer me some advice which turned out to be the best advice I have ever been given. He told me that the key to managing this condition was to make sure you had the right consultant. I searched on a database and after bringing up 183 possible matches, Prof Denning was at the top. I asked my GP for a referral and within a week Prof D had agreed to see me. 3 weeks later just before Easter in 2010 I was in front of this wonderful man clutching my medical records and X-rays under one arm and shaking his hand with the other. Anyone who knows this man and his team will know what the next few weeks were like. He took over 17 blood samples, did scans and x-rays, made me cough regularly into sputum pots and got a Dr in Leicester to stick something painful up my nose and scrape away some brain cells!! Within a month he told me I had a mannose binding lectin deficiency (immune system) and aspergillos. He started me on a daily dose of azithromycn and itraconzole. I was seeing him monthly and after a couple of months he changed the itraconzole to sporanox. I have never looked back. The change in me was almost immediate. I had more energy, no infections and felt great. For the first time in years my husband and I could plan things without feeling worried that they might never happen. I stopped work as I felt enough was enough and if I was going to have any bad days I wanted to make sure the good ones were spent doing things I wanted to and enjoying myself. My husband is an angel.

We cleared out the loft in October 2011 and I ended up in hospital in terrible pain. I was put on morphine and doxi and stayed there for a week. I have been well since………….. 

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