In order to make our research as strong as possible we want to involve any doctor in the US who is involved with the diagnosis and treatment of aspergillosis. Patients and carers can help us by passing on our details in an email to all of your doctors, including a link to a survey asking for their contact details. The more we get the better!
Please copy & paste the following to your clinical team – more than one if you have them, specialist or general doctor.
Dear [Your doctors name]
The National Aspergillosis Centre (NAC) in Manchester UK is one of the foremost research centres in the world studying all forms of chronic aspergillosis (eg CPA, ABPA, SAFS, Aspergillus bronchitis, aspergilloma) and was the first centre recognised by the European Confederation of Medical Mycology (ECMM) and a Centre of Excellence.
Run by Director Professor David Denning, we would like to be able to contact clinicians in the US who are involved in diagnosing and treating aspergillosis, so that we can help involve you in our research programs. Only by working together can we improve diagnostics and antifungal medication for this chronic infection.
If you are interested in joining with us please complete this simple 5 question survey https://www.surveymonkey.com/r/7G533HH
Dr Graham Atherton
National Aspergillosis Centre
Manchester University NHS Foundation Trust – Wythenshawe Hospital, Manchester, UK
The NAC patient and carer support meeting is held on the first Friday of every month. The meeting is an opportunity to meet other aspergillosis patients and carers and listen to talks on a wide variety of different subjects.
Where? Altounyan Suite, Wythenshawe Hospital
When? First Friday of every month 13:00-15:00 (refreshments from 12:30)
Who? NAC patients can attend in person, and anyone can watch and comment online
How? Follow signs from the Friday clinic through to the Altounyan Suite, or join the Facebook group to watch online
What? We usually have one main speaker, followed by updates on research and other news from the NAC communications team. There will also be refreshment breaks, so there is ample time to speak to other patients and carers, or staff. The main talk varies widely and can be anything from lifestyle and coping skills (eg. managing stress) to aspergillosis research updates. We will advertise the talks here a week ahead – if you’re more interested in some subjects than others you are more than welcome to just pop in for one talk! To watch previous meetings click here.
Are you thinking of booking a holiday? Although more planning might be required for aspergillosis patients and carers, there is no reason that your condition should hinder your trip. Here are some of our tips for making sure that you’re well prepared and can relax and enjoy yourself!» Read more