引入冠状病毒(COVID-19)促进社会隔离

3月24日:扩大了社会隔离措施

昨晚政府要求我们大家呆在家里,互相保护,减轻对NHS的压力。 

有关在家里和远离他人的完整信息,请访问 政府网站

患有CPA的人被列为极度脆弱。任何时候都应始终待在家里,并避免任何面对面的接触至少12周。可以从以下网站获得更多关于屏蔽和保护以医学为基础的人的指南: 英国公共卫生.

3月17日:引入了社会隔离措施

政府已发布指南,建议所有人就减少人与人之间的社会互动以减少冠状病毒(COVID-19)传播应采取的社会隔离措施提供建议。它适用于人们居住在自己家里的情况,无论有没有亲朋好友的额外支持。如果您住在寄养院 有指导.

政府建议所有70岁以上的老人(无论医疗状况如何)都应采取社会隔离措施。 gov.uk上提供了我们都应采取的减少人与人之间的社会互动以减少冠状病毒传播的社会疏远措施的全面指南。这包括针对患有哮喘和COPD等既往健康状况的人的信息。请阅读。

政府对社会歧视的建议

 

3月12日:建议增加保护措施的预防措施

COVID-19在英国开始不受限制地传播,发现了460多个病例。这使病毒更可能在整个社区传播,从而增加了病例数。英国政府的措施正在减缓这种传播的速度,因此总数仍然相对较小,每个地区只有少数病例,因此任何人被感染的可能性仍然很小,但是如果您是患有慢性呼吸道疾病的患者,诸如曲霉病之类的疾病,您感染的风险略高。因此,我们建议您使用其他保护措施。
除了经常洗手之外,不要触摸脸部并限制与其他人的直接接触。建议您开始 社交隔离 这样任何感染者都很难传播该病毒。该链接详细说明了所有内容,但实际上是您 避免团体, 有症状的人,密切联系,即 距离某人不到2米的地方超过15分钟。 同时尽量减少使用 公共交通.

 

3月9日: 呼吸专家回答您的问题

一系列有用的问题,专门针对支气管扩张,COPD,哮喘,囊性纤维化等。由欧洲呼吸学会(ERS)专家James Chalmers教授撰写。 

一个回答来自NHS的有关COVID-19的常见问题

公共卫生建议

英国胸科学会指南-英国地区spe关键

BBC有关COVID-19的信息资源

关于冠状病毒,我需要了解什么?

2020年罕见病日-2月29日

罕见病纪念日是每年2月的最后一天(2月29日本身就是一个罕见的日子!)。该日为患者和倡导团体提供了机会,以提高对稀有疾病(例如曲霉病)的认识。每20个人中就有1个人会在一生中的某个时候患有罕见疾病,但是这样做的人仍然面临着巨大的挑战。常见的问题包括诊断延误以及难以获得治疗和护理-这些问题听起来对于许多曲霉病患者来说太熟悉了。 单击此处了解有关罕见病日的更多信息,以及如何参与其中!

什么是罕见病日?

2019年罕见病日的成功案例:



要在今年分享您的故事,请单击此处浏览“稀有现实”活动网站

Rare disease spotlight: interview with an aspergillosis patient and consultant

In collaboration with Medics 4 Rare Diseases, the Barts and the London Immunology and Infectious Diseases society recently held a talk about aspergillosis. Fran Pearson, a patient diagnosed with the condition, and Dr Darius Armstrong, a consultant in Infectious Diseases and Mycology, were both invited to speak at the event. Watch the full talk below to learn more about both the patient’s experience of diagnosis and the challenges faced by doctors when diagnosing patients with infectious diseases.

https://www.facebook.com/BLIDSoc/videos/613592952798238/

World Aspergillosis Day 2020

World Aspergillosis Day 2020 is almost here! The big day is February 27th and here’s a few ideas of ways that you can support the occasion and help to raise awareness of aspergillosis.

Submit your selfie!

The Aspergillosis Trust are asking people to show their support by downloading a selfie card, taking a selfie with it, and uploading it to their ‘Selfie Hall of Fame‘. Please get involved and show your support!

Add a WAD2020 graphic to your email signature.

We have produced a signature graphic for you to use on emails. Feel free to save your favourite colour version and share it far and wide!

Show your support for WAD2020 on your social media profile pictures.

You can support the campaign to raise awareness of aspergillosis by adding our twibbon to your profile picture. Twibbon will create a new profile picture for you containing the WAD2020 logo. Download this image and upload it to Twitter. Voila!

For Facebook it’s much simpler! Just add our frame!

Show your support for WAD2020 on your social media profile pictures.

You can support the campaign to raise awareness of aspergillosis by adding our twibbon to your Twitter profile picture. Simply visit https://twibbon.com/support/world-aspergillosis-day-2020 and add the twibbon to your profile picture in. Twibbon will then create a new profile picture for you containing the WAD2020 logo. Download this image and upload it to Twitter. Voila!

For Facebook it’s much simpler! Just add our frame!

Use our social media header images for LinkedIn, Twitter and Facebook.

Please take a look and download and choose your favourite colours.

Display our poster in your office or in a window at home

Print out and display our WAD2020 poster.

Host a coffee morning to raise awareness

On February 27th at 10am The National Aspergillosis Centre will be hosting a virtual coffee morning whilst at AAAM2020. We’ll be talking online to patients, researchers and clinicians. We invite you to run your own events at home and at work. So why not gather your friends, family or colleagues, make a brew, enjoy a slice of cake and tweet about taking a moment out of your day to raise awareness using the hashtag #worldaspergillosisday2020

Here’s a few assets to download to decorate your home or office. There’s bunting, cake labels and invitations!

WAD2020 Coffee Morning Assets

Stoptober

Stoptober is an initiative which aims to help people quit smoking. The dangers of smoking are well understood, but for those with chronic lung conditions the risks can be even greater – for example smokers are 5 times more likely to catch the flu, a major complication for aspergillosis patients.

We have had 2 talks at the National Aspergillosis Centre patient and carer support meeting that mentioned smoking and aspergillosis. At one meeting, Dr Khaled Al-shair (National Aspergillosis Centre Researcher) spoke of several guidelines to help patients suffering from Chronic Pulmonary Aspergillosis (CPA) feel their best while being treated at the NAC. Exercise and good diet played their part but one of the major improvements many patients can make to their lifestyle was to stop smoking cigarettes.

We have also had a talk from our local ‘Stop Smoking’ nurse – this talk focused what can be done locally using UHSM (University Hospital of South Manchester) services; so if you are a NAC patient or live withing striking distance of UHSM (Manchester, UK) you can take advantage of this help directly. There was also extensive information for anyone about the advantages of giving up cigarettes and different strategies to employ when trying to find a way to stop smoking.

The NHS also provides a wealth of information and advice on quitting smoking which can be found here.

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